When Remicade failed for me, my GI sent me straight to Entyvio ( Remi failed after 2 weeks), she did not thing humira was worth a shot in my case. I've been on Entyvio since May, and having some...
As my flare goes from mild to moderate, looking to once again try whatever. Read about the ibd/aid diet and it looks promising- wondering if anyone has had luck on it? I'm most likely starting either...
quincy: symptoms: 3-4 bms a day, urgent. been on uceris a month. without uceris i have blood. no blood since uceris i have used canasa off and on though out the years, do you think i should add it to...
hell yes! there is hope for us, this disease is very weird. Ive had this since 1991 , here is some history of my remissions: 1991: 3 month flare up and diagnosis, Then 10 year med free crappy diet...
kazbern: yes I did psyllium for well over a year, no help with the blood or urgency. I also went gluten free for 3 months, no change whatsoever! i did scd for 2 weeks (as long as i could hack it!) no...
blksteeda: yes ive tried the canasa, they have helped me before but not this time around.... plus I don't think the go as far up as my inflammation....which reaches to the sigmoid I have done ALL...
cant get rid of the urgency! ok quick backstory: im in the same flare since 2008. its mild now but wont go away. current meds: lialda, Imuran, uceris and rowasa a couple times a week. my bleeding...
i am 125 pounds and was just bumped from 100 to 150. how are you feeling?...
I've often had the same thoughts. I'm at a point (3-5 formed bms a day,mild urgency, bleeding) that yeah I could probably live with. Ive learned to adapt. I just am in and out of the bathroom in the...
sorry to hear that indycat.... if uceris fails I may try remicade next...looks like you are about to try simpoini, so good luck!!!! let us all know how it goes. My thing right now is the urgency, I...
symptoms before: mild flare- blood, urgency, 3-5 bms daysymptoms after 3 weeks of uceris: blood gone, urgency continues, 1-3 bms a day I have been flaring since 2008 and cant get rid of it! ugh. I...
when I first started Imuran I had stomach pains and felt generally icky but not bad enough to give up. it went away in a few weeks....
i just started uceris. it sees to be making a dent in my 5 year flare......can you ask your dr about trying it?...
ive been on azathioprine for a little over a year.... I went on it with prednisone as a "bridge" and then tapered the pred. I haven't had any bad side effects from the aza, ive had some improvement...
In 2012 I went gluten free for 3 months. I am also lactose intolerant so I was used to no dairy. going gluten free did not do anything at all to help my UC....
ON3Yahoo: glad you are feeling better :) and while I do not believe food casues or cures flares for alot of people with UC, I do believe that us UC'ers need to figure out what food bothers us and...
yes, absolutely! I had the exact same problem with centrum. in fact if you do a google search for centrum and stomach pains you will see we are not the only ones. I switched to Rainbow Light Women's...
i've done homemade vit e oil, and homemade kefir grain enemas. did about a week of each. boiled water, and used old rowasa bottles. i have also done hydrocort enemas and foam, rowasa and canasa. vit...
stealth guardian: in answer to your question how did i know i was in remission? well my flareup on max dose lialda and daily roawas was still about 6 bms extreme urgency and blood and mucus on...
Reason: I was in a 4 year long flare up and had tried everything else (pred, rectals, entocourt, foams, diet mod, gluten free, scd, homemade kefir, 4 kinds of probiotics, all kinds of alt stuff...
i was in a flareup for 4 1/2 years before i got close to remission. my biggest concern was that in a constant state of inflammation i was at risk for colon ca. i tried TONS of things, alternative...
i tried something similiar to that, i would do the rowasa at night and then an hour before i got up i would either do another rowasa or a hydrocort. it did not help, in fact i found it was so much...
mornings for me too. usually once i've been up about an hour or so. during weekdays, at work i can go about 3-5 times between 8am-11am ish. and I am for all intents and purposes in about 98%...
garylouisville: what are your current symptoms?...
