I didn't have any luck with TCM. I am Chinese myself, living in Canada. I tried TCM for my UC with 2 different licensed TCM practitioners. Neither of them could help me with my disease. I eventually...
Next time try wearing your flange without putting the extra barrier ring. Sometimes, an extra ring makes the flange turn away from the skin. I had the most terrible leak months ago when I put on an...
I will have cramping in my stomach right away if I drink more than 1/4 glass of milk. It happens every time after I have had my ileostomy. But the cramping goes away really fast, usually in 30...
I am also sensitive to the tape collars of both Hollister and Convatec flanges. I phoned Convatec and Hollister and was given some samples of flanges without the tape collars. My skin is more happy...
I can't see the pictures. But my skin is also sensitive to the edge of the bags. So I wear a baby's bib between the bag and my body. It's the perfect shape and size for the bag to stay away from my...
Sorry to hear the ordeals of you guys. I hope they won't happen again. I think I am one of the lucky ones who has his/her anus sewn up during the surgery. I had no problem with my bottom after the...
My skin is sensitive to the Hollister wafer. It makes my skin extremely itchy, red and even bleed. My ET nurse switched me to Convatec tapeless wafer and I feel much better now. My skin is also...
Good luck to you, David. I am a parent myself. I think I understand why your parents push you to another surgery. They want you to be 'normal' and look 'normal' soon. They also want to give you the...
All the best, Anthony. It seems that all of us who had surgery recently have started a new life and will be living happily hereafter. :turn:...
I started to have serious acne problem on my face and neck about 2 months post-surgery. (I was completely off Prednisone by then.) Family doctor and dermatologist put me on antibiotics and...
My skin is sensitive to both the paper tapes of Hollister and Convatec. And it doesn't like the edge of Coloplast's "plastic'-like flange cutting into it. I finally settled down with the tapeless...
I eat blueberries all the time without any problem. They make my output looser and black in colour, though....
Nice to hear from you, Christine! Get well soon....
Somebody here has suggested Tic Tac (the candy). I've tried and it works!...
Nice to know you are doing fine, Anthony. You are so brave. I don't have the courage and patience for another surgery so I opted for a permanent ileostomy, which I am very happy with. Good luck....
That's true. Recovery takes time. Having said I didn't feel pain at my bottom, I felt it very tiring to climb the stairs at home in the first few weeks and I needed a nap in the afternoon everyday....
The surgeon who removed my rectum and sewn up my anus must have done a spectacular job. I could sit up the next day after my surgery without any problem at my bottom. I ate my clear food breakfast at...
OHIO76, I have to thank you and summerstorm for the suggestion of keeping my mouth closed during my sleep previously. It really makes a huge difference....
I sleep 9-10 hours every night without having to get up to pee or empty my pouch. I had my surgery in late March and have a permanent ileostomy. In the first 2-3 weeks after surgery I couldn't sleep...
Nice to know! I wish her a speedy recovery....
I empty my pouch every time I pee, that's 6-7 times a day. Starting from last week, I sometimes rinse my pouch after I empty it. I fill a bottle with lukewarm tap water and pour it slowly into the...
Thank you, OHIO76! I took your advice and kept my mouth closed while I sleep since 2 weeks ago. It makes a great difference. I no longer wake up with a balloon! And I don't need anything else, no...
I had the same feeling of tightness in the first month. It was so bad that I had to bend my body forward a little bit when I walked. I asked my doctor if I should try to stretch myself and be...
I had my permanent ileostomy 7 weeks ago. I am now living a new life. However, I walked as slow as a snail in the first week after the surgery. I bent myself forward like a hunchback when I walked. I...
Christine, I had my permanent ileostomy for only 7 weeks. I'm quite sure some other people know more than I do. Having said that, I am happy if I can be of help to you. Please check your e-mail. I...
Christine, I learnt about the permanent ileostomy from my surgeon. I live in Canada. I saw the stoma (Enterostomal Therapy) nurse when I was in the hospital. Before the surgery, she marked the...
