good luck Penny! my best advise is to take probiotics to counter all the antibiotics they'll be giving you. and get moving as soon as they allow. it'll be bad at first but the pain subsides and the...
This forum was increadibly useful to us and is absolutely full of experienced people with helpful info. i learned vastly more on here than from all of our other sources combined. Thank you...
he usually goes to the toilet a few (3-4) times in the evenings and throughout sleep. it's almost always consistently "thick" not formed, but sometimes loose and watery. it doesn't hurt, there's no...
yesterday marked the 2 year anniversary of Christopher's colon removal and i am so happy to say that my baby is doing good. he is colon-free, disease-free and medication free. he takes a multi...
My son had surgery 11 months ago. He had c-diff a couple of times after surgery. make sure your daughter takes probiotics while in the hospital. My son also has had pouchitis a couple of times. He...
the daughter of someone i know had toxic megacolon as a baby and had most of her colon removed in china before being adopted and brought to the USA. she was still having problems with the remaining...
pizza was always an issue for us before surgery. i always assumed that it had something to do with the acidic tomato sauce and or the bread....
make sure you take probiotics with all the antibiotics they're going to give you after surgery. have someone competent to listen and pay attention when the nurse is explaining how to care for your...
UC and C-diff can often go hand in hand. my son had c-diff at least twice. vancomycin was the only drug that worked for him. your daughter should be taking probiotics (to battle the c-diff, replenish...
you may want to have your blood pressure checked also. if you can get erect but not stay erect you could try using a "cock ring" which will prevent the blood flow back into yourbody. you can find one...
oh, sue was refering to agt13girl's comment. oops. i wish we did know what gives people UC....
I don't have UC. my point was that we don't know what we are eating or how it affects us, which makes the saying "you are what you eat" a pretty scary prospect. none of the food groups are safe...
GGRRRRR! :)...
immodium works in the small intestine. maybe try one of the other anti-D meds that is specific to the colon? or maybe your inflamation has gotten worse....
watch the documentary "king of corn" they use bacterias to deliver the genetic mutations that make the corn more resillient and pretty. they also feed not "human food grade" corn to the livestock we...
this post makes me sad....
I was terrified at the thought of having a piece of my son's body removed, but i was even more terrified at the thought of him going on biologics, and or continuing the way he was. i didn't want to...
thanks suebear. i guess i just need to stay on him about going before he needs to. thanks notsosicklygirl.he is doing much better. he's currently exerting all of his extra energy by torturing his...
Chris is having trouble getting to the bathroom in time. usually what happens is that he doesn't even notice he needs to go until some gets out, then he clenches up and gets in there pronto. part of...
shingles is very painful....
it sounds like an allergic reaction. pred suppresses the immune response, as you lower the pred the response presents. the same thing happened to my son, which is how we discovered he is allergic to...
he had no pain, just D and lots of seepage. not much appetite either. had some blood and inflammation from the chronic irritation. and his scopes looked more like infection than ulcers... it's been 5...
there's not much better than a good poop. it's kinda like winning the lottery. it's funny though, with all the hard times and let downs he's had, i'm a little nervous about thinking we've finally...
Thanks ya'll! worriedmom, he had his surgery in one step last november. he does not have a jpouch exactly. in young children a surgeon can pull the small intestine down and connect it directly to the...
so after months of cycling through antibiotics and scopes, with myself being sure he had an infection and the GI saying it was likely Crohns, we have finally concluded that he has/had pouchitis...
you can get an antifungal cream or powder at the pharmacy and give it a try. my son often gets yeast infections on his bum from antibiotics. there are OTC antifungal treatments for things like jock...
Kiwi, How is wanting to be cured not optimistic? Mumbai, My son had surgery last november, he now has no UC, no excema, no anxiety, no joint pains, no poop pains, no blood in his stool, no...
low and behold...starting flagyl and lowering the steroid is helping. still not back to where he was before the steroids but way better than just a few days ago. they still can't figure out what is...
could be. it's definitely some kind of infection. either bacterial, fungal... maybe yeast too....
just talked to the CRNP. she seemed really concerned and said that she would look into what other types of things (infections...) could be causing his problem. she's also supposed to page the GI and...
he had two positive tests for c-diff at the beginning. all the rest have been negative. the infectious disease dr even did some special cytotoxin and DNA tests. his butt looks like flesh eating...
steroids always knocked his UC right out. that was the only drug we had any success with. he had a cdiff infection 2x's after surgery and then "it" just kept coming back. the vancomycin always worked...
this is not exactly UC related, but i trust some of you will have some insight for me. long story short chris is still having problems with some unknown intestinal issues. i think it is some other...
Help! I finally gave in and gave him the prednisone the GI prescribed. in five days he's gone from his only symptoms being liquidy poop and frequent very small clear watery leaks---- to full blown...
the GI said she'd like to know if we see red, black or white mucous. red and black i can figure out, but what's white mean?...
Hi ya'll, looks like i may become a transplant from the UC forum. a little history: my son had UC since birth, increasingly severe, didn't respond well to meds, total colectomy and pull through last...
you can buy actual black henna hair color from an ethnic/indian food store. my mom used it for years and years to cover her gray ( we also have dark hair). it always worked great for her. but i think...
we've had more false negatives than positives when testing stool for c-diff toxins. i don't trust those tests at all. what did the scope pics look like? chris' c-diff looks like fuzzy white patches,...
well we learned nothing at our appointment today, just got refferred to the infectious disease Dr. the FT has a very high success rate for c-diff and can be done in the comfort of your own home, but...
my son has reccurring c-diff infections since having his colon removed last november. the Flagyl didn't even touch it. we've been cycling with vancomycin and while he's on that he's great, but when...
neat-o! thanks for sharing....
chris and i always cheer for good poops! and even as a normal healthy pooper, i always check before flushing. have all my life. easiest way to be sure everything is going along the right way....
we're in southern alabama, where the weather is warm and everyone is a sweetie, darlin or sugar, and the gardens grow easy. the only problem here in the bible belt is that some people are very...
either way you go you're having to make a choice that your child may hate. i decided on surgery because it was a better option for my child. his disease was severe enough that it was preventing him...
don't be afraid of the surgery. it is a life saver for many, my son included. the doctors may feel that your son will need surgery eventually, better while he's relatively healthy than in an...
My son's GI suggested probiotics but changes the subject when i bring up other alternatives. just try to sound confident when telling them what things you want to try and not try. the dr.s may know...
they tried to treat with flagyl in the hospital, but it didn't do a thing. vancomycin is the way to go, but yeah, it is CRAZY expensive. i think the surgeon's plan after the vanc is to do some FT in...
5 days into the vanc and he's doing tons better. his poops are even starting to get more dense and form a little pile. we just gotta figure out how to kick this infection for good. we have a visit...
so i hope chris just has c-diff still. the GI wont believe it because the stool tests keep coming back negative. she wants to treat him with steroids as if he has crohns even though there is no sign...
you know your child has UC when you can answer the question, "mom, where's my poop?" with "don't worry, it's in my purse."...