Hi All, I have had UC for 10 years and have been on moderate to high doeses of mesalamine the whole time... I'm now sadly transitioniong to Humira... only been on it two weeks. For the past two years...
supa... by 3 month suppy, how many packets a day do you use? Is a 3 month supply 90 packets or what? thanks, emma...
So... as you all warned me, I did have problems with the VSL 3 DS script at the pharmacy, even though my Dr. prescribed 6, 20 packet boxes. My insurance copay for 1 box is $30, but when they fixed it...
Thanks so much Heidi... its so helpful to hear what has worked for you. I added in Ultimate Flora Critical Care and I think its helped, but its only been 2 days. I also had more fruit than normal...
Thanks Heidi... that's super helpful. Are you able to have any cheese? I haven't tried yet... just wondering. I think I'll do the Rowasa and VSL and see how that works. I think I'll add some more...
well... i actually feel fine as far as #2 goes, its mostly #1 i'm concerned about. i'll just keep trucking along where i'm at and see what time tells... i do think i'm doing better than before, less...
i'll pay attention to the itching and nut consumption... i am due to get my lab liver tests done again soon, but so far i've been fine on this dose. i do want to cut down once i'm under control. i'm...
thanks for the advice... i'm still taking a lot of asacol (15 pills per day) and i'm going to start the mesalamine enemas and VSL next week if i can' get my doc to prescribe (i have an appointment in...
i wonder if i would be doing even better if i had tolerated the yogurt. i'm taking 9 billion of acidophilous a day but know that is nothing compared to the type of probiotic you get with the yogurt....
I checked it out from the library......
so, you say that you only have one almond flour muffin a day... what happened when you had more?? when did your bleeding go away? what are you mostly eating? I'm just curious b/c i feel like i'm...
I'm on day 34 of the SCD diet... so this question is for those of you with experience with this type of thing. I've had some good results with some setbacks as well, I've had 2 eight day periods with...
Does anyone know the generic name for Rowasa? I'm gonna get my GI to prescribe it but my insurance will pay for most of the generic but not the name brand... does is work as well??...
wow, cool. so do you just get it from the pharmacy then?...
I didn't know insurance would cover a probiotic... I need to check into that. Was there anything special you had to do to get that to go through?? Did a DR. have to prescribe it??...
hey emmadog... i'm on day 24 and have seen some definite improvement so far... not an overnight miracle, but i am definetly hopeful from the results i've seen. i say, go for it, you have nothing to...
cool... so sweet n low is saccharin, interesting. does it have any illegal additives, or is it 100% legal? just wanting to make sure:) i've looked at a lot of stores and all the low sodium bacon has...
cool... that's helpful. a couple questions did you find sugarfree bacon? if so, what brand, and where? also, i bought some saccharin (reese's brand) but it has modified cellulose gum and that's an...
thanks imagardner... i'm doing a little better today... less blood, so i hope that trend continues:) I think the hardest thing for me is to know with all the variables what is causing the problem......
I agree with you quincy... the rules and what ifs and stress and fear is really getting to me... it just seems like there are too many variables... what do you mean the other side?? Like, you don't...
I'm on Day 15 of SCD and I'm having a little relapse in my progress, so I'm thinking of starting the antifungals... I remember mention of taking them at separate times a day to not hurt the...
Ok... I'll try not to freak out. I think I'll stay off the enema and cancel the nut products for a couple days and see what happens. It really could be nothing I guess. I haven't gone since this...
Let me clarify... more specifically than a body ache, its a intense feeling of tenderness and sensitivity on my cheeks (face) arms, sides, legs, etc. This happens to me on prednisone... I tend to...
imagardner i know, i probably should have stayed on them, but i just lost my moon face a couple months ago in time for this wedding and i don't feel like looking like that again :( i guess i could...
I went on the cortenema for two days and at the end of the second day i could start to feel body aches really similar to when I'm on oral prednisone, but the oral usually takes a couple weeks to...
