Hey, how do you guys do with coconut flour? I made some almond/coconut flour bread and lets just say I'm on my laptop in the bathroom right now. I do great with the almond flour I just wanted to try...
Ok so Delta charges $25 each way to check a bag. I'm outta town for 3 days and was going to take a carry on only. Can I fly with Rowasa? The bottle only says 4 grams of mesalamine, it doesnt say how...
You can google Specific Carbohydrate Diet. Or I would suggest reading Breaking The Vicious Cycle. Theres many websites devoted to it. Yes, it is for Crohns too. Theres several online blogs for people...
Go to the car air freshener section. They have a whole bunch of mini spray scents for the car. I keep one in my purse. The one I think works the best is the ozone brand orange scent. It knocks out...
mmmmmmm curry...
We have quite a few threads on here about our purple spattered toilets. Rowasa is such an awesome medicine. Keep taking it and I'm sure it will help you! Have fun bleaching the purple toilet stains....
I just had a house guest for 3 weeks and was neurotic about my purple butt paint. Just like Songlady said, if you use a toilet brush on it right after you go to the bathroom, they wipe right off....
Yeah mines $15 for a supply of 30 at CVS. They rule....
I've had luck with VSL #3 and Ultimate Flora Critical Care. I get VSL at CVS and UFCC at my local health food store....
My doc told me hip and knee pain is very common with UC....
The specific carbohydrate diet has worked wondesr for me also. Check out the book "Breaking the Vicious Cycle". This book is about eating foods to starve out the bad gut bacteria and replace it with...
Canasa is a rectal mesalamine suppository. Most of us like the mesalamine enemas. They treat lower inflammation right at the source. Rowasa is the one I use. I learned about it on this site and asked...
Wow, I cant believe we've wasted all this time with medications and Dr visits! Macaroons, the miracle cure. Oh brother. So funny, thanks for sharing....
Hi everyone. So I had a moment of pms weakness last night. I didnt go off plan too bad but I totally pigged out and I know I do best with small portions I was awakened at 4am and had to run to the...
Rowasa causes a loose stool the morning after you take it. Its just from having an enema inside of you. It also can cause quite a bit of gas in the morning. BUT... thats just a morning side effect....
I looove Lexapro ( I take the generic, Celexa). Its the only thing that has ever worked for me. I've taken it for I think around 10 years. I take 5 to 10 mg when everything is going well, then I up...
I'm in remission (knock on wood) right now. I still get urgency sometimes. I also think I have more gas than the average person but not nearly as much as while flaring. I finally got my energy back,...
I agree with everything BabeITW said....
Yup, we all get it. Vent away. Hope you feel better soon!...
My Doc gives me pred when I'm incredibly sick. He gives me pred and at the same time ups my mesalamine to my flaring dosage. The pred gives me relief from my intense bleeding until the high doses of...
Kelli- yup. Down to 3 and 3 now! yay! I'm tapering down extremely slowly but its working great. Aguywithuc- That sucks that mesalamine hasnt worked for you. I does work quite well for many of us...
8 Apriso for flaring, 4 for remission. When flaring I take 8 apriso, and nightly Rowasa enemas. Works like a charm. 4 Apriso is not enough mesalamine for a flare....
Bahahahahaha!!! I love it. We must never let our enemies get their hands on moviprep! So funny....
I work in a upscale salon and see women who have had it done all the time. You will look frightening for 2 weeks, then just kinda scary for a week after that. Then you will look amazing for years. I...
Ok so I'm only 33 and my fingers blow up all the time. My hubby got me some emu oil and I started laughing. But seriously it has substantially dulled the pain. Its now just a dull ache and not sharp...
Absolutely, I take glutamine for repair. In the morning I take tumeric, olive leaf, cinnamon, and apple cider vineger to kill off all the nasties. At night I'm taking massive doses of probiotics. I...
Wow, you have learned alot in your one year! Scd has worked wonders for me but does not work for everyone. Elaines book was written over 20 years ago so I think the bifidus thing is just old news. We...
I tested negative but cutting out gluten was one of the best things I did. My Grandfather was a celiac so maybe I'm just sensitive to it....
When I had inflammation to the sigmoid my Dr had me take 6 Apriso a day (3\3). With a full colon flare I now take 8. Take at least 4 for a flare, 4 is the remission dose so I say take 6 and nail this...
Cool, what did the naturopath say? I've always thought about going to one....
We actually talked about this on the scd thread. Some of us have been taking L-Glutamine for healing the colon and have noticed that it has curbed sugar and starch cravings alot. It is very good for...
Yup gives you bad gas. Take it right before bed and keep it in all night. If your sleeping it makes the gas urges not as bad. I prefer the enemas because the medicine goes further up, preventing...
I glided along with mild UC for over a decade. Ive had 2 large flares that were pretty easily treated. My most recent flare was life altering. I got slammed. I really think it got so bad because I...
Oh man, if my meds cost that much I'd be looking elsewhere too! I've had luck mixing alternative therapies and taking my meds together....
I've had UC since I was a teen. Back then I was able to get into remission very easily with just mesalamine. It does take a few weeks though. I've had years inbetween flares and have lead a very nice...
I didnt start SCD til I was on the road to getting better. When I was violently ill I drank only Boost for 3 weeks and it helped alot. I drank 6 a day and got alot of calories from that....
Yes, that is perfectly safe for a 3 month period. I'm on the same diet and am maintaining my weight. I was getting a little too thin so I started making muffins out of almond flour and it helped me...
If you know what a shart, a blart, and a farcous is....
I take an antidepressant and try to walk every night. I cant exercise heavily anymore either but just taking the dogs out for a half hour really helps me chill out. I like to go after dark, its so...
If it used to be in the rectum and now is above, its not "skipping". When I was a teen my colonoscopies showed little red dots all over my rectum, I think thats just how it looks in the early stages....
I go ahead and drink lots of diluted iced green tea. Coffee hurts me but I need my caffeine! I drink water with cut up cucumber and orange in it. Too much juice seems to be no good to me either. I...
I saw your other post, I am glad you are going to try Rowasa. It is amazing for proctitis. Your body wont absorb as much of the meds either! We are all just worried about you honey. I think using...
Zuke, YOU NEED MEDS! Bleeding since Feb is so dangerous! At least take them to get into remission and then stop if you insist. Your disease WILL spread if you keep this up. You sound so sweet but you...
I'm with Quincy, it sounds suspicious. Drs dont give 6mp to just anyone with cramps. I hope you really dont have UC, that would be wonderful. In your sig it says "waiting to see how big the ulcers...
Hows everyone doing this week? I just want our thread back on pg 1 :)...
I will consider surgery when nothing else is working. Sound like you are about there. Have you tried diet modification? Cutting out gluten, milk, etc? Try googling the Specific Carbohydrate Diet. It...
Some of us are, some of us arent. I hope you DO get to feel normal again!...
I take Boswelia and Olive leaf every morning as antifungals. Um.... and I use hydrogen peroxide- ON CUTS! Drink it? Yikes!...
This forum is the only place I've found where people understand. Welcome to our crappy little club. I agree that you should try mesalamine enemas (Rowasa). They worked so much better for me than...
I also had to do 10 mg pred for a few weeks, then 5 for a few, and 2.5. I use Rowasa. Maybe you should ask your Dr if you should take 8 apriso a day. Mine had me at 6 until he got the colonoscopy...