Just wanted to say I'll have been on Entyvio one year on May 9th. I felt better by the third infusion and now most days I forget I even have UC. Can't say I've even had any side effects except...
I just had my fourth dose on Wednesday. I started feeling dizzy and nauseated that night. By Thursday night I was vomiting with severe leg pain. So bad that I just laid in bed and cried until I fell...
I also tried Remicade and it did nothing for me. Just had my second Entyvio infusion last week and I feel rather great. First time I can go out to eat and then go shopping right after without fear or...
I have Ankylosing Spondylitis, UC and Graves' disease. Lucky me I know. Aldo have psoriasis patches on scalp....
I am in the Facebook Entyvio Warriors group as well and currently waiting on insurance approval. I'm just in a mild flare and don't know if I should really start Entyvio for it yet. Feel like I...
at least 3 people I know on my Facebook are involved in selling Plexus products. It's a multi level marketing type thing. Can cure everything from the posts I read. They all cross post on each...
I am currently up to five pills a day of Sulphasalazine. I changed over to see if it helped the severe joint pain and swelling. It has not. I started slow though with one pill and worked my way up....
I used transdermal LDN. I think it's what got me out of a 3 year UC flare. I can't stay on the Metho and Pred combo. I have a bad kidney and had chronic infections. ThT combo worked but couldn't stay...
I wish I could post pics on here. My hands and fingers are unbelievable. It's not RA either. I also have Graves' disease. They seem to think the swelling and joints are connected with UC. I'm an...
I've tried double dose Remicade and double dose Humira. It was like taking nothing at all. Kazbern- I was actually on 60mg Prednisone for months with a taper. Felt amazing with zero joint pain. As...
I found out I had AS when I was 18. UC when I was 32. I developed severe pain and swelling in joints. Especially fingers, wrists elbows. My Rheumy just took me off Asacol HD and changed to...
My deductible is $4700... When I go to Walgreens to get my Asacol HD I need $2500 cash because my HSA is always depleted...just switched to Sulphasalazine which was only $60... I think it's killing...
I was all set to go try some Kefir but I just read people with weakened immune systems and taking certain meds like Prednisone should not use Kefir :( any problems from it?...
I started on Sulphasalazine and the same thing happened to me... Same symptoms when I took 4 pills a day. I stopped it for a week and it went away. I started back up in one pill a day with no...
I guess I will get it checked. I'm not losing any blood. I don't even have diarrhea. I thinking it's a combo hyper thyroid and 60 mg prednisone...
Giving Sulphasalazine one more try. Doctor has me starting on one pill a day then try two. So far so good. I've actually had very little pain the last few days!...
Mike that's exactly how I felt but with rapid heart!...
I have blood work done all the time. Had a chest X-ray not long ago when I tried Humira again.. I feel fine now that I stopped the Sulpha. No problems at all...had to be that....
Yes I was tested for RA and a few other things. I found out I had Ankylosing when I was like 20 so that's not helping. They seem to think it's UC related. I was on Methotrexate for a while and it was...
My GI symptoms seem to be ok.. I have severe crippling joint pain and swelling. My fingers are huge. Wrists, knees elbows feet. It's crazy. Getting ready to have RAI on thyroid for my Graves though....
I stopped it yesterday to test myself. Didn't notice it happening. The rheumy who put me in it will just say it's not from the drug. She always does. My GI agreed we would try it for the severe joint...
Been on Sulphasalazine for three weeks or so. I never had this before but notice shortness of breath and palpitations. Has anybody on this experienced it? Rapid heart?...
I can't describe the wrist,finger elbow pain. I have pictures of my fingers like sausages that don't bend... I've been off and on the Pred since October. Comes right back though when I'm done. I just...
I'm actually on Prednisone again right now to help. Once I come off it though the swelling and pain comes right back. I'm aware that Asacol is the same type of drug but it's not going to control my...
I just started Sulphasalizine over week ago after many years on Asacol... I've developed severe and debilitating joint pain they say is connected to my UC. How long before it really kicks in? My...
Lol omg I have that too!!! just isn't bothering me so I forgot I have it!!!...
I have Ankylosing Spondylitis too! I think three diseases is enough :( doctor didn't seem to think this was related from AS few months ago...
Wow Judy you have UC also! This all just started a few months ago so I figured it was from the Graves returning. I was wondering if it could be from the UC since I have no active symptoms it was just...
I have Graves. It just recently came back after stopping the Methimizol in June. I have had severe shoulder and wrist and thumb pain both hands. Knees are feeling too great either. Anybody else...
How bad was the surgery? I'd rather just get it and be done with it. I can't workout or lift weights and I'm going crazy. How long was recovery?...
Base of thumb. It is so bad on my right hand it makes me nauseated. I'm in tremendous pain. I looked up trigger thumb and that's definitely what I have. August 15 can't come soon enough. Hope an...
I really can't believe I'm reading this. I am in such terrible pain with my thumbs. The right hand is worse. It's exactly as you explained it. I call it IPhone thumb. I'm basically helpless right...
no I haven't had any issues. Is it on your arms where you apply it?...
maybe it was just luck then. I feel great and I am thankful....
I feel wonderful. Walking at least five miles a day and going to the gym several days a week. I spent three years in the house so I'm living it up now. I know it can all end at any given time. I was...
Just checking in. It's been so long I don't see an LDN thread any more! I am still feeling better than ever. Walking 5 miles a day and joined a gym. Taking advantage of every minute I have without...
I have nodule. They did the radioactive uptake test but no biopsy. Mine ended up being Graves' disease. Was on the verge of getting to radioactive iodine to kill the thyroid but was spared. Good luck...
I agree the stains are from the enema. I was shaking mine up and the lid flew off. The next day my white tile and baseboard molding were stained where I had missed cleaning it up. It was clearly...
Haven't been on here in so long but here I am checking in!! LDN does work! I'm living proof. Feeling fantastic!...
I have psoriasis too on my scalp and my ears... Only gets better when on the Prednisone. I hate it!!!...
Even in my worst flares I went to the beach. I would pop two immodium early in the morning. I wouldn't eat much while sitting on the beach just to be safe. I find that I feel my healthiest while...
I had been on the Humira before the LDN for a while. I used it weekly or no weekly I can't remember. It was more than most. It did nothing. I stopped bc I was pregnant at the time and never went back...
I was on Remicade and Humira at double the normal doses. They did nothing for me at all. Because of the risks I discontinued since I saw no improvent. I just stuck with the LDN because I had no side...
I believe it was the LDN. Everything failed me. I started that and slowly starting improving. Was flaring for three years before....
Thanks. The tubal was on May 25th. Incision is infected and not healing.. Other than that doing well. Actually at the beach right now trying to enjoy things. Hope u are all well also?!...
Hi! Just checking in.. It's been a while. Busy with my life while feeling great!!! Still on LDN and doing good. Total remission. I just recently had a tubal ligation and the incision isn't healing....
My OB said I wouldn't be given antibiotics....
I really don't know why he said it. I was just so sick for so long I guess he doesn't want to risk an upset. I feel great now though and for peace of mind I feel I should....
That's what I was getting. Laparoscopically done. My GI said don't do. I think I'm going to do it though for peace of mind. I can't take the pill and don't want to lose another baby at 42. I also now...
Just looking for input. I am currently in remission after 3 1/2 years of flaring. Two failed pregnancies later I am considering getting my tubes tied. My GI said he wouldn't for fear if disturbing...