I went off Azathioprine to try to get pregnant about 5 years ago and went into the worst flare-up of my life. However, one of my GI docs says several of his patients have had successful pregnancies...
I find that caffeine, alcohol, carbonated drinks and sugar make it worse for me. Also, during a flare-up, I stay away from raw food and dairy, which can be hard to digest. I was gluten free for 12...
The first time I took prednisone it worked right away....
Sorry to hear about your mom. I like the BRAT diet. Bananas, rice, apple sauce and toast. Or the BRATY diet, which includes yogurt. Also, I think it would be a good idea to eliminate carbonated...
If something we are eating causes UC, wouldn't someone have been able to figure that out? I personally have never met anyone or heard of anyone who cured their own colitis without having their colon...
Hello, I am just getting off prednisone and so far it's successful. But sometimes I flare-up after about a month of being off of prednisone. My GI doc wants me to take Asacol, along with the Imuran,...
Wow, I had no idea that Carageenan could cause problems. Thanks for the info! I buy unsweetened Soy Milk from Trader Joe's that contains no carageenen or sugar....maybe they have and unsweetened Rice...
hi, i used to live in Arizona and the GI I went to was Dr. Daniel Meline. I really liked him. He was in Scottsdale. He is worth checking out and hopefully takes your insurance! Good luck!...
i got diagnosed after quitting smoking. during a flare, the nicotine patch did not work for me....
i resisted trying remicade for a long time, and when i finally tried it, i had wished that i tried it sooner! it totally helped me go into remission, when prednisone alone was not working. i have...
are you close to a Trader Joe's? they have the best gluten-free panakes! OMG yum! they also carry a gluten-free rice bread, which is pretty good when toasted. also, most oatmeal has gluten, so be...
hi, it is always good to stay away from raw veggies, fruit and beans...or any gas forming foods. a lot of people do the "BRAT" diet, which is bananas, rice, applesauce and toast. i think this is a...
Hi, I have been having a bad flare since OCT 2009. I started a gluten-free diet about 90 days ago. I have not "cheated" at all on the diet, down to avoiding soy sauce, etc. Unfortunately, I have not...
yes, the mornings suck! i too have to get up three hours before going anywhere, eat breakfast right away and get the "process" started! i sleep on my back a lot and don't move during the night at...
Sometimes bright red and sometimes more of a burgundy red. definitely the worst bleeding in the morning though....
boxermom2, I have been on Humira since April. Yesterday was my 8th shot and now I take it every other week. So far, it really has not made a difference and doesn't seem to be doing anything for me. I...
I use them and they are the only thing that reduces the bleeding for me. I don't have any side effects, but they are hard to retain sometimes!...
yes, Remicade used to work for me wonderfully! it was like a miracle drug. but with this last flare that started in Oct it has not worked. had about 5 infusions with no changes. now i am on my 7th...
i am so sorry! it sounds terrible. i don't know about insurance and disability, unfortunately. if i wasn't on my husband's group insurance plan, i would be screwed! i called blue cross today to see...
i weigh 155 and i was taking 100mg/day. i stopped about a week ago and will see my doctor on Monday. i know he will want me to start taking it again. maybe i should just increase it instead. i just...
i know that flu symptoms are a side effect of Remicade, although I have never had that side effect from Remicade. if the Remicade is working for you, I would continue the infusions but wait for the...
Yes, it is definitely a flare...i just meant that i was on it before the flare, on it for 7 months during the flare....so it doesn't seem like it's doing any good....so why stay on it???...
yes, of course i will be talking to my doctor about it...i just wanted opinions from others to see if my line of thinkning seemed logical....
Hi - just wanted opinions on whether or not I should continue taking Imuran. I have been taking Imuran for about 8 years now. At one point in my life, I think it helped to keep me in remission. But...
bump up the prednisone and start the Remicade ASAP!...
yes, i had c-diff. my flare started in Oct 2009 and my doctor decided to do a colonoscopy in Jan 2010. after that the colitis was so bad that i was hopitalized. they tested me for c-diff in the...
hi lynn, i have been on a gluten-free diet for 30 days now (strict, with no cheating). i have not noticed a difference in my UC symptoms, like the bleeding and diarrhea. but i do think i feel a...
As far as I know, the only way to get rid of Moon Face is to get off prednisone. But if anyone else has any ideas i would love to know too! I hate Moon Face!!...
When I first started Remicade it was like a miracle drug for me. I wondered why had I had been avoiding trying it for so long because it worked so well. It got me off of prednisone and I maintained...
Burli: I weigh 160 lbs. Before my flare-up started, I was on 100 mg of Imuran. I have never stopped it. Right now I am still on Imuran 100 mg per day. My doctor has not increased my dose. I would...
thank you all for sharing your experience! in some ways it made me feel better that I'm not the only one going through this....but also sad that so many are suffering. frickin' colitis sucks! my boss...
thank you! will try the vanconmycin! flagyl does suck!...
my doctor had me on FLAGYL for a week for C-Diff and my symptoms were not improving so he switched me to Vancomycin. has anyone had success with either of these drugs or experience with these drugs...
this post made me laugh! i totally know what you are talking about! good for you!...
Is it just me or is it hard for anyone else to work while they are having a bad flare-up?? i work in a tax and bookkeeping office and i feel so overwhelmed by work (physically and mentally). i have...
I understand what you are talking about when you say "when will this end!?" i have been flaring since the middle of October, with bloody stools and abdominal cramping all day long! i just got out of...
Hi, My flare-up started in Nov 2009 and my first two Remicade treatments have not worked, as they have in the past. I am also on 60mg of prednisone but still have alot of symptoms and pretty...
Oh thanks, that is great to know. I wonder about my doctor sometimes as he is not very informative. He insists that I space the Remicade 8 weeks apart but my symptoms are pretty bad with alot of...
Does anyone know if you have to be on Azathioprine for Remicade to work? I recently stopped Azathioprine and my first two Remicade infusions have been unsuccessful. I just wonder if it because I am...