ddd45, I chose the permanent ileostomy with the guidance of my colorectal surgeon. This was my inclination after researching the different options. The benefits to me were that it would be a single...
Unfortunately, remission can be fleeting. Over a 5 year period, I was on just about every preparation of medication used to treat ulcerative colitis. Orals, rectals, remicade, cimzia, humira. I was...
Hello All. I have not posted to this forum before. I was a semi-active participant in the ulcerative colitis forum but left with a very poor taste in my mouth after bearing witness to the cruelty of...
Remicade was the best and worst thing that happened to me. It helped bring me into remission when nothing else worked. If I could go back and time and do it over again, I would do it differently....
Chuck, I posed a similar question to this forum a couple years back regarding Remicade. I was on Remicade and following the Specific Carbohydrate Diet and taking probiotics. My gut symptoms were well...
You're having symptoms again as you taper down off prednisone because your colitis is not controlled. You will need to find another method of controlling inflammation. Depending upon where in the...
Remission: Solid stools, once daily. No blood, no urgency, no cramping. I will occasionally "feel" my colon depending upon what I eat or if my stress level rises. I think my "feeling" is more in line...
Has it been chronic for Siouxsie Sioux? I thought she had a colectomy as a teenager....
yes, you can use multiple probiotics. You could also increase the amount of VSL #3 that you are taking. The dose used by most research studies(VSL #3) for active UC was 3.6 Trillion bacteria per day....
IBDISTHEPITS There are a number of well designed research studies published in numerous scientific and medical journals that show the effectiveness of VSL#3. The science is there. In fact, several of...
I am a strong proponent of probiotic use for UC and use VSL#3 DS faithfully twice a day (2 sachets daily). I have used this steadily for a year and have not attempted to change my routine. I have...
I'm not sure if he is accepting people into the clinical trial, but here is his contact info. If interested, you might inquire. [email protected] 312-503-2693 312-860-8896 Searle Building Room...
I'm going to assume that you have tried managing your UC with traditional therapy as well. I know that smoking can be effective at ameliorating UC but the side effects/risk factors of cigarette...
You know there is a form of skin rash of the palms of the hand and soles of feet (not always both together) called palmoplantar pustulosis. It can start as pebbling of the palms of the hands, can...
I have had a number of patients through the years who use diazepam and/or lorazepam as an adjunctive treatment for ulcerative colitis and/or crohn's. It makes much more sense to me that diazepam, if...
I can recommend VSL#3. I have not used OMX. I have tried a number of different probiotic combinations but have settled on VSL #3. I have used VSL#3 for a year with good results. I use the double...
Are the "bumps" fluid filled? Little vesicles? There are several types of eczema. It is somewhat of a wastebasket term, like dermatitis and manifests in different ways. NapaCabs...
Mom2Panda Flagyl is an antibiotic. It is often used to treat C-Diff related diarrhea. C-Diff is often not effected by most antibiotics, so it is isolated and then become pathologic in the gut. Your...
Thanks for sharing. I look forward to a follow up to this study. Many GI's will not give too much credence to this particular article because it was offered as an editorial/letter to the editor...
Sherry, You most likely have dyshidrotic eczema. I would look for more information on e-medicine or pubmed health. There are helpful remedies that you can start at home. Controlling the exposure to...
I started SCD immediately after starting Remicade. My symptoms were classic UC and I was intolerant to mesalamine, 5-ASA and did not respond to steroids. I was started on Remicade and quickly started...
I have had experience with intention meditation both as a UC patient and as a physician. I had the great pleasure of spending time under the care and guidance of Dr. Deepak Chopra after I was first...
Eva Lou, It is strange that the treatment for the disease can cause the disease itself. This side effect is coming to light amongst physicians and causing a bit of contention on the safety of its...
There are a number of published research studies that demonstrate this link between TNF-alpha inhibitors (Remicade,Humira,Cimzia) and the development of psoriasis. Go to pubmed.com and search using...
