Thanks for the thoughts--will see my cardio tomorrow. Hope to get some answers then....
Thanks for the info, Kitt. IF i can get rid of the cough and my throat gets ok, maybe I can still make it to the Met!! lol!...
Hi-- I had an ablation done about a year ago for my A-fib, and things have gone pretty well. Have started to notice a few short episodes of irregular heart beats, but mostly all is well. My question...
Than ks Kitt. So far things have settled down, but if I have to do it again, so be it. Love your signature michigoose...
HI-- I had a successful ablation done for A-fib last February, Had a very occasional flutter here and there, but mostly things have gone very well. The past couple of days, however, I've had a...
Hi-- I initially took remicade for about 6 months and had to quit because of severe joint pain. A year later my Doc put me back on because I was having a terrible flare and it worked fine again,...
Hi Red-- I'll keep my fingers crossed for you. Remicade was the magic bullet for me, but unfortunately, I developed anti-bodies to it, so bye-bye remi. I'm scared to death of flaring again. Wisgh I...
Hi Red-- Glad things are better for you now. My doc has always given me 40 mg pred the night before remi and benadryl 1 hour before the infusion. Had to up the benadryl to 2 this last time. It really...
Hi-Red-- So sorry to hear of your troubles with remicade. The first time I was on remi I lasted for about 6 months and then had to quit because of really bad joint pain. This second time I've been...
Depression can increase anything bad!! Have a good Sunday-- from the soggy Mississippi coast....
Hi-- Saw my GI Doc yesterday and he said I was around 10, so he ordered another blood test, and if it's still that low, he'll order a transfusion. I had thought he'd order iv iron. I still might be...
Hi--Have seen some posts referring to taking L glutamine. My son has talked me into taking it to try to build up some muscle tissue, but I was wondering just what benefits you get from it for UC?...
Dr-A-- Will do--Thanks for the heads up. Michigoose...
Hi all-- Have been on Remicade since Jan and just like the first time I was on Remicade, I have gone into complete remission. Who would put up with the aches and pains, etc., if it didn't work so...
STKITT You are a wonderfully kind person-- God Bless Michigoose...
Thanks for the replies-- What I meant was my rate dropped into the mid 30's before I was on the beta blocker and before abalation. As far as I know, now it is dropping into the high to mid 40's when...
Hi-- I usually post on the UC forum, but I also had an ablation last January for a-flutter and A-fib. Since then, things have been pretty good--with occasional extra beats, or a little flutter--not...
Makes me sad, too--after 20 yrs of UC and at least a half dozen flares that required prednisone, I was diagnosed this year with osteoporsis. The last flare was so bad I talked my doc into going back...
Hi Forumuser-- I've had UC for over 20 years and a couple of years ago I gave in and went on remicade. It was a wonder drug for me--went into remission right away. After 8 or 9 months, however,...
Hi-- Sorry to hear of your joining the ranks--I was diagnosed with A-flutter last summer, and the doc I saw then wasn't too aggressive about it. This progressed to occasional A-fib and the next doc I...
Thanks for the info--makes me feel a bit better. Will see the cardio doc tomorrow. here's hope for a better new year! Michigoose...
Thanks for the replies-- I'll be seeing the cardio doc next week to discuss alternatives. Just hope and pray 2011 will be a better year. Happy NewYear to all. Michigoose...
Hi-- Just posted on my usual forum at colitis, but wondered if anyone here could help me. I've had atrial flutter for a few months, now going into a-fib sometimes. I'm supposed to go for ablation and...
Just wondering if anyone out there has had a similar problem to mine. Have been in a stubborn flare for 3 months or so, with the usual bleeding, etc. Ended up in the hospital with dehydration for...
Thank you for the informative post-- Yes, the joint pain reaction started about 6 months after the initial remicade infusion, while in a good remission. Thank goodness I stayed in remission for a...
Oh yah--I know what you mean! I'll see my GI doc in another two weeks. He's already making noises like "colonoscopy", etc. Well, it's probably time. Waiting to see if the lialda, flagyl, and cipro...
Thanks for the replies--it helps to remember there might be other answers to the problem and to hear sometimes you can go back to remicade. One day at a time, as they say. Michigoose...
