When I'm flaring, I can't handle eggs. I find egg yolks are particularly problematic. In remission, though, I'm usually fine. My two cents: this is a good example of why it's so important to listen...
Has anyone else here experienced bad fatigue on Imuran? I switched from 6MP (50mg/day) a few weeks ago, due to the ongoing shortage of the drug in Canada, and my GP put me on Imuran. I worked up to...
It was great to see this thread today, as I'm meeting my new GI tomorrow after moving to Toronto and want to discuss pregnancy. I'm currently on 100mg of Imuran (was on 6MP until September, but had...
Yes, I am getting the same answer from all the pharmacies I call -- nothing until Sept 5. With the 25 pills I am having mailed from BC, I should be fine until mid-Sept. I just hope that the shortage...
Has anyone else been impacted by the shortage of 6MP/purinethol? I live in Toronto, and when I went to refill my prescription was told that the manufacturer has run out and the drug is back-ordered....
I haven't had my period in a few months, since before I was started on steroids. It's not uncommon to miss periods when your body is going through severe stress, like a flare. It's something you...
I have problems with coffee too. Even black tea can be too much for me, if I'm not feeling well. Tannins can cause problems, so it might be that more than (or in addition to) the caffeine. For...
Thanks for the feedback. Guess I can't know for sure whether the orange caused this, but I'm definitely going to avoid oranges for the next while!...
Yesterday evening I had 2/3 of a small orange. I was craving one really badly, and have been doing alright so didn't really think about it. I woke up a couple times in the night though, and today...
I second ElaineNY's on protein -- I find the key is get protein at breakfast, so it sticks with me and I don't have to snack again when I get to work. My fave go-to quick breakfast is a cereal I can...
I also use rice milk (can't do soy, dairy, or almond). Some kinds are better than others though -- some of the brands are a bit gritty. I would recommend Natura, which is quite nice....
Thanks for the input. I think I'll talk with my naturopath more about the enemas -- might be worth trying....
Has anyone had success with butyrate enemas? Just wondering if they might be worth a try......
I'm working on recovering from a flare (was hospitalized a few weeks ago), and everything seemed to be going along well, relatively speaking, until a few days ago when I went from having maybe ~2 BMs...
Even if you're off dairy and on a low residue (leafy greens are a good source of calcium), there are other food sources... Many dairy alternatives are fortified with calcium -- the rice milk I buy,...
I've had mouth ulcers, which my GI says is related to my UC. I buy this rinse at the drug store called Amosan (made by Oral B), which I find helps when they get bad. I've also found some things can...
I had a flex sig without any sedation, and it was fine. Sure, the procedure was uncomfortable, and it did hurt a little bit, but it was certainly manageable. It was nice to avoid the side effects of...
It sounds like you've been through a lot in the last couple of weeks! Be sure to get rest and keep eating. I find a nice bowl of homemade soup can be great when my appetite is off....
Yes, I was lucky! I really didn't realise before how serious sepsis can be. Needless to say, it was a real scare. The doctors have done quite a number of tests but still haven't determined what...
I got out of the hospital earlier this week -- first time I've been in with my UC -- and am still soooo tired. Feel like I've really been through the wringer. Quick background: My UC had been in a...
I find I'm bothered by many of the chemicals in other wipes, but found wipes made by Natracare which are quite nice and gentle. They're next to the feminine products. They come in a handy pack I can...
Have you read the book The Autoimmune Epidemic, by Donna Jackson Nakazawa? It goes through quite a number of different current and emerging theories on autoimmune disease, including toxins (both diet...
I've been in a manageable flare for about a year now (blood and mucus daily, urgency, nausea, urgency), but have never had to miss work. I thought I had a system worked out -- even though sometimes I...
I take two capsules of the probiotics a day, usually after breakfast. Good tip to take them at bedtime -- I'll give that a try. Thanks!...
I've just made an appointment to see my doctor on Friday and will definitely ask about enemas and blood tests, as well as an antispasmodic. I'll also ask about going off the fish oil for a short...
I have been dealing with UC for around a year and a half. After being diagnosed, I went on Salofalk (5-ASA), and am currently I'm taking 8 a day. I've also worked with a naturopath to modify my diet,...
Thanks for all the tips! I am getting a note from my doctor, and will definitely talk with the flight crew ahead of time -- I'm hoping that, as long as I watch what I eat, I'll be fine, but if not...
Just wondering if anyone has taken a flight in/through the US with the new air travel restrictions that came into effect on Dec. 25... I've heard that airlines will not let anyone use the washroom...
I started feeling worse recently and when I went in to see my doc/naturopath, she said uncooked greens can be really problematic for people with UC. I was eating a lot of salads, but since I cut out...
hi This is my first post -- I've been following the forum for a few weeks, but felt like I really wanted to wade in on this one. I've had excema since I was an infant, and deal with a number of...