Ok, so I have another scenario I need to ask about. I'm on day 14 of the diet and haven't had any noticable blood since day 8 until this morning. I was so excited... now i'm comfused. It was just a...
Cool. Thanks for the recipe. Are you supposed to cook it at all? some of the sites call it blanched almond milk. Does that mean you boil it?...
thanks so much, i just bought some almond butter and want so bad to add it, but i was going to wait. if all it does is cause constipation then, i think i could use it, that's not been my issue, ever....
great... thanks. that makes sense:) so, if i had homemade applesauce and i'm not seeing problems, keep having it but keep fruits to a minimum... is that the main point? and how soon would be too soon...
so, hellokitty and imagardner... based on my response, what do you think i should start adding into my diet?? and imagardner, i didn't quite understand what you meant that you didn't add things for 5...
Thanks for the advice. I was just following the pecanbread website about the different stages of what to add. They said bananas, squash, pears and apples are the stage 1 things to add in first. see...
haha... thanks, that's so comforting!! I love this forum:) Docs know a lot, but they totally lack the experience that makes this forum amazing!!! Emma...
By day 11, I'm doing a little better... lets hope it stays that way!! One more question. How long after taking out a food that you felt like caused D, can you try adding it back in? I felt like after...
I know this is weird, but I was just wanting to know if anyone else experiences the same thing and if you know what it is. My toilet often has purplish speckles and spots on the underside of the...
So, just a quick question... Today is my 11th day on SCD and I think I'm seeing a little improvement. For the past 4 days my stool has not been overtly bloody. I might be in there, but I can't see...
Thanks! I'm going to keep going hard core for at least 6 weeks, then I'll really have to consider whether or not to go on Humira:( thanks all Emma...
I bled badly for a year straight without many other symptoms. To me the blood didn't bother me so I though I'd be fine, and then I ended up in the hospital severely anemic, blood transfusion, IV...
Ok... so how soon should I start probiotics and antifungals? I got my SCD legal probiotics in the mail today... should I start them slowly now, or wait? Also, when should I start antifungals?? I need...
Great. Thanks so much... and i just got my scd legal probiotics in the mail. should i start with a little now, or wait? Also, I was thinking of adding a cooked vegetable next, like squash b/c of less...
ok... thanks. i could tell the yogurt was too much for me now b/c of frequent D for several hours after eating it and i haven't had any of that for the banana or juice. should i add a vegetable like...
Thanks Imagardner. I think the reason the the blood is the main issue for me is b/c in the past I've lost so much blood that I had to get blood transfusions and became severly anemic from it....
I'm on day 6 of the SCD. I've been doing it very legalistically and following it to the best of my ability with no exceptions except chamomile tea the first 2 days, then i found out it was illegal....
Thanks for the info! What is a summary of the spinache and sunflower diet?...
Well, that is a lot of bifidus! Does it really seem to help you a lot? Do a lot of people of VSL#3 have success? Maybe I should stop my probiotic with Bifidus for a couple weeks and then add it back...
So after the intro (I'm on the Intro) you aren't supposed to just eat whatever is leagal but add things back in slowly so you can notice what triggers you? Emma...
So Rowasa is Mesalamine enema and then there are steriod enemas too?? I wonder why this forum is the first I hear of this and not from my GI :(...
What is Rowasa... everyone seems to know what it is. I've never heard of it or used it. I've used canasa suppositories but they never really seemed to help me. How are they different from steriod...
Ok. Well right now, I'm having only 3-4 stools a day, noticable blood every time, but not terrible yet and they are urgent and completely liquid(almost all the time). I just came out of a short...
Thanks so much! you're amazing. Well, yeah, I checked out VSL and that is way too expensive for me right now. I just hope i find something else without bifidus and pectin b/c the ones that have the...
Thanks so much! Just a few more questions for now... i hope you don't get tired of me :) where can you get VSL#3? also, even though diluted grape juice is allowed on the intro, is is something you...