Thanks for the positive story! I need to keep hearing them! Just wondering about your diet. Do you eat freely or are you gluten/dairy or anything else free? I'm just wondering. Thanks again! I feel...
Thanks so much for your reply. As you can see, this is all new to me and I'm mostly calm but sometimes just can't hold it together. I don't think I have a sulfite allergy. The only thing I can think...
Good morning, So last night was my 2nd Rowasa attempt. I actually placed the bottle in a some warm water for a few minutes, then showered, then tried to insert the medicine laying down. I think the...
Thanks for the enema tips!! I will try them all tonight and keep you posted!!...
Thank you so much all the replies! I am so glad to hear of some success stories because the thought of dealing with this the rest of my life is very stressful and depressing. I wake up every day and...
Thank you for all your kind words everyone! I have tried the foams and they don't work that well on me either. Haven't tried the enemas yet so I will ask the dr about those today (luckily I have an...
Thanks so much! I hope you find some relief soon!! I'm sure you've tried tons of things but definitely keep trying. I'm sure you've tried this but have you given miralax a go? Also flaxseeds? I'm...
Hi everyone! First let me say how much I admire everything I've read on this board. Everyone is very open, honest, and brave. I am new. I was dx with proctitis last year and have been struggling...
How is everybody doing with their proctitis? I am still struggling as well. Such a terrible feeling. Has anyone tried cannabis suppositories for proctitis?...
Good luck! I was just recently dx and am still struggling as well. I have no b and m just a lot of pain. :-( I tried to make these butyrate suppositories this weekend that I read about from an old...
hi protcolteck! I was looking at your daily diet. What is sf butter? And what do you eait it on? Thx! How's it going? Are you still med free? Still taking sodium butyrate? Thx!...
Hi Triplet 711! hows it going? ...
I am going to get the scoop from my friend and report back with the details. I am really intrigued with this as an adjunct to my regular meds. Not ready to give those up yet, but I planned on making...
Hi everyone! I'm in FL. Where do I get butyrate suppositories? From my GI or do I have to have them made with a prescription? Are they combined with canasa or just butyrate alone? Is PalaceDan still...
Hi GoDawgs! I'm sorry for your pain and struggle. I totally understand and I hate that anyone struggles with this. I just read a thread about butyrate suppositories. I'll try to copy/paste the link....
Hi again ! Quick questions. Has anyone tried Wild Oregano Oil capsules? I've thought about it. I'm going to try the VSL-3 probiotics and maybe slippery elm powder I found on another chat. I tried the...
Hi! I'm new and feel like JGuitar did at the beginning. Very depressed. Has anyone tried Wild Oregano Oil capsules? I've thought about it. I'm going to try the VSL-3 and maybe slippery elm. I tried...
Thanks everyone for your help! I asked for the canasa suppositorities. And got them last night and started this morning. I hope they will really help! I'll keep you posted. Thanks again for the...
Hi! I'm new to all of this. I was diagnosed with proctitis and colitis. I started sulfasalazine 5 weeks ago but about 4 weeks in I noticed a change in taste. I also started this sodium butyrate...
Hi! I was diagnosis with colitis but mostly pain in my rectum. I started sulfasalazine but I'm 5 weeks in and my taste changed and everything tastes like salt. I am switching to Lialda tomorrow. I...