Thanks. I am hoping it's just a temporary blip after coming off 6mp ( I think I live in the cuccoo land :) ) I have no bleeding ro urgency, just watery diarreagh since yesterday. I have an...
I wonder if anyone know if it's safe to take enemas while pregnant ? I think I might be heading to a mini flare after stopping my 6mp few weeks back (I know, I know.....) I have some steroid &...
I also breastfed my son while on Asacol and he had no ill effects. I am planning on staying on Asacolon after birth as well, wouldn't dare to even think about coming off it....
Thanks for you responses. fruitgirl, congrats on your second pregnancy, hope you're feeling good ! I am so sorry to hear how sick you got after delivery, it must have been a horrific ordeal to go...
I don’t post often, but read the forum all the time and get lots of support always when required. So here I am again, with a question on medication. I am currently 7 months pregnant with our second....
This is a topic that has been close to my heart for many years now. I know the anxiety you feel about conceiving, all the medications and what is the right thing to do. I wanted to share my journey,...
I had iron infusions when I was pregnant, as my iron got quite low too. MY GI didn't want me taking iron supplements either, as they cancause a flare up on some GI patients. I would talk to your GI...
Thanks for talking sense to me, I think I have been in denial for a long time how bad my flare really is (as we're trying to conceive our 2nd baby and I'd like to do it without immune supressants)....
I am currently in a mild flare, which has been on-going for a while now. I have been taking my Asacol 6*800mg a day and am doing ok. Some days I need to go to toilet 2 – 3 times a day, sometimes...
Thanks so much to take the time to reply ! All of it makes sense and I know I am the only who can make the decision what to do I am keen to get pregnant, but as you said, it’s probably not wise...
I’m a trying to make a decision regarding the medication I am / I should be taking and wondered if anyone has advice or could talk some sense into me. I have had UC for over 15 years, mainly...
Dublin Ireland :)...
Thanks Sherry. I have another weeks worth of enemas at home, so I will see if that makes any difference and then head back to my GI. I just know that he will ask me to start the 6mp again, as I had a...
Question for you girls…. We are currently trying to conceive our 2 nd child. I was on 6mp and salzopyrine since give birth two years ago to our first child, but changed back to asacolon when we...
I have a healthy nearly two year old boy and I pray every day that he will not inherit my UC, but only time will tell. If he will get sick, at least I am equipped to support him in many ways and will...
I don't know if the meds would affect your milk supply, but being de-hydrated definitely does. I was on Asacol through my breastfeeding and had to have few short courses of steroids as well, but they...
I was in the very same situation when I was expecting our son. My hb dropped to well below 9 and the ferretin went down to 3. I was offered the infusions from about week 35 onwards and I am so glad I...
hi Pauly I was on 6pm for the past year and it worked wonders for me. For the first time in god knows how long, I was in complete remission, with no urgency or diarreagh. I’m also in Ireland and here...
Hiya, I know how you feel, it’s sometimes so hard to get this horrible disease under control, but you will get there ! Have you had UC for long? Do you see a GI in one of the hospitals? I am also in...
I was on 1600mg through my whole pregnancy and our son was born 9lb 4oz (4.19kg) and very healthy. Hope your flare will settle down soon....
I'm in Dublin :) I am originally from Scandinavia, but been living here in Ireland for over 10 years. I have been attending the GI clinic in the Mater hospital and the care has been ok. You don't see...
I always get really bad smelling farts if I'm in flare or going into one.......
I had my baby boy 16 months ago and I was on Asacol through TTC, pregnancy and breastfeeding. My GI, GP and midwifes were totally happy for me to stay on it and as a result I have a healthy toddler...
I have been on 6mp for 6 months and it's working great for me. I am finally able to leave the house and go places, without worrying where the closest toilet is :) I am on 50mg a day and haven't had...
I have been on 6mp for 6 months or so and have to say it has changed my life ! I am finally in remission after I struggled for nearly a year, with formed stools and hardly any urgency. I did have...
I was in great form before pregnancy and while pregnant had no symptoms. I breastfed but started to flare 6 weeks postpartum (very sudden flare, no warning, just one night uncontrollable urge while...
