Thank you everyone! May you all find your happiness and peace through remission......
There's a lot of truth to this! My original diagnosis was UC with spondylosis overtones and thought to be an autoimmune disorder. I believe that once my flora was thoroughly cleared out, of good,...
Yes I was and they all came back negative. I know how weird this seems. I don't know if I'm "cured" or not, but my doctor calls it remission, and I'm ok with that. I'm just shocked that for over 19...
Yes, I agree. Very odd indeed. Thank you for your kind words......
I hope and pray that someday everyone on this forum will find a cure and peace from their maladies....
That's just it, I don't know how that is possible. And neither does the staff at BIDMC. All I know is I'm not sick anymore and maybe this dreaded disease is caused by some virus or something? I...
Thanks you so much! As far as antibiotics go, Flagyl was one but I don't remember the other and they were very high doses too. As far as I know, NO C diff either. Fish oil and vitamins are from BJ"s....
I will keep this short. In September 2010, after suffering for many years with this disease, I was admitted to Beth Israel Hospital in Boston, Ma. I had been bleeding for many months prior and pretty...
Count me in on the stress train. I've been working real hard with meditation, yoga and cbt and I will tell you it does help. My problem is that when I begin to feel good I go back to my old habits...
I just want to share with everyone my positive experience with BIDMC in Boston. After a major flare that lasted many months I knew I'd be heading to the emergency room soon and began a search for a...
I started Humira back in May and developed the classic butterfly face rash and noticed it would disappear 10 days after the shot. Of course it reappeared 4 days later when I shot the next dose. It...
Good Luck! It looks like I won't be too much longer for my surgery as well. Looking forward to your updates......
I'm experiencing the same issues and my PC wrote me Ativan. I haven't tried it yet but he says it will help quickly in the short term....
Summerstorm & Suebear - If it wasn't for your inspirational positive posts I'd be even more terrified than I am. I've been a member here for a while now and your previous posts & threads have always...
er...ah...why?...
Thanks, it's comforting to know I'm not alone. I went on the Humira in May and it was working pretty good with the Imuran that I had been on for years. But then my liver functions got out of whack...
Well, after seven years and many medications, it looks like surgery is on the horizon. I remember when I was first diagnosed and my GI told me about the different meds and said that only a small...
I only quit once back in 1998 after smoking for 15 years. My first flare came around 2 years later. I'm still not smoking and I still have UC and actively in a flare. I'm actually considering going...
I'm doing the same exact thing as you are. I'm going to Beth Israel in Boston for a second opinion and perhaps a different perspective too. They're are a teaching/research hospital as well. My...
Yes avocados and cantaloupe ruin me and I don't know why?...
Hello, Well like Remicade, Humira has raised my BP and my GI tells me that means my body is rejecting it. I've also got drug induced Lupus. Anyway she offered me a trial slot of the above mentioned...
Thanks for the tips and advice. I feel very healthy overall and way better than when I was eating grains, dairy & sugar....
Ok, I implemented a no grain, no dairy, no sugar & no caffeine diet which is working pretty well for me. I started this about 3 months ago when I was supporting 270 pounds on a 6 foot frame. I'm now...
If your GI won't prescribe Bentyl, dump them! They must be a sadist as everyone I've talked to (including me), can only get relief with Bentyl. For me it almost stops a morning flare in a flash....
Hmmm...I seem to recall reading some years ago that a scientist stumbled onto a coating, that when applied to teeth, rendered the patient cavity free. Rumor has it that Dental lobbyist were on the...
We have something called Patient Gateway, a website where I can access all my blood work, result letters etc. But my GI will call me too....
Hello, I'm currently on Humira and my liver test results are not good due to me being on Imuran too. Anyway my GI made me stop the Imuran and well lo and behold, a flare started first thing this...
Thanks Eva Lou & Suebear, I agree that acceptance is a huge part of this disease but I can't help wanting to be completely better again in complete remission. Anyway it's always makes me feel good...
Anyone have this issue? It seems that Humira is working as I no longer have blood or mucous and am usually formed. But I have seemed to develop another set of symptoms on some days. Stomach ache, low...
Hello, I really needed to see this thread as it reminds me that I do have a chronic illness and sometimes it's all I can do is muddle through my day. I feel like I should be so more productive and...
Go to www.breakingtheviciouscycle.info/ for a list of all the illegal/legal foods......
I forgot to mention that I'm now exempt from all future jury duties as I'm also permanently disabled thanks to the complications of this crazy illness......
I just asked my Doc for a note and that was that! Also she mentioned in the note, that beside the UC/Crohn's, she felt it unsafe for me to be in a small room with so many people, as I'm on a number...
Sure...http://www.2infuse.com/2infuse/...
Hi Kweeks, Yes it was working great but I seem to suffer from "white coat syndrome" but my GI says the Remi was raising my bp too....
Pred. dependant...how I feel for you. Thanks for your input!...
Hi, I have to quit Remi and switch to Humira and it will be approx. 8 weeks from my last 10mg dose of Remi to my first loading doses of Humira. Why do I need a loading dose of Humira if I already did...
Well, I just left my PC doctor and, although my BP was a little high, it was nothing compared to the infusion situation. My GI is trying to get me approved for Humira so I can take it at home. This...
Thanks for sharing that, I don't feel so bad now. But I am mortified...I actually walked out on my infusion today! How embarrassing......
My first four Remicade infusions went off without a hitch but the fifth one I hadn't slept well the night before, and was very anxious and I got a high blood pressure reading. The readings kept going...
Never mind...I found it!...
Hi, Someone on this forum posted a list of all the infusion centers in every state once and I need the link. Please post it for me, thanks!...
I thought I was finally off and got down to 2.5 mg a day for 2 weeks and then none. On the third day body pain and a little shaky and itching as well? Oh, I also may be losing my mind! So I went back...
I come from a family that seemed to coin the phrase "bum stomach". My Father still to this day says, "what did you eat", thinking that it must be my diet. I've explained it a couple a hundred times...
I'm not sure but I think most over the counter yogurts had sugar rendering them illegal for SCD. But I also remember that one of the probiotic cultures in over the counter yogurts caused an issue too....
I feel for you man! I was there as well, not too long ago, and finally opted for Remicade. My only regret? I waited 5 long years before starting it, due to horror stories. Give it a shot. If it...
Yeah I agree. Dairy for sure. wheat probably. But I think there may be other things. Also what about certain combination's of things that by themselves don't pose a threat but together?...
I think mine is pretty much a lock for gluten and dairy, but fructose? How did you know you had it?...
You know I tried the SCD diet prior to Remicade but it didn't help because my Colitis was still active, meaning, I couldn't tell where the Colitis ended and the Gluten/Dairy issue began. But now that...