Yep; next line of treatment (which from what I understand is the last/highest line) is Remicade (which I started fairly recently; no ill effects so far/feel normal; has helped a little; going for my...
I have been feeling this way (very restless, irritable, mood swings, anxious, etc.) and I believe it is due to the prednisone I'm on and have been on for several months straight. I explained this to...
I don't know about Asacol but Lialda has one through Shire. Maybe asking his doc abotu making a switch to Lialda could be an option since both are about the same med?...
I just purchased 2 different vitamins: Nature Made vitamin D 400iu/made with D3 and Nature Made Folic Acid 600mcg w/DHA, Vitamin B-12 50mcg, also has Fish Oil 137mg and Omega-3 DHA 50mg I'm thinking...
As title says, I'm currently taking 50mg Prednisone and 4 Lialda pills once a day in the morning. While on these, I still am flaring (have 2-3 BM's daily with a little blood; very thin stools; severe...
I was released from the hospital about 3 weeks ago from a horrible flare. I've been on a low residue and no dairy diet for the last 3 weeks since then; this was given to me/instructed by a...
I am right there with you, II. I lost 10-15lbs. from my recent and most horrible flare. I was thin to begin with (around 140lbs and 5'10"; now I'm around 128lbs.) I too cannot really gain weight no...
Wanted to post an update on my situation: Well, I was in the hospital for 6 days on bowel rest (no eating or even drinking clear liquids the first 2 days; clear liquids only the next 2; then finally...
Definitely is a nasty disease (I'm having a horrible time now myself); best of luck to your Father!...
Thanks for the replies. Mercury28: thanks for the info. and offering to talk; may take you up on that one day. I'm still in a horrible flare and am going to see a new GI today that my colon-rectal...
I'm willing to try anything at this point. I will suggest this to my GI when I see him hopefully on Monday. I mentioned this and stronger meds like Remicade to the ER but they recommended I talk...
Well, I went to the ER last night and they gave me an IV with salt water, checked my blood, and also took a stool sample. My blood work came back good and I wasn't dehydrated (I do drink lots of...
Well, I had to call back my GI's office and the physician assistant said to go to the ER if I keep having to use the bathroom every 30 minutes. Said nothing about changing medications or seeing the...
Well, results are in and no infection. They tested for c-diff only. They are going over my chart and are going to call me back with where to go from here. I'm already on a pretty good dose of...
Stool sample submitted earlier this morning. They're going to test for c-diff, which from what I understand is an infection. I actually hope it is an infection. That way I can get it taken care of...
Ugh Just Ugh (that's how I've been feeling the last week): My GI's physician assistant advised me to give a stool sample and gave me a container. My GI said it's not necessary but I think I'm gonna...
Thanks suebear. WIthin the last 2 years I saw 2 colon-rectal surgeons; first one said he could remove just small portion of colon and re-attach; was really pushing me for surgery so I went to see...
On any UC med (Asacol, Lialda, Sulfasalazine) I have to drink at least 40ozs. of water with each dose or I get the horrible headache side effect you're talking about. I have more trips to the...
Thanks for the reply AmyWaffle. Have not discussed Imuran and no rectal meds ever. I used to only take Prednisone 3-4 times a year for around a week when I had a flare. I would take 30mg first day,...
I have Ulcerative Colitis for 10 years now. Been on some different meds (Asacol, Lialda, Sulfasalazine, Prednisone). 3-4 months ago I had a flare up and my doctor put me on 20mg prednisone along with...
Well, here I am 5 days later after stopping the use of the 10% Benzoyl Peroxide wash. I have to say my symptoms have improved a little already. My stools went from being soft and not fully formed to...
I have skin problems too. I have what to me and my dermatolgist described as eczema on my face. I treat that by rubbing hydrocortisone 1% on my face twice a week (2 days in a row and then not again...
I've been using a 10% Benzoyl Peroxide wash. I'm definitely stopping and I also asked my Brother (who has a normal intestinal system/no issues) who used to use Benzoyl Peroxide cream or gel and he...
My UC has been worse the last year where the Lialda has been just keeping my UC at bay rather than completely under control. I thought it was just because my colon just was still badly inflamed and I...
I was first diagnosed in 1999-2000 (I was 19 at the time) when one day out of the blue I had to keep going to the bathroom repeatedly (several times) at work and the last few times it was nothing but...
thatfield: I'm the same way, I try to take less lialda (2 pills a day) and my symptoms increase. My UC started in 2000. Since then I've been under the care of now my third doctor. None of them ever...
This has been bugging me for a while now and I feel like venting; what better place besides the doctor? I am seeing my Doctor for a colonoscopy in a month or so. First off, I have UC in a fairly...
I had sharp pain on my right side one time and it turned out I was constipated. I took some laxatives and went and felt better immediately. So it could be constipation especially if you've been on...
I notice this as well. It literally "stinks". I'm also on Asacol and it's possible that it contributes? I'm not certain but I can't remember the smell being as bad as now (on Asacol). Really though,...
Old Hat: actually, that's exactly what I see him as - "alarmist creep". I was saying things like he's jumping the gun and too drastic but alarmist creep probably suits better. I'm definitely gonna...
I'm 28 years old; have Ulcerative Colitis since 1998-99. I just had a colonoscopy done last month and my doctor said I have small lumps in my colon that to him look troublesome. I never had these...