Great Mia, hopefully you can get some rest now and seriously, try not to worry. If you have any questions, feel free to ask anytime, it's scary being pregnant and have this illness, but it is...
Mia, I just wanted to add, my AS symptoms and joint pains were nearly gone while I was pregnant, I was finally able to get a full nights sleep without having to get up... Unfortunately once the...
I have been on 6mp for nearly 6 months now and it has thanfully brought me in remission. I am also on sulfa bases maintenance drug and this seems to work so well for me. I have hardly any side...
My GI has told me numerous of times that it is safe to be pregnant and breastfeed while pregnant. I was on 4*800mg a day through my pregnany and breastfeeding and I have a perfectly healthy 14 moth...
Mia, I'm sorry to hear you're not doing so well. I was on asacolon through my pregnancy and had to switch to Salzopyrin ad I also was diagnosed with AS earlier this year. I am hoping to start trying...
I need some advice. I have a healthy 15 month old boy and I am staring to get broody again J Ideally I would love to have another one in the next couple of years, but I am not sure how to approach...
I have been on the sulfa for the past two months and it seems to be working for me. I have bene on Asacol since my initial diagnosis, but due to arthiritis my doc wanted me to try the sulfa based to...
My GI changed me from Imuran to 6mp, as I was having constant nausea with the Imuran. The 6mp seems to suit me fine and the side effects are definitely easier to cope with....
I had a very healthy pregnancy last year and our little boy is as healthy as any other 11 month old. I did great during the pregnancy, no flare-ups and stayed on Asacol through it all. I did have a...
I switched over to sulfa nearly two months ago, as the GI hopes it will be more effective on my arthiritis. I had horrible nausea when I started taking it, but it reduced after couple of weeks and...
I have multiple gallstones, but thankfully they have not caused me any problems yet. I do get an occasional pain on the right side, but it's not bad enough for me wanting to go through the surgey. My...
Hi Bikergirl, I am living in Dublin, but originally from Finland. I have been here in ireland for 11 years now :) and have had colitis for too long (since 1995)...
I also had horrible flu the first month I wason 6mp, ended up sith strep throat and antibiotics for it. I run a fever up to 103 for few days. I did take my 6mp as normal, but I also took lots of...
I have been on it for couple of weeks now and no side effects to report yet. I changed over from Asacol, as my arthiritis is is killing me and the GI think this might help with the pain. I had slight...
I was on Asacolon through my pregnancy and felt great, had no symptoms and thought I was invincible. However, 6 weeks postpartum I started a horrible flare, no notice at all, very sudden diarreagh...
Sorry Sherry, my typo ! It's the sulfa based drug, sulfasalazine, which has the brand name of salzopyrin here in Ireland :) . It's meant to be very effective in reducing arthritis pains, which I am...
Thanks ! I am on 6mp, just changed my signature now. i was prviously on Imuran but it caused horrendous nausea, we're trying the 6mp now. Do you know if it's safe to take vitamin supplements while on...
I have been on the 6mp for 6 weeks now and have started to suffer terribly with mouth ulcers, does anyone know if this is a side effect of the drugs ? I also get awful nausea, even though I take it...
I have two cousins with Crohns, my mum has some problems and I believe my great-aunty had colitis too. Now my own aunty is going through tests as she has suspected colitis. Definitely seems to run on...
i was on imuran for couple of months, but got horrific nausea and had to staop taking it. My GI put me on 6mp, as this is sometimes better tolerated by some people. I take mine in the evenings and so...
I have bit of a dilemma… I have been flaring since last July, just can’t seem to get back in remission at all. I have good days and bad days but overall I seem to be able to cope with my symptoms. I...
I always have a follow up appointment after my scope, they normally want to discuss the medication regime and just go though the results of the scope with me again. I wouldn't worry about teh...
I was great during my pregnancy, had my baby boy 9 months ago. No bleeding, nothing during the pregnancy at all, in fact I felt great :) 6 week spost-partum I started to flare and am still struggling...