Please if anyone else has had this diagnosis CONTACT ME!!!! I've had severe ulcerative pancolitis since 2010 and my meds are as follows: Remicade 740mg since December 2011....
VicG, I am pleased to hear activated charcoal has been such a big success for yourself, however, for me it takes away a lot of the discomfort but has done nothing to relieve the emergencies as I...
Everyone responds to Remicade differently. For me, after the very first infusion I went from having 5-6 bathroom trips a day to 1 IF THAT. Trust me, even if it doesn't work right away for you, it's...
Thanks so much for the tips and clarification! I will definitely give that a try!...
Oiy where to begin? I am quite confused with my colon these days lol. I have severe ulcerative pancolitis and have had 3 Remicade treatments which have been working great!! It's like not even being...
I am curious if this has happened to anyone else. I am a relatively new member to this forum and have been reading post after post and haven't come across anything quite like my situation....I have a...
Severe blood loss. Hemoglobin came back a 4 out of 15 (1/4 the blood in my body I should've had...cardiac arrest candidate). Required 4 blood transfusions....
I haven't run into any adverse side effects thankfully. During the infusion treatments, everyone reacts differently. Here's how the infusion went for me...firstly, I receive them at Hershey Cancer...
One thing I can definitely suggest that has given me great relief has been the VSL#3 DS probiotic. It is available in powder form through prescription only and has really worked wonders. Although it...
Worked right away for me. I had results the very next day. Went from about 10 bloody painful and mucusy bm's a day to no blood or mucus (unfortunately still have pain) and 1-2 normal bm's a day....
Ohhhh it's a joke at my job 'cuz I am in and out of the bathroom all of the time especially if I eat so the ongoing joke is that I am regurgitating my meals but of course everyone really knows I have...
Thrilled that I got the VSL#3 DS packets. They are in fact covered by my insurance. I currently take 2 packets daily and have significant improvement...ALTHOUGH, I did also start Remicade treatments....
After a very bad colonoscopy, my GI has decided treatment with Remicade is the only way to get my insides to calm down. I am anxious to hear some success stories or side effect stories. I know...
Well today's colonoscopy went just terrible. My GI was going to do 30+ biopsies and check me for Crohn's disease atop my current severe ulcerative pancolits however she was only able to examine 30%...
She's just not happy with the colonoscopy my old GI performed. She felt it wasn't nearly thorough enough especially for how severe my disease is. Also, I always have a lot of pain whether I am going...
My colonoscopy is scheduled for Monday at 10:30am. My GI is going to do 30+ biopsies as compared to my first colonoscopy that was done at my local hospital by my original GI. He only did 6 biopsies....
Mackster....I tend to believe it's not the Prednisone because the first time around when I was on it, I had an insatiable appetite but did not have the same digestive issues. Also I seem to be losing...
Even though I am taking 60mg of Prednisone, it's definitely not causing my severe hunger. I am beginning to notice that once I eat, half an hour later I am in the bathroom and by the time I am done,...
I too seem to have the same problem with prednisone. The first time I was put on it through IV in the hospital and continued it orally at home and it worked amazingly! Now that I am on my second...
My doctor also has me on Vicodin. Because of how severe my pancolitis is, NSAIDS are NOT an option because I have serious bleeding issues. Every day seems to be different so I have a few different...
I have the luxury of having my eye doctor right next to my job and he usually recommends to pop in once every few weeks to check my eyes because he's aware of the UC. My eyes do bother me at times...
I just received my first box of VSL#3 capsules and took two this afternoon. I am curious to see if anyone else is taking this particular probiotic and how it has helped or not helped any of you. I am...
I too tried Align and when I told my specialist about the probiotic she quickly told me to stop taking it because it can have a negative effect on your gut when you have IBD. I am currently taking...
I had this same problem. Before going into the hospital (before I was even diagnosed with UC), i was getting nightly fevers and night sweats. It was explained to me in the hospital that the fevers...
No one in my family has UC, however my mom did have a bout of her own many years ago when she worked for the Red Cross though that seemed to clear itself up after a month and never returned. I had...
My name is Diana and I was diagnosed February 21, 2010 with severe ulcerative pancolitis. I was sick for many months before a doctor could tell me what exactly was wrong with me. I was passed off...