I started taking VSL#3 a few weeks back, about 4 a day. I can't afford to see a GI so I was hoping someone could tell me a good dosage to take for severe UC. I ask that knowing that I should see a GI...
I have somewhat of the same problem, I have to sleep on my back and if I move, I instatly have to use the bathroom... its been happening for years and I never get a good nights sleep BUT the only...
Has anyone heard or tried this?? A german woman I met the other day wrote the site on a napkin and said to go read it. It healed her but she just wanted me to read it. I'm curios, will probably try...
did this work??? please let me know if this has worked for anyone. I'm going on 9yrs of this "shit" everyday. all I take is pain meds and probiotics (probiotics as of two weeks ago). Feeling like I'm...
thanks everyone. @Shauna_m what is "elemental formula"?...
I lost my health insurance over a year ago now, at that time I quit taking all meds I was on because I couldn't afford them. Lialda, entocort, prednisone, and a few others, nothing really changed...
I used to get the iron infusions when I had healthcare but the ER won't do them so I can't anymore. My GI told me once that even when you can't see any blood, you're still losing it. I don't know how...
thanks for the helpful info... I almost passed out twice last night so an ER visit in most likely in store for me in the next few days. @subzeromambo is there anyway I could ask you a few questions...
OHHHH!! what I wouldn't give to eat a good pizza without the consequences. And I've never been a fried food lover but since its bad for me now, I crave it. Burgers, INDIAN FOOD, and most of all.......
I am so weak and tired lately, faint and lightheaded a lot too. I was wondering if anyone has any good ideas on how to help that? I have constant diarrhea so I'm trying to drink lots of water for...
thanks for all the good info everyone... I would love to stay med free and not lose my colon. still on pain meds but at least its just that with few side effects. Does anyone have a good energy blood...
I have had UC for going on 7 years now and have never been in remission, I think I've forgotten what a normal poop even looks like. I've tried so many things and had hope in them all, but most were...
very very normal :)...
I feel for you. I started imuran a few months ago and although I'm doing a little better... my hair is falling out bad and I get intense headaches, I also have arthritis and stilll no solid bms. I'm...
I have been on imuran for a month now and have just started experiencing hair loss about two weeks ago, it is progressively getting worse and my hair is noticeably thinner. I am seeing the doctor...
@baconeggsyum: I would love to try taking all those things but with basically no income I don't think I could afford them long enough to see results. I have seen natropaths in the past but usually...
@toughenough: did you try remicade before you opted for surgery? if not why and if so did you have problems with it?? thanks -ryverwise...
I love popcorn and eat it sometimes but it really tears me apart, I wish I could eat though. thanks for the great advice everyone, I will be off the prednisone soon and hopefully forever....
sorry, healingWell blanked out the last letters of Ashke- n-a-z-i for some reason, but thats what the spelling is if anyone is interested in doing research on it....
just a bit of interesting information that I want to share... my dad recently had blood work done to find out our ancestry since UC and crohns run so strong in our family. He found out that we our...
Glad to hear some positive feedback on imuran, when I was first told about it by my GI I went home and online to askapatient.com and looked at what "real people" had to say about the drug, BAD IDEA....
thanks for the responses. @fruitgirl: I haven't noticed a difference at all, if anything my flare is getting worse and I may need a blood transfusion. I have always gone a little slow but that was...
I know I should see a doctor for this advice but I won't see one until the 21st and I'm also the one who dosed up on the pred from 4mg. so a doctor would probably give me hell :) I'm taking 10mg of...
you could have inflammation in your mouth. my GI said that you can get UC or crohns clear into your throat and mouth, even your eyes... maybe thats what it is?...
Kate22: I do take prednisone, I've been wavering between 10mg to 2mg for almost 2 years now, currently taking 10 and that is as high as I can and will go. the highest I've been on was 60mg and that...
I've been taking the max dose of Lialda for over 2 years now, my hair isn't very healthy but that is because of the colitis and being malnourished, but no hair loss caused by the lialda. I do have...
I do realize that 10 mg is a ridiculously low and lame dose, I agree that it isn't doing much for me because I've been on it for about a week or two now and I'm still in full flare. I just can't...
@LONIE: what was your bad reaction to remicade? It has been approved for UC? I recently heard it was only useful in crohns. Thanks for the positive post, I am considering taking remicade to imuran...
thanks for the quick responses. SHERRY: I can't eat anything solid because it hurts so bad to pass and I immediately have pain and need to use the bathroom, lots of blood and D. I guess I just...
Thanks for this post, it feels good to hear someone else that is my age talk about all the things we go through with this disease. Needing to know where the bathroom always is and not being able to...
for the first time I am going to give into one of these "big time" drugs. I am very, very scared. I'm only 24 with no kids, good skin, and a great immune system, which would all be in jeopardy, but I...
Is there anyone out there who has the will power not to eat all the time on prednisone? I asked my doctor if there was an appetite suppressant that I could take while I'm on prednisone because I'm...
sorry it took me so long to reply, I can't figure out how to get an email when someone responds, but thanks for writing back. what I mean by never been in remission is that I have never had a good...
I miss my periods all the time due to being anemic or at least that is what I thought... But since you mentioned it, I have also lost my sex drive since I was diagnosed, have you been able to do...
I am 24 years old and was diagnosed with pan-colitis almost 6 years ago, they have always said and thought it was uc, but can you tell me why they changed your diagnosis? that is sort of scary. I too...
honey! if you can tolerate honey than you should definitely get a big spoonful of it, I have the biggest sweet tooth and can only eat honey sometimes, but it really does the trick. there are these...
I have been having a really bad flare for the last couple of weeks and have developed the most painful hemorrhoid. I've tried tucks, baths, preparation H, and hydrocodone. I need to be taking my...
Moon face is one of the worst prednisone side effects for me, I get it at just 10mg and the higher the dose the worse it gets :( But once I am down to 5mg it goes away almost completely. good luck...
does anyone have any helpful suggestions to relieve painful bloating. Besides seeing a doctor or taking pain meds :)...