Hi..I was in the same position July 13.. They actually said I would be in hospital for 10x days.. I was back to work within 10 x days.. Yeah it took it outta me but it really isn't too bad! I'm due...
Cheers!...
I hope everyone is keeping well!?.. I haven't been on here for quite a while, things are quiet in work so I though id drop an update. This time last year I was struggling, reading almost every post...
Hi MissShell, I was reading your post thinking that was me a few months ago. Honestly ..same position, unfortunately for me for years he only drug that was working was pred, I was on it for...
Hi, sorry can't help I gave up 13 months ago! (Smoked for 16years) Although it didn't make ANY impact on my UC either way ..not gonna preach about smoking, you no the hazards Good luck!...
Hi everyone, Question... I'm still new to the ostomy world & trying to find my way. I've just purchased a stealth belt. Being from the uk & getting it from the US it was expensive!..anyway.. The bag...
Thanks for the replies guys. There is no smell, and most times (not always) bright red blood. Puts my mind at rest until I see my surgeon. - Still haven't had my pathology results.. which I'm annoyed...
Hi Everyone, I got an ileostomy on 15th July, and still i have been passing blood and mucus via the rear end, I thought nothing would be passing via the rear end after surgery, my luck I now go pee,...
Hi guys thanks for reading.. Yeah my surgeon also suggested at least 6weeks off to get myself together before returning to work. But I run a small business and needed to keep things going. I'm still...
Oooops! - 15th July, not June.. and missed the part that I love most about life after surgery - No drugs! first time in YEARS...
Hi Everyone, Hope you guys are well!?.. I mentioned on this board a few months back that I was going to get the "dreaded chop".. Which I have been trying to avoid for ever! Well the surgery wasn't...
I was getting to the same stage with UC.. Although Controlled with the dreadful pred, allowed me to sleep all night....
No eating for 6hours!.. Lol I have no hope of that, I seem to be hungry ALL the time.. No weight gain.. I understand what you mean though, thanks for the advice....
Hi everybody, I was hoping someone could please help with some advice. I am 3 weeks into life with a stoma, yes it takes a bit of getting used too! I have a few questions which I will ask but the one...
NO side affects, but didnt work for me, tried it for 6-8months....
Hi guys thanks for the replies.. Already starting to feel better! I'm not going to sit here & say "I should have done this years ago" but certainly this was the best decision at this stage of this...
No Quincy.. Not 100% sure if there will be a pouch creation, still waiting on lab results to confirm its UC & not crohns...
Hey everyone, I mentioned my surgery date on my last post & some of you wanted an update.. Well I'm bored sitting here in my ward & thought I'd give a little update. Got my chop on the 15th @ 8.45am,...
thanks Ladies.. Looking forward to NO UC and NO Drugs!...
Cheers Bruce!.. much appreciated...
Just thought id say Hi!.. Im usually over on the UC forum but as ive exhausted all options with meds, with no success.. Ive surgery scheduled for the 15th July.. Just got the call this morning! Im...
lol.. Systud my gf asked a very similar question suebear - I hope & pray that I am in the same position as you, lucky enough to get back to work so soon afterwards and also lucky enough not to have...
Thanks Sherry, I read a lot on the internet and obviously there is a lot of scary stories out there. Best staying away from the internet for a while! Yes im obviously hoping for success! but there is...
Hi Everyone, Ive been reading on here for the past 10 years or more, not much posting as im mainly a reader lol but thought id update you all, as my last post was indicating success with diet (didn't...
Hi Quincy, I removed bread, sauces, crisps & basically everything that contains gluten from my diet - I only buy items that state gluten free on the labels, some things I know don't contain Gluten...
exactly garylouisville!! This is my point, which I will be making to each of them when I see them later in the month!...
MaxMilian -I did ask about LDN but he said NO to that as there isnt enough/strong enough evidence. FMTs - whats this? I sourced VSL online (by help of this site) and was paying for it.. - Until I...
Thanks Insofla.. I will look into l-glutamine - I already take VSL 3.. Cheers!...
For sure Petah! They let me try Aza, Remicade & Humira.. No mention of diet lol...
Hi Guys, I posted a few weeks ago regarding my situation.. All drugs tried & nothing seems to get me to a stable condition.. so the dreaded (For me!) conversation of surgery has been scheduled for...
This makes me want to try diet... I would try any drugs before pulling out my insides, personal choice Suppose I feel lucky not to have had any side affects....
I've tied all drugs that there is and things are bad. They want me of pred, so things will get a Lot worse when I decrease the dosage (20mg currently) Scope 2 weeks ago indicated active disease &...
Not 100% sure why he said permanent, I did query it and his response was just look long term. He has refered me to a surgeon to discuss.. (This doc was the biological doc, ..different in the uk) I...
Hi everybody, It's been a while since I've posted, I'm more of a reader lol Long story short ive been told its the surgery route, all the big gun meds have failed/didn't work (humira, remicade,aza)...
HateUC - what lifestyle changes did you make to turn things around? I have been trying to look into the SCD diet, and have already amost gave up on what to eat and what not to eat! therearemiracles -...
Im from the UK - Ireland, but I hear what you are saying about a good Surgeon. I did look into the diet options, seem very hard to follow with what to eat and what to avoid.. But certainly something...
Yes Humira would be my 2nd Biolgic drug, but im led to beleive that both Humira & Remi are almost the same drug. Never heard of Cimzia before! When im on pred things are fine, when i get below 20mg...
Seems I have no other options with drugs.. tried them all, infliximab was my last (fourth dose).. and no reliefe from this feckin disease! They have now told me its surgery today after my sig scope-...
Hi Joanna, I feel your pain! - And good luck with FT.. have you heard off/looked into Leukapheresis ? Thanks...
Hi People, I hope your keeping well?! - I have had 3 iinfusions of infliximab (within 7 weeks) and have seen no results unfortunately, although I have been approved for a year im not sure what they...
Thanks InSoFla.. Im confiused!?!.. Why dont more people know about this drug? - How come people arent giving the option of trying this drug, instead they are getting pushed into surgery or Bio drugs...
Hi .. Ive been on it for around 2-3 years now, NO side affects but it doesnt seem to work for me. I am past the Max dose for my weight and still no sucess. I have read LOTS of sucess on Aza though so...
Hi Guys, anyone ever tried LDN? - Has it worked a little or any? I live in Ireland, and the little research I have done, seems to indicate that its unlikely a GP or Gastro will supply this LDN drug...
Thanks for your reply! - Yeah I have tried both without sucess, I did have some sucess with the steriod foam. I have the feeling that this is almost at the rectum, and suppositries should help out...
Strange this one, each of my flares - Which start 3weeks after stopping pred seem to start different! This one, only seems to be mucos (at this stage!) - Seems to pour into the can, like water - Some...
N.Ireland - Belfast...
Glad to hear your doing well fella! - Long may it continue!...
Ive been on it a couple of years, NO side affects.. but it doesnt seem to be working for me. My doc seems to think its doing something but it certainly isnt holding me in remission status. So in my...
Hi Guys, Hoping for some help.. Seems im flaring again.. :( Urgency, my guess is that its in the rectum only at the moment, skinny stools, and a slight throb occasionaly in the rectum. Im currently...
Night time is fine, thats when I take mine. I didnt actually notice any bloating myself. If you do notice some dont worry your body will adjust and you should be fine within a week or so. Still no...