I was diagnosed at 14 in 1979 and am now 45 and I agree with Sue the variables are massive and no one appears to have the same experience with this ghastly illness. Personally my Uc has deteriorated...
Hi there, I have a lovely daughter of 20 who thank goodness doesn't have UC but I've lived with it for over thirty years myself after I was diagnosed at 14 so I have some understanding of the...
Hi there I don't know the answer to your question as we all respond differently to pred. I have had UC over thirty years and have lost count of the number of pred tapers I've done in that time...
I Had a couple of horrendous experiences with this stuff myself so I completely sympathise with you. They usually ask you to stop drinking at least a couple of hours before the procedure so in the...
I'm from England and I live in a village about 50k north of London. I love England and can't imagine living anywhere else (although I love to travel and adore Italy). The main downside here is the...
I've taken sulfasalazine for 30+ years. I was given the non enteric coated ones a couple of times and they gave me really bad acid reflux and upset my stomach. I've never had any problems with the...
kiolm Your disgraceful post really doesn't justify any response. Suffice to say I too have had UC probably more decades than you have been alive and find it appalling that in order to court...
I'm in the UK and have used budesonide enemas lots of times. I found them much more effective than the hydrocortisone enemas and had no side effects or problems when coming off them even after using...
Hi I just wanted to offer some support. I'm, so sorry you're faced with such an awful dilemma and it sounds like it is being compounded by conflicting advice from your doctors. Your GI who's trying...
The one I had was cartons to drink and called elemental 028 made by shs nutrition. I live in England and I don't think they're commonly used here for UC they are more often given to chrohns patients....
Whenever my gut needed a rest I have used elemental diets as opposed to ensure. There is almost no residue with the elemental and I found it generally effective in giving everything a chance to calm...
Mackster, No never as long as a year but on occasion for several months at a time. I've almost always used them as an extra assault on the uc when its bad and have often used them whilst on oral...
Hi Mom Firstly I know exactly how your daughter feels. I was diagnosed at age 14 (back in 1979) and its a tough diagnosis at any time let alone in adolescence. For me in the past remission was always...
No, I'm sure I meant to say SC Diet as in 'Specific Carbohydrate' Diet :wink: I'm sure there are hundreds of posts on here about it so I won't add to the controversy as from what I've read it very...
Hi I've had uc in excess of 30 yrs and during that time have used hydrocortisone enemas and in more recent years entocort budesonide enemas and have never become dependant on them. If they caused the...
Hi there I've had uc since I was 14 in 1979 and have had 3 pregnancies at age 25,27 and 30 and different experiences with each. I was in remission when I fell pregnant each time as in my twenties my...
Glad to report much better today and normal bm this morning. Maybe it was just a pocket of trapped gas causing it after all. Anyway I'm now just delighted its over and done with and more importantly...
Thankyou for your replies. I haven't got a fever and have spoken to my doctor who seems to think its not likely to be related to the scope...funny coincidence though. I've always had the usual...
Hi everyone, I'm a newbie regards to posting but have been reading your forum for several months and find it fascinating and really helpful. I could do with some advice please and wondered if anyone...
I've had uc (pancolitis) 31 years and experienced very severe flares like you describe. Sipping water and just moving in bed have sent me running to the loo with appalling diarrhea and bleeding and I...
My first post on here but saw the thread and had a look! I've had uc more than 30yrs (since I was 14) and have had 3 children (19,17 and 14) All 3 were vaginal deliveries and pretty much problem...