I was wondering about celiac as well....a very good friend of mine has a son who was diagnosed with celiac at age 8, up until that age he had episodes of what they thought was IBS, but then he...
((hugs)) I am so sorry to hear about your son. I hope it is only H. pylori and that he gets treated and heals.....what an agonizing wait it must be for you....
Still waiting for some stool to pass so they can remove her NG tube. She is in really great spirits, considering she hasn't eaten anything in 7 days. Christine, it was very helpful that you posted...
Congratulations! You will be a terrific, compassionate doctor because you will know exactly what your patients are dealing with. My daughter has always wanted to be a doctor, even before she had...
Again, thank you all for your kind words! Today was a little rough, due to the non-stop cast of characters parading into her room overnight, she did not get one wink of sleep. Seriously, someone...
Thank you all for your prayers and well-wishes! She can't stop babbling about how happy she is that she is in no pain.......we had no idea that she would be able to get an epidural and when the...
My daughter had her surgery today, she is doing great. The procedure took 7 1/2 hours, we are about to leave the recovery room.......she has been insisting, for the last 2 hours, that I "post on...
My husband has been on sulfasalazine since his diagnosis in 1995. He has been in remission since then, his yearly colonoscopies show no sign of inflammation and his GI says if he didn't KNOW my...
My daughter has done the Dulcolax/Miralax prep with all 3 of her colonoscopies.......we mix the Miralax with 64 oz. of gatorade (use a flavor you don't like! Or at least one that you can live...
I agree with you completely, Killcolitis!! I've yet to encounter one person who has walked the same UC path as my daughter (no luck finding someone even close!).........definitely a 'to each his own'...
There seems to be so many different pre-op experiences! For my daughter, there is no pre-op "appointment," just a phone consultation. We received the bowel prep and antibiotic prescript ions in the...
This was the first drug given to my daughter when she was diagnosed, along with 6MP. We were told that it will put 90% of Pediatric UC patients into remission, but that only 50% would stay in...
Regarding your original post, my husband is one who has only had one flareup, when he was diagnosed, just over 15 years ago. He still takes a maintenance dose of sulfasalazine (2 pills/day) and 1 mg...
Wish we had a suitable donor/the courage to try fecal transplantation! My daughter had cdiff last year, she needed several courses of flagyl because the cdiff symptoms kept recurring. On the advice...
I went back and checked through my records, my daughter's ALT was high (143-162) for 3 months that she was on allopurinol......when the ALT started coming down, she started flaring. I wish I had...
She will be 15 next month. I will have to update my signature.....medications, supplements have changed so often I haven't been able to keep it updated! She was on the allopurinol/6mp for about 4...
My daughter used both. About a month after she started taking 6MP her liver function result was high, so her doctor lowered her dose of 6mp and added allopurinol. The Allopurinol slows the absorption...
Congratulations, Adam! I hope all continues to go well for you! Keep us posted!!...
Hi Killcolitis! Will email you at some point when I have a free moment.......waaaaay to much to post on this thread. I hope your daughter is stable and feeling well....
Definitely take her to the doctor, trust your gut and do what you have to do to get the doctor to take this seriously! My husband has UC, when my (then 12 year old) daughter had bloody diarrhea I...
Congratulations! Best wishes to you and I hope your remission continues for a looooooong time!!...
Hi Lilsan, I am so sorry that you have to deal with this disease. My daughter is also 14 and was diagnosed almost 2 1/2 years ago with UC. A website you may want to visit is www.ucandcrohns.org. It...
agt, I am so sorry for what you are going through........but it has led you to this forum, which can be very helpful. Almost everyone here can relate to much of what you feel.......none of us would...
My daughter took Serovera for 2 months.......did not notice any difference in her symptoms at all....
Best of luck to you, Anthony!! Will be sending lots of well wishes and positive vibes your way!!...
Sending plenty of (((hugs))) to you kweeks. Having a 5month old can be exhausting for a 'healthy' person, my heart aches for you having to deal with UC as well. Please keep us posted after your...
Congratulations on your upcoming wedding! I have to put my two cents' worth in.....I LOVE Aruba and would recommend it in a heartbeat! Very relaxing, beautiful, great restaurants and 78 to 82 degrees...
Nice to have you back on the forum and thanks for the update. Best wishes for a speedy, comfortable, UC-free recovery!!...
Thinking of you, Scrap Girl! Hope your surgery went well and you are on your way to a speedy recovery!...
Hi, interesting post as I just had this conversation with my daughter's GI this week! She has been on sulfasalazine for over a year now, and at her appointment this week she asked her doctor if she...
My daughter's ESR is typically in the 30-ish range, but it has been as high as 75. Her C-reactive protein, another inflammatory marker which, according to her doctor, is a more accurate measure of...
hmm, we were thinking of increasing her dosage to of w.o.o. to twice a day with the next cycle, I am going to rethink that now because of your experience. Hopefully things are turning around for you...
I am so sorry for your loss. My condolences to you and your family. (((())))...
How long did you take the wild oregano oil for? My daughter takes the wild oregano oil in cycles, 5 drops a day for 3 weeks at a time, with at least 3 weeks rest in between, never had a problem,...
My daughter's GI says anything accomplished within 20 minutes should be counted as one, the reasoning behind that is if you're having 3 BM's 5 minutes apart, you just didn't give yourself enough time...
15 mins south of Boston...
thank you killcolitis!!...
Did you have to create an account to see the article? It wouldn't let me see it without an account, and to create one it looks like you need to be a medical professional, which I am not..........
Hi Linda, Glad to hear you are feeling so much better~! Thank you for sharing about the Oxy Aloe Plus, was your UC flaring flaring badly when you started taking it or were your symptoms mild? Just...
Hi Pam, She stopped the remicade after her 7th infusion; it immediately put her into remission with the 1st infusion but she started flaring again about 2 weeks after the 3rd. Her doctor then had her...
Thanks, David, it is always helpful to know what medications someone has been on! Also, you may want to check out www.UCandcrohns.org , it is a website for teens run by the ccfa and the starlight...
Hi David, Welcome to healing well. I think you should call your doctor to at least keep him in the loop regarding your reaction to the double dose of remicade. I hope things start to go better for...
How long has she been taking the herbs?...
Maybe it was the Lialda that caused the pancreatitis? It is a rare (1%) side effect of Lialda and since the pancreatitis started after you switched to Lialda I would think that it is the sole...
We had a stool test done through her naturopath last summer. She tested positive for c-diff and cryptosporidium. Of course when the GI tested her stool, it was negative for both. She was treated for...
I don't know if flagyl would be an ongoing treatment, there are a few uncomfortable side effects (the aforementioned tingling; metallic taste in the mouth; and after a while it makes my daughter...
Hi Killcolitis! I have been following your posts and it seems like your daughter is doing better! My daughter has been on and off Flagyl since July. Her GI prescribed it because she had an outrageous...
How long has he had the Eurythema Nodosum? I do not have UC, but have had E-nodosum due to another auto immune disease that I have. They lasted about 6 weeks.........excruciating pain, stiff joints,...
Everyone is different, but it did not affect my daughter's UC at all. She took it last year for pneumonia, and again a couple of months ago for a sinus infection, with no worsening of her UC. Good...
I'm not an expert by any means....but pred will suppress your entire immune system, which stops inflammation and then (usually) bleeding will stop. Your body naturally produces its own...