Hi All I'm starting a new job and switching insurances. Switching insurances is always the hard part because no one can give me a straight answer on how many supplies are covered or the cost...
Greetings I have taking on a new job which requires travel to foreign counties from the US.I have experienced going through the security screening in US airports and am familiar with the TSA...
I just had my first CT Enterography. I heard this was new technology. My last CT scans were in 2012. I'm experiencing discomfort in my lower left side and since my colon was completely removed I have...
I actually joined weight watchers and have the online app and go to meetings. They recently changed their focus from weight loss to healthy living. It's a great way to track your weight. Recently I...
I also posted this on the CD forum. Would like to hear from UCers as well I was diagnosed in 2010 with UC. For the next 2 years the disease was ruthless without full emission. In fact I kept getting...
Definitely was shocked with my diagnoses. People kept giving me the "deer n headlights" look whihc didn't help. These forums have really helped me. It's been 8 year since my diagnoses and 5-6 years...
Thank for responding Nice Cup of Tea. I am in therapy and been told I’m doing everything possible. I do have a healthy relationship with my husband. We’ve been married for 18 year plus 5 years...
I've been off med for 6 years but it appear the dram disease has come back as Crohn's. I have seen some new add on the TV but wanted to get a list of new drugs. The old ones were not effective for me...
I found out how to have my DNA results analyzed through www.promethease.com. I have DNA data from 23andMe and Ancestry.com I uploaded the 23andMe data and the results came out different. The 23andMe...
I was diagnosed in 2010 with UC. For the next 2 years the disease was ruthless without full emission. In fact I kept getting hit by major life events that kept triggering my immune system ( father's...
Great advice everyone! I feel more confident now. I'm thinking of packing some extra bags in a zip lock in the cooler just to make sure the adhesive doesn't melt...especially the brava modable rings....
Going to the Jersey shore for Memorial day week. Was hoping to get some tips on preparing for the beach and tackling emergency leaks ect. I normally wear a two piece Colopast SenSure Mio..it stays...
Ok I really hate wearing pantyhose with an Ostomy bag. Was thinking maybe a garter belt and stockings would work better, but I'm not looking for a sexy one. One I can double as an Ostomy wrap would...
btw...If you use Edgepark, please monitor your account closely. I match my insurance EOB of what I'm responsible for to what I actually paid. They seem to be off...sometime by pennies but it builds...
I don't have any particular issues at the moment but its just annoying that every time I go to my PCP they ask me if my GI is following up on my Ostomy. Also they still have UC down as a current...
Ok I've had my iliostomy since 2012 but when I have problems I get the run around. There's no such thing as an Ostomy doctor and the Ostomy nurses here by my local hospital do not diagnose and treat...
Hi Chris, Boy you got a crowd following your posts. I would get two opinion from different surgeons. Jefferson is good and also try Dr. Gearhart at John Hopkins. She told me all my fistula issues...
I agree UCwhat?!!!! I'm a heck alot better without the colon. If I have issues is minor to what I had. Overall I got my life back. Unfortunately the disease now makes me paranoid when I get a tummy...
I wouldn't put labels on it, Suebear. :nono: It just depends on how thick the lining is that separate the two areas. They are very close together and I wouldn't think diseases would know or...
I agree Old Hat! There's too many system boundaries the way this disciple is set up. If something flows into another area it normally get called something else. AndGYN wouldn't know the first thing...
quincy, what is your assumption based on? Hopefully I'll have additional information for everyone as I'm contacting my surgeon at John Hopkins to get a combo GI/GYN work up....
Yes it is scary when diseases cross over to another area that's covered by another discipline. I'm glad they found the fistula. They are hard to fine. I had three forming after my 1st operation. It...
Old Hat. You must have confused my post with your situation. This was to help heal the physical impact from my surgery...nothing to do with an illness. When the anus is removed the uterus slips back...
