Thanks for the nice responses. Yeah it feels good to be in control, at least for the last few years and for now. This weekend is a typical scene. Saturday-beach day, Sunday zip lining park, Monday...
Hi All: Hey there people. It's been a very busy summer for me and I just wanted to check in and give an update. I can't even list the amount I have been up to since my colitis has been doing so well....
Ok people, I will see you after a few busy months. Thanks for all positive replies. No worries I will be back soon to check in. Again colonoscopy coming up in Oct/Nov so def a post will be forth...
I understand people's reservations about going on Imuran but as my GI doc explained I was more frightened about uncontrolled colitis for many years. It was getting out of hand with my entire life...
Yeah tell me about it. When my colitis was out of control I was here every day multiple times posting and reading. Now I really don't think about bathrooms or my colitis in general. In fact I missed...
Hi All: I just wanted to check in with the people who have helped me a lot in the past. I just my GI doc a few weeks ago. I gave blood work to check in on my Imuran use. Everything doing great with...
So far so good on the Imuran. I have been on it for over 3 years and it has served me well. I take it at night to avoid any fatigue. I never really felt any tiredness but my gi doc suggested at...
Sorry I don't have much to offer. My liver enzymes have been really good while on Imuran. Really low and consistent. My GI doc said he really only gets worried when the enzymes levels get into the...
Somedude: I weigh about 175 lbs and am about 5' 11". They started me on 200 mg because my colitis was out of whack. They told me they wanted to be aggresive with it. Once it got undercontrol which...
As you all know I am a busy practicing dentist. Look at it from our perspective. I find just as big of a deal providing the treatment. I have been a patient many times myself and I realize it's not...
Thanks to all of you for all the responses. To somedude who asked how I do it, all I have to say is that I am lucky. The Imuran worked really well and fast for me. I have not changed my diet at all....
Hi all. It's me MyUC. I haven't been around in a while. Things are good on the ulcerative colitis front. That's the reason I haven't been around. I am going #2 about once every two days. A nice solid...
My only other input is that it's not true that you will 100% need an antibiotic. It's true that 70-80% of the time one will get put on one but it's rare that one will HAVE to have one at all. The...
You are not taking anything too personally at all. I don't what that particular dentist was thinking. It certainly has nothing to do with your medications. In fact we will often put people on 40 mg...
I am a very busy dentist and of course have UC. What meds are you specfically on? I will tell what any good dentist would be thinking. MyUC ...
I have been taking Imuran for about 3 years now and it put me in a solid remission for very quickly. I did my research and found that it has been around for a long time and has a lot of research...
I would definitely find a new doctor. The first 1 or 2 appts. are usually where the best impression is put forward. Sounds like your first impression of this guy was horrible. I would move on. No...
The last post was correct. DS VSL#3 is Rx. Normal VSL#3 can be ordered off the internet and mailed to your home but it's expensive as heck. MyUC...
pink1: I am glad your not nervous about the procedure. I had my first one this last summer and it wasn't too bad. I understand what you are nervous about but one in general should be nervous about...
Most people around here know that Imuran saved my colon and my quality of life in general. It worked fast and without problems. My blood work has been spotless while on it. I now feel "normal." So if...
I guess I am considered an "old face" or a regular around here. Good to know. It makes me proud to be a member here. Yeah things are going great and i seemed to have found my groove. I try to be an...
Your welcome to those that responded. For those that are new here and don't know my story I just want to say my ulcerative colits was really bad. I have had it for about 20 years and I was bleeding a...
Hi All. It's been a while since I have posted. I thought about it and I didn't want to be selfish. The kind of person that comes here when I need you all and the kind that dissapears when they feel...
This thread is an emotional roller coaster to read. One has to put the risk in perspective. The chances of getting a cancer from Remicade are very small. Someone here can post the % but it's a...
Your snapping at your mom could be the prednisone talking. I know when I take steroids I have emotional swings. Tell your mom about that, it might make all the difference. MyUC...
I take Imuran, the sister drug of 6 MP and I have no side effects. I also have been known to have an alcoholic drink or two from time to time. In fact I just finished a beer. I hope my comments help....
