At the end of August, I had the first surgery done where they made the Jpouch w/ temp ileostomy. Due to insurance reasons, I couldnt afford the other surgery until it lapsed over to this year. I just...
@Somedude: I've had UC for roughly 10 years. Dealt the first half of it on Prednisone/Sulfasalazine with multiple accidents. The other half I was able to get insurance through the state of California...
Thanks Ill try to go through a few pages of threads and learn. I visited the Convatech site earlier and have a better understanding of how pouches work now and the different types there are. I also...
@somedude : I had a WRX (2.0L) but sold it and now drive a FXT. Handles better than an STI and is tuned/modded to go faster as well. @ByeByeUC : Thanks for your response. Its always nice to hear...
indeed hence why Im raising the white flag and getting rid of my colon...
I normally post on the UC forum but figured I would likely get a lot more first hand advice here in regards of what to expect post surgery. Im scheduled to have my colon removed Aug 31st. Any tips in...
Im finally getting rid of my colon. The first surgery is scheduled Aug 31st. Im wondering if there are things I should have on hand after the surgery? (different types of bags, foods). Never had...
I normally took all my Imuran in the mornings with my breakfast but tried to take it at night for two days and it didnt help at all. The nausea is there all day and weakness as well. Didnt take any...
Long story short, my surgeon wanted me to exhaust all options before going under the knife since Remicade isnt doing its job anymore after a month or so. My gastro recommended high dosage of Imuran...
sulfasalazine is cheap and is basically asacol with a toxic (sulfa) component. side effects can be headaches/migraines. ask your doctor, i was on it for a long time before moving to asacol when i...
I thought there were people on this forum that found a way to get it covered by insurance. It was a script for the extra strength version of VSL. Was I imagining this?...
My libido was definitely not where it should be and i was having issues with keeping my soldier up. I blame it on years of medications but who knows, maybe its genetic. Anyway used it a few times...
I was on pred for 7+ years and the bloating is there on and off. It'll probably take a long time for the body to adjust but you're also pinning and on other meds so who knows. As for Cialis, I just...
Wow I'd jump at the chance you have to take it. Consider yourself lucky that your doctor is willing to prescribe you this stuff. With normal test levels you will feel a ton better and the HGH will...
I can definitely relate to that. The diarhea bit is very annoying especially when you have a job thats active. This time around I took the taper very very slowly and added homemade yogurt...
Ive had a ton of side effects that I think are due to the long term Prednisone use but I cant be sure if thats the only culprit. It could also be from having UC for so long plus all the other...
Ya I've only cut it down from max dose because I was seeing a lot of pills passing through my stool. That and Ive had massive hair thinning and this seems to have taken care of it a bit....
Initially I didnt understand the side effects of the Prednisone and didnt have insurance so I was prescribed Prednisone and Sulfasalazine in high doses from a GI who runs his practice with a lot of...
A lot of the damage long term prednisone does cant be seen. You'll certainly feel it down the line though. I would think anything more than 6months is unnecessary. If I had known the stuff I do now...
Been having lots of joint and muscle pain since last year but Im kinda used to it now....
Been a long time since I've been off Prednisone and actually feeling ok in regards of having to go to the restroom and the anxiety involved with it. Dont want to jinx myself but this really feels...
Ive personally not read about many benefits of Anavar at low doses. Most guys cycle it at 80mg and above. I doubt a GI will ever prescribe you a high enough dosage that requires a PCT though....
Thank you. What did it cost you to get a prescription for it also? I've heard the hrt/trt clinics are the only ones that will write it and they charge a lot. I can see myself taking it for a few...
Im actually very interested in taking GH as well but havent done the research because Im not flare free yet. Whats the cost like? Ive been on Prednisone for 8yrs so I think it would be very...
From what my doctor told me Asacol is basically just like Sulfasalazine with the Sulfa component taken out. Apparently Sulfa is the toxic component that can cause the headaches. Maybe you're just...
I think everyones UC is different. For some diet plays a big role in remission and for others it doesnt do anything at all. I can drink with minimal to no issues but beer tends to give me bad gas...
The joint pain and mental stress of this disease is very normal and takes time to learn to deal with. I use exercise as a way but I understand in your situation exercise will probably be impossible....
When I went to the ER, they gave me vicodin and sent me home with a $5000 bill twice. Call your specialists office and tell them you're having massive discomfort and going to the restroom with blood...
On prednisone its very hard to gain muscle mass since its a catabolic drug. Ive heard it causes muscle to break down and stops muscle growth from several reputable people in the bodybuilding...
what other meds are you on? how old are you? whats your uc history? bad headaches/migraines for me were related to sulfasalazine. I used Moltrin even though we're not supposed to and it did the job....
Every medicine and treatment has its downside. It comes down to picking your poison....
Looks interesting and I would definitely try this if it werent for the cost. Cant afford to pay that much when Im paying 350$ a month already for health insurance. If you get sick to the point where...
Long term prednisone user here. roughly 7+ years. Im active, lift regularly and work full time but I would not recommend going on prednisone. If I had a redo, Id have gone on Remicade right away or...
same can be said for those of us using biologics. everything has its risks but as long as it makes your life manageable and you're ok with it, i dont see the issue with it. thx for posting your...
I work 6 days a week ranging anywhere from 8-12 hrs although I only get paid for 40hrs so Im forced to rent at home. Job is understanding because my father is my boss. Im thankful that hes...
I usually feel weaker and have no energy. Symptoms do return for a couple of days and then get better. I usually up my probiotics when weening myself in the form of homemade yogurt....
do you track calories at all? fitday.com is free and thats what i was using at first when i was cutting weight. you said you dance 3x a week. how long do you do that and at what intensity? everyone...
Its pretty sick that this guy got 15 million in donations over this hoax. Hes no different than the corrupt Hedge fund managers. The man should be arrested for causing public panic and made to give...
I take 2 Moltrin. Works well for me even when I used to get sufasalazine migraines....
vodka tonic works for me but i also socially smoke when drinking. while drinking and the next day there is no issue and even an ease of symptoms due to the dehydration. the day after is another story....
Tapering sucks and will kill your energy. Try to sleep as much as you can, it helps. For me forcing myself to lift and run is also making it a bit easier....
Hang in there. Its tough to find that one person that will accept you regardless of all your faults. I made a personal decision to not have children or get married. That makes it pretty tough to get...
Imuran didnt work for me and then i went to Remicade. So far its working, not 100% but 85%. Im just happy to be almost off prednisone again and not flaring....
I didnt have any success with Imuran and I was on it for a year....
Ive used cocoa butter for stretch marks in the past and it seemed to help somewhat. I think thats what some women use during pregnancy as well. Give it a shot. If nothing else it smells really good...
Hawaii/Tahiti or any other island. I love playing in the warm waves....
Limiting your salt/sugar and carbs in general will help the moonface. Ive taken pred for a long time and can attest to this first hand....
My family on both sides has no history of UC as far as they can remember. I did do some social smoking early on and I also got really sick a few times growing up where I needed about a months worth...
aha the sneaky button. thanks guys....
digestion and joints for me....