I can't agree more. I had my surgery 7 weeks ago. I stayed in a semi-private room in the hospital. My room-mate had her take-down surgery and she had numerous diarrheas everyday after the surgery....
Good luck to you, Christine. I am sure you will feel much better after your surgery. I had my surgery 6 weeks ago and am now living a new life. I am 51 years old and I opted for a permanent ileostmy...
Nice to hear from you Anthony. I had epi-dural anethesia and I had no pain at all in the first 24 hours after the surgery. I started to feel the pain when the epi-dural med was tapered off on the...
Thank you summerstorm and Meesh! I have an appointment to see my ET nurse tomorrow and I will ask her about my gas problem....
I was on Salofalk enema nightly when I was diagnosed with UP in June 2006. It's the only maintenance med I used. I had a remission for 1 year. Then my doctor said I could taper it to once in 2 days,...
Hi quincy, I was conscious after receiving the epidural anethesia but I fell asleep after the doctor put a large mask on my nose and mouth. It was 1:30 pm when I looked at the clock for the last time...
Good luck to you! You will feel great when you wake up from your surgery and realize that you don't have UC any more....
I forgot to add that I stopped taking pain-killers on the 23rd day after my surgery. I took one pill of Tylenol 3 and one pill of ordinary Tylenol four times a day when I was in the hospital. When I...
Thank you all for your encouragement! I decided to have permanent ileostomy because I didn't want to undergo another surgery (the take-down). To me, wearing an ileostomy pouch is much better than...
I felt really bad again by mid March with 10+ bloody diarrhea everyday. Cyclosporine and 6mp didn't help. My husband took me to ER on March 15 when I had 15 bloody diarrhea the previous day. I was...
Remicade and Humira are not covered by my Extended Medicare for the treatment of UC. (But they are covered for Crohn's. I live in Canada). I can't afford them for long term use. I am 51 years old and...
So I have finished my 3-month course of Cyclosporine but unfortunately I don't have any good news to post. I started to have symptoms like urgency and frequent loose BMs (8-10 times a day) after I...
I have been taking cyclosporine for 2 months and I'm feeling better and better. Ironically, my doctor is going to start me on 6MP after my 3-month course of Cyclosporine. Please see my thread...
I have been taking Prednisone orally/by I.V. injection on and off since last August. During my recent hospitalization I was given Fosamax (5mg/per day), Calcium and Vit D to prevent bone loss....
I had DVT on my left leg due to dehydration during a UC flare in February 2008. I went to ER and the doctor there put me on heparin shots for 5 days. After that, I took Warfarin (blood thinner)...
When the GI doctor in the hospital mentioned Cyclosporine to me for the first time he said I would receive it by I.V. But later he decided to let me take Cyclosporine capsules orally instead. I had...
Cyclosporin is an immunosuppressant I'm not sure if it's on the same order as 6MP. It's used to help treat patients with UC who do not respond to treatment with steroids. It is supposed to induce...
So I have been taking Cyclosporine for 4 weeks now and I'm feeling better and better. I had 4 solid BMs yesterday with just a little urgency. I'm now 98 pounds. I'm taking 20 mg Prednisone, will...
Quincy, I don't have any side effect from Cyclosporine. It seems that I can stop taking it right after 3 months. Christine, I live in Vancouver, B.C.,Canada, Old Hat, Thank you for letting me know. I...
I was hospitalized from Nov 22 to Dec 14. I was having 12 loose BMs per day and my weight dropped slowly from 100 to 88 pounds within 3 months. I felt weak and had no appetite. So I decided to pack a...
I notice that I can gain weight by resting rather by eating. I lost 5 pounds (down from 100) last July/August when I started to flare. Since then I was on Prednisone and I continued to lose weight...
"It' happened to me at home on my worst days. I just changed my diaper and cleaned myself. It happened once when I was going home in my car, just 3 minutes away. I had a chance to find out that the...
Did you take extra calcium supplement when you were on Pred? I took Pred for 3 months last year and am taking it again since August. On both occasions I was told by my doctor to take 3 tablets of...
Activia made my symptoms worse. I've tried it 3 times in the past 6 months and it made my diarrhea worse every time....