I try to have a sense of humor in everything I do. Those that hang out with or know me well know they will usually have a good time. At work we work hard but boy do we have fun cracking jokes with...
MustLoveDogs: I wish you and your family the best with the upcoming surgery. You, as a family, have done your best. Be at peace with the decision. Again I wish your daughter the very best. Keep us...
Jen O: My GI doc also mentioned that he has seen and read of patients who have gone into remission on Imuran only to stop it once in remission and stay in remission. He went on to say the consensus...
Jen O: Sorry if I can't answer your question directly but I can try to help. Imuran helped me tremendously as well. It has put me into a solid remission for the last two and half years. I have asked...
Collegestudent: You are probably correct. There is a well known connection between eosinophil count and IBD. Thanks for sharing. MyUC...
Sara: I am very confident your .6 is 600. That would be slightly high since some labs will say that a normal eos count is around 400 or less. The K/uL abbreviation refers to 1000 units so take your...
Since I have gotten my colitis under control my eos count has hovered around 900, normal is 600 or less. Mind you that back in the day when the colitis was out of control my eos count was around...
I asked me doc the same thing. I am taking Imuran for my entire colon and canasa suppositores for my rectum area to control the UC. I ideally would like to take the rectal meds only and my gi doc has...
Getting a low wbc is not that uncommon of a reaction as one might think. The whole point of immuno-modulators is to dampen the immune system, basically to lower the gear it's in. The trick is to find...
I use the generic form of Imuran. I use Stop and Shop pharmacies and have never had a problem with my medication at all. Sorry I couldn't be of more help. MyUC...
mama_blueyes: It's been a while since I posted here. I have been doing so well here that I haven't been checking in as much as I used to. Whenever I see an Imuran question I chime in. I have had UC...
Barb3246: The answer to your question is simple, the answer is yes. There can be a disparity between what one feels on a day to day basis and what actually is occuring on microsopic level. So a...
InSoFl: My last pathology report of my entire colon was in October 2010, my most recent pathology report which was of my sigmoid and rectum was just 2 weeks ago. In October all was good with the...
Q: I take 100 mg of Imuran, down from the original 200 mg dosage that I started with. I take rectal Canasa one at night every other day. That's it. I hope you approve. MyUC...
I just wanted to share. My pathology report came back from my flex sigmoid that was done about two weeks ago. All is well. Pseudo polyp was confirmed as just simple inflammation. My colitis was...
Thanks for all of your comments. Yes, Q the plan is for every other night for now and take it from there. Yes, persistance can reap wonderful results. I will be around, don't worry about forgetting...
Good luck with your decision. I used to use prednisone on an off for really bad flares but eventually it stopped working for me. I went on Imuran and it has really helped me. No side effects...
Just another quick update. Got all the results of all the bloodwork just a few minutes ago. CBC with diff, sed rate, crp, liver panel, renal panel, platelets all normal. So all is well on the UC...
not sure about that hateuc. He definitely wants me on both oral and rectal, at this point imuran at 100mg is good and definitely canasa 3 times a week. Only time will tell and then I may be able to...
I am back from my appt. I went into Boston and had a flex sigmoidoscopy today. Overall it wasn't that bad. Doing a procedure with no sedation was a little wierd for me but it went well. It took about...
Thanks Dsm4life. I was just relaxing about it until I read your post. No worries, I will just try to take some deep breadths and relax and take it like a good colitis patient. I will post back later...
Thanks for all the well wishes. I have my doc whos seems well intentioned and overall a gental soul how the procedure will be. He has told me to just take 2 fleet enemas 2 hours prior to the...
Hi all: It's MyUC. I haven't posted in a while. I guess I haven't felt the urge or the need to. Well tomorrow is a big day for me. As most of you know I have been taking Imuran along with Canasa. It...
I was started 50 mg of Imuran about three years ago. That was started by a GI doctor who was very conservative. My wbc at the time was very elevated. It was in the 40k range. Normal is 4-11k. I...