Thanks again everyone! Had completely forgotten about this gruesome little episode. It took two weeks to get back to normal. Two weeks of extreme discomfort. If I was lying down and turned from one...
How long have you been on them? Do you get liver enzymes checked regularly? Upper right quadrant sounds like liver....
Worked for me for three years. I would have paid double if I had to....
If there's any link I'd guess it might have something to do with taking fibre supplements on top of the medication, rather than anything inherently unsafe about benzos - with respect to colitis at...
That would be a real hit on St. Pat's day!...
I saw a sign in a dentist's office once - "Ignore your teeth and they'll go away." I think that philosophy applies across the board for any condition....
"Am I doing myself harm by not doing invasive tests?" You're experiencing harm already, even without the invasive tests. I loathe colonoscopies, and there is some risk associated with them. But I've...
^^^ :smilewinkgrin: Exactly. Good to know there are new things coming down the pike....
I would stick with the probiotics and get rid of the doc. I had a specialist like that. Two appointments - the consult, where he was rude, condescending, arrogant and dismissive - and the...
In my experience, slippery elm was very effective, every bit as good as 5-ASA any day, maybe better. Plus it doesn't make your hair fall out. Salicylate side effects though, for those who are...
The taste. Hmm...it lacks a certain...je ne sais quoi. No, but seriously, there seems to be no taste at all. It's made out of something called therm o flex. I don't know if there's any relation but...
I like the one I've got now. Covers the uppers, nice and soft, flexible. The two-front-teeth ones are horrid! And isn't it better for the teeth in general that they should all meet/occlude? In the...
I've never been aware of grinding, but my teeth tell the tale - worn, ground down. A night guard is well worth the investment, and you should be able to find a reasonably comfortable, flexible one. I...
I certainly hope that is not the case, as I need to hear from you and others who are coping with this illness without benefit of medication. Anyway I don't think they can ban you absent some breach...
I get peripheral neuropathy from Mezavant (5-ASA). I also get it from other products containing salicylates, such as Slippery Elm and Pepto-bismol (bis muth subsalicylate). It was bad enough that I...
Gastroenterologists are not gods. They make mistakes and do stupid things and botch colonoscopies, and they don't necessarily give a damn. They were already as busy as they needed to be when you...
If a picture is worth a thousand words... http://en.wikipedia.org/wiki/List_of_Thinker_sculptures...
I took it for 10 days in September, and haven't needed anything since. I take a couple of supplements, that's it. Slippery Elm worked better for me than Mezavant, which worked quite well in its own...
Flagyl's (metronidazole) supposed to be ok, possibly even beneficial. As icing on the cake, it will exacerbate peripheral neuropathy for those susceptible....
"PN ranks among the most frequent neurological complications seen in IBD patients." http://brain.oxfordjournals.org/content/128/4/867.full...
I don't think a week of antibiotics should harm anybody, but IANAD. Best thing do while waiting for your doc's opinion might be to read up on peripheral neuropathy. There's tons of material out...
The tingling and numbness should subside as you eliminate various possible causes of your peripheral neuropathy. That would include various medications, including some antibiotics; also alcohol,...
I was on and off mesalamine for a year. I'd quit taking it when my PN got too painful. So I quit mesalamine one day and started the slippery elm the next day. Two days later I noticed a marked...
I had a lot of trouble with 5ASA until I gave up on the stuff and switched to slippery elm. Dramatic improvement over 5ASA, except the peripheral neuropathy symptoms are just as bad with slippery...
I've heard good things about Flagyl (metronidazole) in the context both of colitis, and dental infection. Crohn's as well. I had my dentist prescribe me a bottle of the stuff after a recent root...
I decided to try slippery elm based on what I read about it here and elsewhere. I had been using 5-ASA (mezavant) with great success, but kept going off the meds because they exacerbate the...
I don't think it's all salicylates. Apparently aspirin is frequently suggested for mild neuropathy. The UC started off as pancolitis. The weird thing is that this showed up last year, after what...
Yes it is. But I've researched all the 5 asa's out there, and they all have peripheral neuropathy as a side effect. Affecting only 2% of users. I think Apriso comes in a smaller dose than the others,...
2.4 gm. Yes, it is unfortunate to be having issues with it, but it almost seems to be par for the course that the meds we need cause so many hassles. I'm mindful that 5 ASA is the best drug I could...
...because I have no choice in the matter. Mezavant (2.4 gm./day) exacerbates my peripheral neuropathy to the point that it's unbearable. So anyway, I take the stuff every 4th day now instead of...
Pink, I think if they saw "white specks" and didn't freak out, then the specks don't amount to anything. As Dr.'s and nurses specializing in IBD, they've got to have a clue as to what they're...
UC is like a box of candy. You never know what you're going to get....
Brita and boil....
Of course she can't be expected to install a new bathroom, so there's not much she can do about that. But she sounds like precisely the sort of person I wouldn't care to visit anyway. There's no way...
It may be the running that's the problem. I work out with weights three times a week without ill effect, as well as doing a lot of stretching exercises and walking. All that running could be sloshing...
I was just thinking about this yesterday (I spend a lot of time deep in thought), and I was wondering what the h*** am I supposed to do if I have a toothache and I'm flaring and I obviously have to...
Thanks for that. I've heard that black pepper is supposed to enhance it. http://monamifood.wordpress.com/2010/02/28/why-turmeric-and-black-pepper/...
How do you take it? Just the powder, dissolved in yogurt, kind of thing?...
Great link, archived. Too bad I can't use Sam-e. Not that it causes me any problems, just that the enteric coating seems to be well-nigh impregnable....
Here's one: http://www.webmd.com/ibd-crohns-disease/crohns-disease/news/20100825/broccoli-plantains-help-block-crohns-disease...
That's nice when circumstances enable you to see the benefit of a supplement in isolation like that. I tried a bottle of the stuff - one tablet at a time that is - but I couldn't tell if it made a...
Numb hands and feet can also be a symptom of peripheral neuropathy, which is an apparently rare (but very real) possibility if you're taking 5ASA. If you're on 5ASA and stop taking it, and the...
Thanks!...
Have you got their phone number handy?...
Liver problems ruled out?...
A match gets 'em pretty good. Just don't light them if you're wearing polyester pants!...
You know, tummy microphones might be very interesting too......
rate mds is a fantastic site. I found a great GI there. Well, I haven't seen him yet, but he's rated tops by about 20 people who find him attentive, personable, skilled surgeon, open to working with...
I took 2mg the night before my first colonoscopy, a couple of months ago. Actually my 2nd, as the first was in 1958. I was pretty nervous about this second one, as the first was a horror. 2mg. was a...
Because I'm not predisposed to IBD. On the contrary, everyone in my family has great digestive systems. I was the only one who abused antibiotics--all because of acne. I abused them for years and...