Hi-- Been away for almost two years--that's as long as my remicade-induced remission has lasted. They say all good things must end, but this is really a bummer. I had about 8 doses and then the remi...
Hi Mojowo-- Am I glad I happened on this thread-- I'm waiting to see the doc after ct and ultrasound tests have shown a small (1 cm) nodule on my thyroid. I see you were on remicade for a while. So...
Hi Speden-- I'm beginning to think you're right--the neck and shoulder pain is probably a result of tension and also goes along with the lupus-like symptoms I'm experiencing as a result of remicade...
Hi Kitt-- Thanks for the reminder about the pred--I've been on and off it a lot in the past 20 yrs, and I know there's no free lunch--you pay for what you get. Kept it to a minimum, but bad flares of...
Hi-- I'm a visitor from the Ulcerative Colitis Forum, but it's beginning to look like I need to be here, too! Just got taken off Remicade therapy for UC--it backfired on me and resulted in temporary...
Thanks Kimor-- It's good to know there might be light at the end of the tunnel. Good luck to you, too. Michigoose...
VIEW IMAGE I can't believe it--my "magic bullet" has turned into a booby trap! I go to the GI Doc tomorrow, but according to all my research, it looks and feels like I've got lupus-- at least the...
/community/emoticons/cry.gif Well I finally gave in to my doc and went on Remicade last Nov. It was an absolute miracle--total remission right away. But--always a "but"--just before my 6th infusion,...
Hi--Leslie?is it?-- You replied to my question about joint pain and remicade a while back. I forgot to ask you, did the joint pain start fairly soon after an infusion, or did it come on near the time...
Hi-- Just accidently wiped out my msge--Oh well here goes again! /community/emoticons/rolleyes.gif I've been on a really successful remi treatment since last Nov. But now I've noticed that 2 wks to...
Hi Peety-- I was given Bactrim and gentimyecin--a six week course. It's very important to get the right antibiotic to kill your particular MRSA. My ENT doc cultured the infection and then they tried...
Yep--I had no symptoms--it was just routine for them to take a culture during the sinus surgery. I do MRI scans in a hospital, and I have been exposed to patients with MRSA. Take all the precautions...
Thanx for the replies--I'd pretty much figured I'd have to delay remicade for a while. I'll be on the phone to the GI doc as soon as they open. What a bummer /community/emoticons/eyes.gif ! And the...
Well just had a wonderful experience--sinus surgery! If they didn't get it right this time, they won't get another chance, believe me! Not fun. Problem is, they found I had a good MRSA going in my...
Too right! /community/emoticons/devil.gif ...
Hi Melissa-- I, too, was scared to try the remicade and put it off for as long as I could. Finally got fed up with being miserable and on pred, so went ahead. Best thing I ever did. Have had my 3rd...
Hi Picco-- I, too, just had my 3rd remicade infusion, but no problems, and it seems to have put me in remission already.--but I have my fingers crossed! /community/emoticons/yeah.gif However, I have...
So sorry you're feeling so blue dear. I can't think of anything I hate more than being around a "jolly" bunch of drinkers and not be able to drink. You have to drink with them in order to put up with...
VIEW IMAGE Just had my 3rd infusion of remicade. Seems like it's helping quite a bit. Am also on Lialda. Last week had two mild nosebleeds and yesterday a really heavy nosebleed. I haven't had...
Hi Happyliving-- You can make yogurt out of any "percent" type milk you want. Just be sure you let it "cook" for 24 hrs at least. Then the lactose in it will be completely used up and if you are...
Probiotic-- I just had my 2nd infusion last week, too, --5 mg/kg. The first dose helped a little for a few days, and this dose is working a little longer. Next dose in 4 wks and then at 8wk...
Making my own SCD recipe yogurt is the only way I can eat yogurt because of the lactose in the commercial stuff. I go thru about a 1/2 gal a week and it's a great source of probiotics along with the...
My GI doc puts me on flagyl and levaquin along with prednisone for bad flares. Unfortunately, it didn't do much good this last flare--ended up on remicade, which seems to be helping a little so far....