Wow, Sherry-that is crazy. And very good to know!! I will stick with the liquid prep. Seems there has been enough improvement on them, and truthfully, it isn't something I have to endure frequently....
I'm on remicade and have been for more than 2.5 years now. Before that I was on humira. Remicade has so far worked better for me in terms of length of time, but both worked well for me. Like Red, I...
Thanks again to all for the responses!! Quick update-I didn't mix the prep with anything, but did chase it with apple juice. That helped a TON. I drank the prep with a straw so it hit as few taste...
lol-Jello shots would be a lot more fun-as would adult beverages! Thanks everyone! I never drink apple juice, so I might try that. It won't matter if I can never drink it again. Since he prescribed...
I want to call and ask why I can't take the pills. Maybe I will do that. But yeah-I can't imagine ANYTHING making this crap taste any better, lol. And I would probably never touch those drinks again...
I always mixed mine with almond milk (I would have used regular milk, but dairy doesn't agree with me), and I didn't think it was bad. Chocolate almond milk is even better!...
Hi all-I apologize for being MIA for months on end. I'm going to attempt to catch up, meet some new faces and see how everyone is doing. I am having a long overdue colonoscopy on Monday. Prescribed...
Congrats on the baby!! But I'm so sorry about the flare. I have flares like that, and I am on Remicade, previously on humira. After my last bad flare, which was caused by the humira failing after...
I'm another one who had terrible joint pain because of pred tapers. The pred taper does it to me every time. Horrible!! It does go away for me, but not immediately. It is a known side effect....
Thank you oldhat!! Yes, lol, we have a sea of pink in this house!! Some of these outfits have gotten a loooooot of wear!! My poor husband...he is so screwed, lol. Glad to see you are currently doing...
This is very interesting! And yes, ITA notsosicklygirl!! I definitely feel that way. All of these potential advancements and things on the horizon, but such limited options for us in this moment....
I have been on Remicade for 2 years and 4 months now. My first few infusions, I had to take benedryl, so I couldn't drive myself, and I was tired after. Since then, I haven't had issues with the...
Oh-and my gi said the most important thing to him was that I was already in remission when we TTC. He said that the rule of thirds tends to apply in this case as well, that 1/3 of people will get...
I can't help with the ob, but had a baby in august, my first since UC, and it went really well for me. I was in remission, and just felt even better during pregnancy. Post baby (my third c/s), I...
For me, stress is my biggest trigger. Only because antibiotics are something I avoid, as they were what triggers my UC in the first place. But yes, stress is the one key factor I have to control in...
I'm going to be the odd man out and say I would stay on it. Considering the odds, and the fact that my docs have told me that going off and on generally doesn't work, I wouldn't want to stop. Maybe I...
Oh-looks like my sig is definitely out of date. Had a third girl on 8/22/11. She's a pistol and completely awesome. And teething so currently awake!...
Oops-dang iPad. EleventySeven-I had the denial too. I'm sure we all did to a certain extent. And you need to take your own time in coming to terms with this, but please get all of the information you...
I'm so glad to come here and see this thread! I have been MIA for a long while now, and it is nice to catch up with how people are doing and see some of the new members. I'm sure my sig needs...
Gina-I don't have a lot of time tonight (my husband has been out of town since Thursday and both my kids have been sick with a stomach bug and I am 7 months pregnant-needless to say, I am heading to...
Well, I would say no because I don't really deny myself anything that works. We budget for it, and my meds and supplements are a couple hundred a month. But if I had all of the money in the world,...
I have struggled with this myself. Unfortunately, the disease is such that sometimes, you just have no choice. My bad flares get bad so quickly and I lose so much blood that within a couple of weeks...
bellydonna, I COMPLETELY agree!!!! Pred helps, but has never put me even close to remission. That is one of the reasons I have vowed to be on death's door before I take it again. The side effects are...
Posty-not everyone has the weight gain, as well as the other side effects, and when they start is highly individual as well. I started out feeling great in terms of my energy level (the bleeding...