Just wanted to add a trick I learn from my Pelvic Physical Therapist. Yup..there specialized PT you can get doen on your vagina! I had it done due to impact from my ostomy surgery and having the...
I've posted to the ostomy board as well but they aren't as active as this board. It's also a mixed crowd over there as there are many reason for having an ostomy. Always like this board better as you...
She was diagnosed by a colon rectal surgeon. They couldn't find any fistula. Other than that when my colon was removed they first left the anus in, hence the term anal stump. The anus was stapled...
Hi there! It's been a while since I have posted. I had my colon removed in 2012 and thought that would be the end of it but still having some issues. When I had UC I also had canker soars in my...
Well got my test result. White Blood Cells were seen in my stool! Seem to be associated with UC and CD. :( Gee....what luck I have! WAaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa! Could use some...
Yup...the aftermath of surgery does take a while. Sometime I think they must have posed me funny ways for some FaceBook photo shoot! My issue was from the NG Tube being shoved down my throat due to...
Thank you Pluot! There's alot of speculation on this theory. I seem to be ok as long as I have food in my stomach. I'm going to call my doctor's office and get some detailed test results to give some...
Just came from the doctors. Getting blood and stool work done. It cant be a migraine is I have low grade fever. Hopefully the UC didn't change into CD. Seem to be happening more frequent now. I never...
I have migrant meds but they don't work for this. I did just take my temperature. It's 99.5 f. Also forgot to mention that my stool are looses and sometimes a mustard yellow color....hence the...
Greetings all! It's been a while since i posted but want to find out if this is connected to my surgeries. I had my 1st surgery in 2012 where my entire colon was removed but not my anal stump. Was...
I really hate this auto spell check. It change the drug name in the post topic. It's Venlafaxine HCL. Generic for Effexor It's an anti depressant....
I was on a 37.3mg x2daily dose for only 5 days and stopped due to severe headache and nausea. I felt better the next morning but then my day got crazy at work and I missed lunch. I had salmon for...
Is it what you are eating? Cereal is very watery to begin with. Try taking some Imodium. Maybe you got a bug?...
Well it seems like someone intervene! I go to speak with the poly office and now all my needs are met! Apparently they can do the test without the lower strap around the lower ab area. They will...
Well that didn't last long! By day 5 I was so sick I stopped. Felt better the next day, but then tossed my cookies two days later. Luckily my situation got better. I hate meds! I seem to be very...
I just started my prescription meds so taken herbals are out of the question as there can be reactions. It's not my ostomy that causing me issues it's the compounding of life events on top of it...
Got 2! Venlafaxine hcl and Alprazolam. :)...
Thanks VeganOstomy. I read that lorazepam (Ativan) is for panic attacks. I got a doctors appt in a few hours so I"ll add this to the list....
I have a personal situation in which is was recommended from my Doctor to take an anti-anxiety medication to help me through it. I have taken Effexor XR in the past before my ostomy but it's extended...
I looked at these but they do not fully cover the ostomy bag as well. I saw one in a magazine back in 2012 when I first got my stoma. I'm looking for a full covered one....
I recall learning of a shield that covers the entire bag and stoma that is used In sports such as karate and American Football. Can anyone point me to the website that has this product? Thanks!...
whatever....I didn't post to get arguments. Can the moderator just deleted this thread per my request?...
I've been on weight watchers and doing well! Almost lost my full 10 lbs! I use a scale that also calculates BMI. I have used this scale in the past Before my Ostomy days and got my BMI down to 18%....
I've always been a one drink gal....lol. I worry more about staying hydrated. For some reason mineral water works better for me than plain water....
Well it's not that easy. I got selected right when I got back to work after my second major surgery. It was definitely bad timing. My surgeon and also the PT folks deferred me for 4 months..with that...
Try coloplast Mio. It's grey which is a neutralizing color. It was specially design not to show under shirts...especially white. http://www.coloplast.us/sensura-mio-click-drainable-en-us.aspx ...