kazbern: i made and drank homemade kefir (bazillions of probiotics) for about 3 months with no change at all in my uc symptoms. when i stopped the homemade kefir, i noticed a slight ever so slight...
stereo: i used vsl3ds for 9 months with no improvement in my uc. ive used a bunch of other probiotics, but if you are looking for sacch boulardi: jarrows brand sach boulardi, you can find at whole...
garylouisville: there were so many posters on this board who seemed to get relief by going gf, that I figured it was worth a shot to try. I went gluten free for 3 months and had no change in my uc...
i had hpylori back in 2001. severe stomach pain would have me doubled over and i threw up a few times like out of nowhere. it was simple to test for and after the course of treatment which was like...
babe in thewoods: pages 57 and 58 can not be shown in the preview of the book you sent the link for......
Wow, thanks so much so far to everyone who responded: i ordered rainbow light mult, waiting for it to arrive, i am on no multi right now... hopefully this will help. babe: i am lactose intolerant so...
killcolitis: i get like this even if i have a breakfast of eggs and turkey bacon.... whats your paleo breakfast, lunch and snack recomendations? its only been the past few months thats its been...
i have a history of hypoglycemia. if i eat something sugary in the am i can have an attack. so i always eat frequently and its been pretty well controlled in the past. recently, no matter what i eat...
thanks, they look good, going to order, there are a few different kinds, which one are you using? ...
thereare miricles, are these still working for you? centrum gives me stomach pains, currently on no multivitamin, thinking of trying these....what does food based mean? I know my gi is always saying...
chiming in about the gallbladder issues: In june of 2012 (about 3 weeks after starting imuran and pred, still not sure if that has any signifigance) i had an attack of extreme unrelenting stomach...
agree with garylouisville, well said..... i had a 10 year remission with NO meds, or diet changes. i had a 4 year flare up where i tried differnt meds and made huge healthy diet changes with no...
i have a history of pancolitis but in patches throughout my colon. i used lialda (i think this is similiar to mezavant, if someone can chime in) which cleared the top part of my colon and i...
sounds like you are in remission, and being maintained on meds, which is not a bad place to be..... enjoy it!...
i found this article: http://crohnsandibsbreakthrough.com/blog/humira-vs-natural-tnf-blockers/ i myself have tried boswelia, bromelain, tumeric/ curcumin, lglutamine, vsl#3, vit d, and a few others i...
i have used budesonide (entocourt) orally for a few months and it did not help at all. i have pancolitis but itskips throughout my colon so my gi thought it might help me almost a year ago i was in a...
good luck soy and stereo, the less sugar you eat the less you will crave it....
i dont advocate that anyone do this, but i didnt take any meds or modify my diet or lifestyle in anyway while in remission from 1991-2001. ive had uc since 1991, but have only had 4 flares: 1991,...
cmj96: you are the exact age of my son, who does not have uc but had delayed puberty/growth. he has been seeing a pediatric endicrinologist for a few years now. there are some tests your dr can order...
define sugar free.... does that include natural fruit sugars???...
ok, probably phrased that wrong. If UC is an auto immune disorder, then our immune response kicks in and attacks our own body/colon, correct? so then for the flare ups to stop the immune response has...
i've been on it over 6 months, 100 mg, i have no side effects, and I am pretty much in remission now.....also, despite working in a healthcare facility and being exposed to alot, i have not come down...
i am sitting here just nodding my head... yup, can completely relate. i had a 10 year remission in which i ate whatever, lots of junk food processed food, made no diet changes and took no meds....
for me that would be too much liquid all at once, if anything maybe a half and half mix? i never tried what you are suggesting but the following are some things i have tried and results : rowasa at...
daughter: have you had an endoscopy? in june i was hospitalized with severe upper quadrant pain, severe unrelenting constant nausea and vomiting. everyone at the er kept saying oh its probably just a...
soystud: anytime a person jumps on here and says they know the one and only way to get rid of UC and that there is nothing to debate , well, they should expect to be challenged. the only thing...