No one else in my family had it. I have 4 biological children (oldest is almost 13) and so far, no issues with them...
My GIs never recommended diet changes. My surgeon suggested gluten free, as I had a very rough time after surgery and was really sick and nothing was helping. I did it for a little while then but I...
My first GI didn't talk about food at all or think that diet mattered, but the one thing he did say was to stay away from carrageenan (well after surgery when I was very sick)...
Same here--much prefer almond milk...
Thanks. I typed out a long reply and then my computer ate it. :D...
I don't buy many gluten free products, so it really isn't more expensive (actually less since I eat no junk food). I do get the gluten free tortillas. I eat brown rice fairly frequently I eat lots of...
I got my first symptoms (and very severe symptoms very quickly) within days of quitting smoking. I have CD, though, which I think is made worse with smoking...
I had horrible night sweats on Prednisone...
Yes, I was...
I didn't take any precautions when on it and didn't get seem to get sick any more often. I did get Hand, Foot, Mouth Disease when my son got it at school, though, and it's something most adults don't...
I used to say I didn't regret the surgery, even though I had a completely horrible recovery and ended up having CD instead of UC, but now that I've been dealing with infertility for 1.5 years, I...
Thanks, everyone :) I have been on sooo many job interviews and am always told I have a very high education level but lack the experience that many other applicants have. Due to lay-offs, there are a...
Yes, I had to have this done before my jpouch surgery. I did poorly on it and there was concern that I may not have the strength to have a successful jpouch but it was just bad due to how bad the CD...
Pouchitis is no fun but I always feel much better after only a day or so on antibiotics also...
The bad thing is if I don't find a job with benefits soon, I will have to stop seeing my GI and get off my meds. We qualified for state aid for health insurance this past year but will no longer...
No, nothing. I was fine one day and VERY sick the next. I thought I had food poisoning but it never went away...
Hi, guys! I have not been around here in a while. I just wanted to update everyone on how I'm doing. It's been just over 2 years since my first surgery, and I'm happy to say I am doing really well....
I had a very, very rough time after surgery and months in the hospital, but having the surgery and then finding out I have CD really hasn't been heart breaking for me. I am MUCH better off than I...
I have CD. I just continue to hang out here because I like it here better and was here before I found out it was CD...
I would never say anything in a job interview...
Supposedly everything in the inflammation patterns for me indicated UC (after several pathologists looked at multiple biopsies), but I found out it was CD after surgery...
I also had iritis when I was young--around 9. I was told it was pink eye in the ER but then it lasted a really long time. My mom never took me back to the doctor and it wasn't until a few years ago...
Well, I wasn't diagnosed for over a year due to no health insurance, but was majorly sick. However, prior to that, nope, not a single sign. I never had issues...
I'm still living with IBD, and even I say it beats the heck out of living with my colon. Even right after surgery, when I was going through the worst several months of my life, I still couldn't say...
I had the j-pouch surgery, had tremendous issues after surgery, then found out I had CD so I still have problems. I'm still happy I did it, though...
One good thing about not having a colon is I no longer need to down huge amounts of liquid for prep :D...
I never had any side effects with Entocort but I was only on it for about a month...
Even though it turns out I have CD and will probably always be on meds and had an absolutely miserable experience after my surgeries (and had extra surgeries and will maybe end up with more at some...
This is why I had surgery. I just couldn't stand not being able to go somewhere because of the bathroom situation. I was so bad it didn't matter if there was a bathroom, I only had maybe a minute to...
You are correct about the folic acid while on Imuran. I am trying to conceive and taking Imuran, and I actually wasn't going to take it because I didn't want to be TTC while on it but I had no other...
I did miscarry my first pregnancy at almost 6 weeks--I was on no meds at that time as I wasn't diagnosed yet even, but I was very sick. I do not believe the m/c had anything to do with CD though. I...
My GI at the time recommended I take it "sparingly" so I took it when I had school or my internship. It didn't actually help me though...
I always had vomiting--like couldn't even water down at times I have CD rather than UC though...
Good luck! I had surgery when my son was 8 months old...
I was on Prednisone for the last trimester of my pregnancy and everything was fine...
I've been taking it for about 6 weeks now--no side effects. I'm not in remission, but I never have been. No bleeding since taking it, though I was on Humira when I started it but stopped that so...
Pretty much every time I urinate, I also have a BM. If I'm using the muscles to urinate, it will also make me empty my pouch most of the time. Also, since surgery, my bladder cannot hold as much and...
I believe it can take longer than that to begin working...
I wish I was still nursing my son (he just turned 2). I am STILL sad about having to stop at 9 months because I was in the hospital for so long (months). If I have another child, I will continue for...
I breastfed while on both and also Remicade and had no supply issues...
You;ll be fine! You just have to remember to press the pen tight against your skin and hold for 10 seconds. You can't just put it in and release or the medicine will all come out and not go into you...
I never did Imuran or 6MP. I was tried on Remicade after Asacol and Prednisone didn't work. My doctor, like Sue said, told me other meds would take too long to work and I was too sick to let it go...
I'm doing Humira weekly right now (most people do every other week). You have to do 4 injections the first day you start, then 2 a week later, and then you do one injection every other week. I have...
No, I was only on it for a short time over a year ago. It never did anything for me...
Even if this had anything to do with birthday, this is about CD--not UC...
april here...
Thanks! I was in my last year of law school when I started getting sick. I went on to get my MSW before I became admitted so there was a delay in there...
I was admitted as an attorney earlier this month. My son will be 2 in less than 2 weeks! I have a new social work job that I really enjoy working with kids in foster care...
I did become pregnant the first month trying. I had a miscarriage but I had one before my son, too, and it's not at all related to the surgery. Since I did become pregnant, I feel pretty good about...
With my frequency, I would never be able to hide it from anyone. I don't go into details but all my friends know what I have. I'm sure they notice I use the bathroom a lot. It's much easier to...