Gina, I feel for you so much. It sounds like we have had similar experiences on pred. Here is what I can remember of my side effects from pred, both on the full dose and as I tapered and got off of...
Remicade did not work instantly for me-it took some time. It probably wasn't until my 4th or 5th infusion that I would have classified myself as being in remission. So definitely give it some time....
Do you mean Biaxin? That is a BAD one for me. I CAN NOT take it. I had a CNP prescribe it for me once after I told her I had UC and had issues with antibiotics, and within the first few doses, my UC...
I've never used sparkpeople, but have heard good things about that site. When I have been on steroids, I have found that the weight is very stubborn to get back off. And I too gained a LOT. HUGE moon...
Why did he ask you to stop? Were your symptoms gone? Or was there something else going on that caused him to think it wasn't effective? Was he suggested an alternate treatment? Strange to tell you to...
DavisD, I think this is a good reminder for us all. When I was diagnosed, it was mild and limited to the sigmoid colon. I took my meds (only Colazal at that point) and went into remission almost...
I was diagnosed later in life than your boyfriend, was already married and had 2 kids. But my doctors have told me that my life expectancy is no shorter as a result of this disease. I am also on...
Oh yes-Beth reminded me that I was very tired after my first few Remicade infusions. Part of that was the fact that they gave me Benedryl for the first few, but even after that, I was tired. But now...
I fold. So I guess I am bucking gender roles here!!...
I will admit that I am not here as often when I am remission. I try to pop in and offer support or info where I can, but once I am in remission, I try to keep a really positive head space, and...
I have not had a chance to read all of the responses, but I am on Remicade, and I couldn't be happier. I felt the same on Humira, which carries the same basic risk. I would hardly call the treatment...
I am definitely a bleeder. Sure, I have other signs that things are going downhill, but usually things for me go downhill so fast that the bleeding hits quick. Once I start bleeding, I bleed pretty...
Everyone is different, but Levaquin should be ok. It is one of the few on my approved list (not at the moment since I am pg, but normally), and is in the family of drugs that generally does not upset...
I was a social smoker in college and beyond, pretty much when we drank, we smoked. Outside of drinking, I never smoke. I quit of course when I was pregnant both times prior. But UC didn't show as a...
I can understand your point of view. I am in a very good place now, but have been in a good remission for over a year, so it is easier for me to feel that way. *for me*, I knew in my heart, I would...
I have left sided UC, but I am pregnant (my first UC baby-I was diagnosed with UC after my second child was born), and am very excited about it. I am not sure what specific questions you have...
I will give you my experiences with both Humira and Remicade, since they are similar medications. Humira (2008-2010)-I was hospitalized in early April of 2008, and my GI, who was new to me at the...
I have been on it for years without any ill effects. My father is the one who suggested I start on it when I was approved to be in the Humira trial in 2008. He is a recovered alcoholic and also has...
This is great news!!! I have exhausted Humira myself, but I am glad to know it has gotten approval finally, and glad I know I was a part of that. (I was on it through a double blind study followed by...
Yes, those are rectal meds, and if you are worried you might be having issues again, a rectal med would be a good addition. I don't do well with steroid rectals, but some people do. I have done...
I am late on this, but I have been on remicade for over a year now and am doing very well. It got me into remission after I would say 4ish infusions. I did have to have benedryl for the first few I...
I second the Canasa. I have used that with excellent results in the past for rectal inflammation. I'm sorry-it really is a roller coaster, and not a pleasant ride. What time of day did you exercise?...
I don't think you can go based on one day alone, because I too have days like that when I will go more than normal, but I am stable and doing well for now. That said, my GI always has me taper from...
Yay for a new baby!!! Congratulations to you and your family on your sweet Penelope!!! I hope you are feeling well and getting some rest!!...
I too am expecting, and though not my first child, this is my first since my UC diagnosis. I am sad to hear your doc expects you to flare!!! That is really a shame. That said, there is definitely the...
That is fabulous!! I am glad it worked so quickly for you, and I hope it works for a long, long time to come!!! (Humira worked like that for me too-it was nothing short of miraculous!) And add me to...