Unfortunately, none of my specialists seem to have a portal nor does the hospital itself. It's a major hospital but like most hospitals, it's incredibly low tech. They have nurses but they don't...
Thanks for the advice. The surgeons originally lanced the abscess internally and then I had another abscess which had to be drained externally a week later (then yet another abscess months later...
I had a nasty abscess several months ago that had to be drained and it came back about a month ago, but drained itself that time (externally -- through the previous incision in my butt). I actually...
I lived overseas for ten years where I was diagnosed and re-diagnosed with UC via biopsy (IIRC) in two different countries. I was also diagnosed with ulcerative proctitis back in 2004 or so. Since I...
Turns out it wasn't a fistula after all! I'm new to all of this so I just assumed it was, but the nurse at the clinic I go to said it was just another small abscess in the same area, which is a far...
Thanks for the replies. I ended up taking it, for most of the reasons above. I didn't want the Humira to lose its effectiveness and I wanted to nip this fistula in the bud any way I could. As for...
Until recently I thought I had Ulcerative Colitis but after getting a huge perianal abscess, a lot of my doctors began to think it was actually Crohn's. I've had UC for about 15 years now with most...
Garlic fingers: http://en.wikipedia.org/wiki/Garlic_fingers Here are some with donair sauce: http://eatthistown.files.wordpress.com/2012/08/pdfingers.jpg Damn, this is making me hungry! :smile: We...
Remember that the obesity rate in Nova Scotia is lower than around 45 American states (yet higher than most Canadian provinces). We're not that bad :turn:... We just eat weird stuff! Like donairs and...
Hey! I'm from Nova Scotia, born and raised. I lived there until I was 22 before taking off overseas. I still visit home every year or two and partake in the food. No, we're not the kind of people who...
It's so weird. Since the beginning of this flare, cramping and urgency has been a really horrible nuisance, worse than ever before. During the night I was going to the bathroom 10-20 times and then...
I started flaring a few weeks ago and made a post about it after being hospitalized. I had been going to the toilet 35-30 times a day, usually to have small, unformed, bloody craps with the...
Thanks for all the feedback guys. I keep leaning back and forth on this Remicade thing but at the end of the day there are just too many risk factors--I'll wait until something else comes along and...
Does anyone want to take a stab at this? I would really appreciate appreciate it....
Hi guys, It's been a long time since I posted here. The last time I had a major flare up was when I was living in Japan back in 2010 and I ended up being hospitalized for three weeks. I still live...
TMI I'm on the toilet right now. :smilewinkgrin:...
I just made a post and had to switch over to IE in order to click the submit button. The submit button doesn't work with the new Firefox, it would seem......
Hey guys. My doctor here in Korea really wants me to start Remicade. There is a policy in effect that after they put you on Prednisone and you're still flaring, then they put you on Imuran and after...
Once on each temple and once on my cheek thus far......
Well, I'm still flaring. Off of prednisone and having yoyo symptoms (under control one day and flaring the next and so forth). Lately I've been getting some bumps on my face. They come and go and...
Thanks for all your support guys. Its strange, I bled a lot yesterday as it was my first day off of prednisone, so I took two enemas last night and made myself sleep ten hours. I had two normal,...
Bad news: I've been off of prednisone for less than a day and I'm already bleeding a ton. I'm going to make an appointment. I went from having normal stools to practically nothing but blood in one...
Well, I just got taken off prednisone. I'm on the train home from the appointment now, actually. For the last month I've been on 5mg and have had some mucus, some blood and some gas. The blood was...
That's another question I have, actually. I have 2g Salofalk enemas (about 300 bottles of them). In Canada, I use 4g enemas but here the maximum size they come in is 2g and most people use 1g. What...
I've tapered down to 5mg of Prednisone and the flare is coming back, it would seem. My stools aren't that bad despite some mucus and the occassional bloody mucus. What is weird is that I'll have a...
