Have you considered an Vitamin B12 shot ?...
puffed rice I'm curious to know how many days you need to do the Vitamin E enemas before the bleeding stops. My DD has begun bleeding again and we may have to try this. TIA MOMUC19...
I always soak all types of beans for DD. I change the water several times thru out the day. When the beans are not soaked or she eats beans out she suffers. Try soaking and changing the water a few...
Hi All. I haven't been on here in a while b/c things are going really well. Daughter is completely off the Prednisone. Going on 8 weeks now. No flares. She's actually getting her period regularly...
mom2panda, Have you considered taking psyllium ? It helped/helps my daughter immensely. It will make your stools more formed and hopefully help with the urgency. Sorry to hear you're having a rough...
Thanks everyone. mudua, I'll look into that. Thanks....
Definately have your iron checked but I see that you are on Metoprolol X2 a day. My husband is on this and he was experiencing dizzy spells and even passed out one night while standing by the fridge....
I have to agree with nssg that your taper is probably a little on the fast side. Alot of people will experience some symptoms returning as you get lower in the doses. What we've done (daughter has...
Our daughter is currently taking 1000 mcg of Vitamin B 12 (under the tongue) but she is still so fatigued most of the time. Taking a shower wipes her out for a bit and she tires easily. I've been...
Not sure if this has been mentioned but psyllium helped our daughter immensely. She was going about 6-8 times when she got home from the hospital. After starting on the psyllium she was able to cut...
I remember being relieved when my kids had normal poopy diapers as babies. Now I'm excited when my 19 year old has a normal bowel movement. Yeah, it's come full cirlce ! Lol !!!...
7007 My daughter was able to hold the first "donation" for 15 hours. She intitially laid on the bathroom floor on her knees (butt in the air). Then she moved to the bed. I know you probably don't...
navywife83, I think the moderator was referring to *lookingforanswers* not you....
Thanks for the update...
What was the name of the tablet you took to kill the candida ?...
7007 said... MomUC, what did her doctor think of this? Because before and after colonoscopy is pretty good proof that this worked! How long has this been effective for her? He was pretty shocked that...
Initially, I used 40% stool and 60% saline water. After that, I used 50% stool and 50% saline water. Here is the exact post I posted after we had completed ALL the transplants. It was 10/21/2010 (I...
I would suggest a liquid diet to give your colon a bit of a break. Have you tried eliminating any dairy,yeast,sugars,etc from your diet ? Are you taking any probiotics or psyllium ? What are some of...
idkwia said... MOMUC19 - thanks for the post. Did your daughter have antibiotics beforehand? How much stool did you use? How much saline did you use? How many infusions did you give your daughter and...
I mixed the FT with about 40 % donation and 60 % saline. Mixed it really well. At one point I used a gallon ziploc bag and used a tongue depresser on the outside of the bag and "ironed" the lumps out...
Does she immediately feel better after being out of the home for just 1 night ? Or does it take several days out of the home for the symptoms to go away ? Have you had your home checked for mold ?...
7007 said... God, if I had known when I was diagnosed at 16 (I'm 39) that I'd be putting hookworms in my skin, and other people's poop up my butt, I never would have believed it. My 13 year old...
notsosicklygirl She is under weight. She was on Yaz but she went off of it b/c I think that might have caused her flare. Not sure though. I think we'll wait a bit since the tapering has caused her to...
Took our daughter to an endocrinologist this past week and she prescribed Provera for her. Should I be concerned that this might cause her to go into a flare ? She has not had her period since 9/2010...
Thanks for sharing. I Didn't know this. He's one of our favorite....
Thanks everyone. She did have her bloodwork checked about 3 weeks ago. Everything came back normal. I'm thinking of taking her to an endocrinologist just to make sure everything is going okay with...
Our daughter is currently down to 2.5 mgs of Prednisone. Tapering very slowly. The last several weeks she has felt extremely tired and fatigued. None of her symptoms have returned Thank God. It's...
