Hi everyone, I used to be an avid member of this board and it has truthfully saved my life. I have spent nearly 3 years with my arse sewed to the toilet wondering how the hell I would make it the...
I went to Mt. Sinai which is ranked #5. Dr. Chin, who performed both the Jpouch surgery and the takedown, did a stellar job. Like Christine said above, my GI also wanted to keep me on biologics which...
I used to be on this forum and was very happy to see those that had surgery come back and share their experiences. You are dwelling on numbers too much. Here are some interesting figures that you...
Hey, duece1024. Love the nickname. Trust me, I dropped many of those in my pants. Reading your post brought back all of the memories I had when I started out with this. You did a good thing by...
(1) Visit the Ostomy Section on this site def as mentioned above (2) Visit jpouch.org I was in your boat. I didn't last 5 years with UC. I was only able to last for 1 year. Went through all the meds...
prior to my jpouch surgery I would go into places like dunkin donuts in NYC. Half the times I had to show my firefighter badge because they would never let me use it. I would be surprised if any of...
My j-pouch has given me my life back. I had pancolitis for over two years and went through the normal myriad of medications of which all didn't work. At that time, wasn't able to do the duties of a...
I used the Aetna EPO and nearly everything was covered. The EPO is in-network only, correct? Just make sure the surgeon that you are going to uses it. I thought it was a great plan because you didn't...
I went through the two steps and both of them I didn't want anyone at the hospital. I am a guy and in no way did I want my mom there because she worries way too much if something happened (she is a...
congrats and .... well, congrats on the bag not ruining everything! Did you hear anything about the takedown and finances?...
I have never had it, but this could sound like a slight blockage. I would monitor it closely. Many here say that Cranberry or Grape Juice will help out sometimes. If it is hurting a lot and your...
I am down .... or up for Michigan ;)...
I will throw out Weekend of July 16, 2011, New Orleans....
I had the same issue, Dan. I was actually on immodium and something called lomitil maybe? It really is dependant on what you eat. When I went out drinking with my ostomy, I might as well just poured...
actually a cruise would be perfect. This is something to keep in mind. The entire ship filled with IBD folks ... they won't be hanging barf bags on the banisters, there will be diapers! I can say...
haha, or we could meet up at during Oktoberbag. In all honesty, we should try to meet sometime next year....
We can play pin the bag on the ostomate! ;)...
congrats, and they don't have to know anything unless it would be an issue with you performing your job....
Collicat ... I am already packed! holla! ;) I am def. down with New Orleans! I have always wanted to meet up with the fireman down there....
thank you, because most of the times I will see the pills....
man, did they make up the name sulfameth/trimethoprm? ;) That really sucks that you are going through this. I guarantee you there is light at the end of the tunnel. Stay well, Christine! I am rooting...
do most people with jpouches and ostomies take these vitamins? I have a heard a lot of good things about them and I actually bought the ones that are loaded with iron. Do they absorb better? They...
I know you and others don't forget ... hope you all have a great weekend!...
I can't believe it has been 9 years already. I still remember ascending the subway in the city and hearing a consistent and constant barrage of emergency vehicles speedily traveling downtown. It was...
haha...
I just packed the car ... just need the directions ;)...
yes, it does happen. like sue said, see the surgeon. wishing you the best....
as said above, the site jpouch.org is probably the best place for it. It is probably a personal preference if you are able to have a j-pouch over an ostomy. I currently have a functioning j-pouch and...
lol, I love gawumki's in a blanket ;) My entire heritage is Italian. I owe my stunningly good looks, fantastic cooking, and excessive body hair to it ;) In all seriousness ... it would be awesome if...
everyone should come to my apartment. I will serve cupcakes and pigs in a blanket. I know how to treat my guests! ;)...
I would go for it. You will prolly not be used to the sugar and may not like it as much, but I wouldn't hold back on it at all. Just treat yourself to it once a week or something....
I am just wondering if anyone has ever setup something where all you wonderful folks meet up at one place. I know, obviously, it is hard because of locations, but it would be insanely awesome to meet...
it should get better with time and, I know for me, it depends on what you eat. There were times I thought I shat out a rose garden and then days where I just dropped an entire landfill into the...
funny you wrote about this christine, I am having very bad attacks of it today. I think i parted the seas in the toilet when I had to go number 2....
Where did you have your surgery done at? Shop Rite? ;) just kidding!!! I am sorry you went through all of this. I know I had my fair share of complaints and I am sure there are plenty of folks here...
great .... and I am getting that rippling effect as we speak right now. I probably shouldn't have eaten that gallon of icecream and box of yodels....
I have a jpouch and I feel the rippling effect as well....
i completely agre with anwsers4me2. Sorry to hear that you are going through all of this, Christine....
mmmmm ... hydrocodone ;) j/k .... I hope everything works out tomorrow!...
I would be broke if they had to laser off the foliage on my chest ;)...
this is the very reason why I love you guys .... you are always so positive and grateful for everything....
haha, I like "gobbledygook" although topiary is quite schnazzzzy!...
umm, trust me, when I had my ileostomy I gained a god-awful amount of weight back. You are still going through the adjustment period and will be for a while. Your body has to adapt. Just introduce...
lol, trust me ... i wasn't laughing at the pictures. In fact all the ladies on that page are quite hot-a-licious! It is just good to have a place where people understand you .. great people that is....
I just did now ... wow, it is funny putting the names to the faces....
My surgeon has cleared me. This means, in two weeks pending my physical, I can play on the big trucks again. This is quite emotional because it has been over 3 years since I fought a fire and just...
wow, now that is innovative!...
agreed, I think you did it right. I am sure good things will be presenting themselves soon....
I am of Italian descent and bless my parents for giving me hair everywhere but on my head. I actually got away w/o shaving because of the timeframe until my takedown. Prolly a good thing, I would...
Well, if they kept your anus and (rectum ?) then I would be almost certain that mucous could form down there giving you the sensation that you have to go. This is pretty much what happens to a lot of...