Not really sure if this is a sign or not. I'm down to 5mg of Prednisone. I feel alright, am getting lots of sleep, I'm eating well and I'm taking multivitamins/calcium alongside my 5mg Prednisone,...
I just started developing a rash on my forearm. I have been on prednisone for a few months now and have tapered down to 10mg (going down to 5mg next week). I've heard that I shouldn't have any side...
My grandmother has IBS, her kids got nothing and my sister and I both got UC....
Someone else suggested Weight Watchers. That's actually a very good idea but I believe you have to pay for it. Instead of using calories, Weight Watchers teaches you a pretty handy point system...
Don't listen to anyone advocating a fad diet. What you need to do is exercise, specifically jogging/running. I lost 100lbs in one year by jogging every day and changing my diet. I stopped eating meat...
I'm still having issues with my jaws and with my eyes. I started taking calcium a few days ago and have been getting a lot of potassium since I've been on prednisone but I have no idea if calcium is...
I live in Korea now and was in Japan before (and Korea again before that) and it's never been a problem, although both of these countries are first world countries unlike Nepal or China. Because of...
When my energy levels plummet and I just don't "feel right." I haven't had enough flares to be able to pick up on it right away but that was what happened when my last two flares happened....
Whatever it is, it's gone. I was in horrible pain for one night and then the next, it wasn't nearly as bad (barely even noticeable). Gas? Maybe there was some blockage? No idea. My BMs are fine too...
Thanks, songlady. It's morning now and the pain is gone completely. It might come back, who knows. If I have it again then I'll probably go to the doctor and see if it's kidney stones. It's not a...
Thanks for your quick reply. I'm going to make a doctor's appointment tomorrow. It wasn't that quickly, I should have been more specific: I started with 30mg for two weeks 20mg for two weeks 15mg for...
It just started a few hours ago. It comes and goes. It's coming from my left colon and when it comes the pain is so sharp that it makes me sick (I vomitted once). After ten or twenty minutes or so,...
It's hard to be a non-drinker. People just don't understand. I'm 26 which means I'm not only the only non-drinker that I know, I'm also the only non-smoker that I know. Sometimes people get really...
This a huge issue for me. Just look at all my recent posts if that's any indication. I have GAD (undiagnosed), ADHD (diagnosed), OCD (diagnosed) and UC. My sister has the same illnesses but even more...
Thanks for the feedback, notsosicklygirl. My sister has ulcerative colitis too and she's been on prednisone for years. I called her and asked her about these symptoms and she said she had a lot of...
I mentionned in another post about how I'm having eye problems that I think might be related to prednisone. The corner of my left eye is swollen (a small amount) and feels strange. I've also been...
Thanks for the advice everyone. I'm in the way back from the GP now and he put me on some anti-inflammatories for the eyes/jaw. Hope that will help. If it doesn't he told me to see a dentist and then...
Who should I see about the eyes? Opthamologist? I've never had problems with my eyes in my entire life so I'm not sure....
Thanks for the advice, everyone. To be honest, I was really scared someone was going to reply and say: "this isn't related to UC--we don't know what's wrong with you" which would make me feel really...
Thanks for the quick reply. I want an MRI on my head and my whole body! Unfortunately, every time I push for a specific treatment doctors in general seem to get a little bit touchy and they seem...
I've been having weird symptoms for months now, long before I started prednisone. I've been having problems as far away as a year and a bit ago. I've spoken to numerous doctors about it and have even...
:confused: Hey guys. Been on these forums a lot because I have Ulcerative Colitis. I quit smoking in January after moving to a new city and starting up a new life. Quitting smoking gave me a major...
Sage words. It doesn't sound new agey at all, either. Every year, the medical community learns more and more about how too much stress impacts us physiologically and how mental dispositions can...
I'm going to get to the root of my problems long before I consider Remicade. It is something to consider down the line, not right away. I'm going to be seeing other doctors over the next few months...
Thanks for all the advice and encouragement, everyone. I had an appointment with the gastroenterologist today. I'm fairly happy with the results. He decided to drop my Prednisone from 30mg down to...