Our daughter (19)is now tapering off of the Prednisone. She started on 40mgs back in July 2010. She is currently on 5mgs. I wish we were better informed on the side effects of this devil drug. She...
kiolm, She is currently down to 10 mgs of Pred. (tomorrow is day 15) We are tapering very, very, slowly. She's been on pred.since July 2010. So we need to do this slowly and carefully. 10 mgs. of...
Here is the exact post I posted after we had completed ALL the transplants. It was 10/21/2010 (I think) Up to the point right before we started the FT's our daughters colon was scoped 4 times ! Each...
Our daughter had a colonoscopy after 5 successful FTs. Her colon was showing 95% improvement. It looked like a completely healthy colon. Just 8 weeks before that her colon looked like road kill....
Well prednisone keeps your body from producing cortisol, which is something that your kidneys need to function. As you slowly taper Off of prednisone your body begins making cortisol again. But you...
notsosicklygirl said... Momuc19, was your daughter on prednisone when you did the transplant/colonoscopy? I've read that fecal transplantation only works for people who have imbalances in bateria or...
Since you are having alot of bloody diarrhea I would suggest a couple of baked potatoes. You are losing potassium and iron. Baked potatoes have up to 1000 mgs of potassium. Just don't eat the skin....
My daughter found that taking the psyllium helped with the cramping and straining she was experiencing when having a BM. It also helped with frequency and urgency. If you are going to take psyllium,...
I have to say since your diagnosis was Mild UC I would avoid prednisone at all costs. It really sounds like what everyone else has already said, mesalamine allergy. My suggestion would be to cut back...
Hi Kat, Sorry to hear about your hair loss. I know that for a young lady this must be extremely difficult. As far as your parents go, I would imagine it is just as you said, denial. It is Very...
We found that psyllium was a miracle for frequency and urgency. Our daughter takes 1 tspn. mixed in applesauce. It helped immediately. Normal formed stools and no straining and no urgency. When she...
Thanks everyone for your replies... to answer some of the questions. She was taking Asacol for a very short period of time. No other 5-ASA. All the meds. in my signature are ones that she is...
Our daughters last scope revealed 95% remission and a very healthy looking colon. We did a total of 5 FT. She has been on loads of meds including prednisone and nothing came close to reducing the...
killcolitis...... found this on the web The Pulse Test is another way to test your allergies. It has been noted that the first indication of an allergy is a rise in a person’s pulse. By keeping very...
So our daughter's last scope showed 95 % remission. All was going well. We tapered from 25 mgs to 22.5 mgs and she began having pains in her abdomen. Now,generally, when we go down in mgs the first...
I would contact him in the hopes that it would offer hope to soooo many that are suffering from this disease. There are things that I have learned from others that I would never ever have thought of...
Prednisone is absolutely evil. I hate it. My daughter has moon face from the pred. and she hates it. She calls it "her fat face". I try to keep reassuring her that it will eventually go away once...
Thanks everyone. Yeah, I've been reading about shingles and I can't really find anything about shingles in young people. She had chicken pox when she was 3 and she is 19 now. Shingles sound like...
Our 10 year old has come down with chicken pox. My daughter (19 yo) with UC had it as a young child. Is there anything that I need to be concerned about ? She is still on prednisone. She is currently...
/community/emoticons/confused.gif Sweetie, Oh NO... I am so sad to hear this news. I don't even know what to say...except that I am sooo soooo sorry. There are no words that anyone can say that...
Having a Dr. that makes you feel comfortable is AS important as having a Dr. that knows his stuff. Bed side manner is very underrated. Glad you found one the first time around. Congrats on your...
That's great. We are on a slow taper. Started at 40mgs and tomorrow we start 22.5mgs. Still have a ways to go but sooo happy we are in the process of kicking Pred. to the curb !!!...
I know that my husband takes Niaspan (for his cholesterol) and some of the side effects are nausea, diarrhea and vomiting. He doesn't suffer from any of the side effects from it, thankfully....