VSL#3 is a powerful probiotic and it has helped many people achieve and sustain remission. I use VSL#3 DS daily and have for almost a year. It seem to be a very effective maintenance medication for...
I had a similar experience as well as developed psoriasis while on Remicade. Like you, I am unable to take most of the lower level of UC treatments. You body is likely responding to the mouse...
Thank you for sharing your story and we all wish you continued good health. Do you continue to eat Nancy's yogurt? I am a big fan of Nancy's. I mix my probiotics (VSL 3 DS) with Nancy's Organic plain...
I like the brown colored "smelly wind". Thank you for sharing....
Very interesting. I'll never forget my initial gastroenterologist saying to me with an uncomfortable coyness, "Have you thought about starting smoking? Smoking seems to a very effective tool for...
Donna, Where is your pain located exactly in the foot? Did this pain come on quickly? Does it remain swollen and red to this day? Do you have pain standing and at rest (off your feet)? What...
Sherry, This could be a prodrome to a vasovagal response but I wouldn't discount it too easily. You were bordering upon hypotension when you took your blood pressure after this episode and that may...
Thanks for the posting. Pages 36-37 start talking about the meat of the invention. I skimmed through the document but didn't have time to really dissect it. It sounds like a combination therapy that...
Thank you for posting this article. Very interesting....
Oral ulcers are more common in Crohn's disease where disease activity is seen anywhere along the GI tract (from mouth to anus). Have you mentioned this to your GI?...
I certainly had more gas when I began VSL#3 DS (Double strength, twice the concentration of bacteria as VSL#3). I also noticed and continue to notice that the smell of my stool is different. My...
Orthopedic Surgeon. I was diagnosed with UC within months after finishing my residency as I was starting a new job. My insurance had not kicked in yet during the period of my diagnosis. All my...
imagardener2 It is quite a learning process, isn't it? Have you tried farmer's cheese (sometimes called friendship cheese)? This is one form of dairy that I do very well with that is SCD legal....
Thanks for clarifying. Most importantly, glad to hear that you're feeling well. It would be wonderful to have another effective oral treatment for UC. Please do keep us updated on which treatment you...
You say this is a randomized, double-blind study? ..but you have been informed before finishing the study that you are in fact taking the drug and not a placebo?...
Thank you for those on this forum that have recommended psyllium. Although I've enjoyed remission for some time now, the psyllium added to my entourage of treatment has really helped normalize things...
It sounds like you are in a flare. I experienced the same thing during the period of a severe flare. Not a pleasant thing. It sounds like you are intollerant to Mesalamine products. Some people do...
Thank you for sharing your story. Good luck with the rest of your recovery....
What are your symptoms? You say the hemi's bother you more than the UC. How are you distinguishing the two? Hemorhoids are not specifically linked to UC but you are certainly entitled to suffer from...
There are some mixed results of older studies regarding omega-3 fatty acids and its role in remission of inflammatory bowel disease. Unfortunately, a very large study (The EPIC studies) which were...
I've found keeping a food journal is very helpful; adding foods one at a time and tracking my symptoms. I've been to several nutritionists and had expensive stool tests looking for food...
Sorry, I know this post was about the Soprano's episode but it triggered my television memory... the Scrubs episode was called "My way or the highway". I found an piece of the dialogue that I think...
There was an episode of the tv show Scrubs that addressed UC. The two main characters (one is a general physician, the other a general surgeon) argue over the medical vs surgical treatment of the UC...
The sharp pain in the lower left abdomen is indicative of distal disease (UP). The black spots could be blood. Your tag shows that you've flared a lot in the last year. The pentasa is probably not...
lovemyboys09, You are right that aphthous ulcer found in the terminal ileum is characteristic of Crohn's and not UC. By anatomical definition, ulcerations involving the ileum cannot be indicative of...
Thanks for sharing this with us. I noticed that UC was not listed in the table of diseases. There is controversy as to whether UC is officially a member of the autoimmune diseases according to...