My first go around with 5asa's was about two months before I reacted badly. Doc took me off because my liver enzymes were dangerously elevated. I was having problems with diarrhea, etc but I had...
My GI has always gone into the end of the small intestine for all of my scopes. Perhaps your GI does want to rule out Crohn's but maybe he or the facility has just changed their policy regarding...
I had shingles last spring while I was on 30mg of prednisone. Mine weren't too painful so I was lucky but they did leave scars. They are the same color as my skin so not very visible but just raised...
I had the same experience last december... colon was beautiful but I had mild inflammation in the terminal ileum. The GI suspected crohns but the biopsies came back inconsistent with crohns-typed...
I was having some back pain last summer and my doc prescribed me a topical antiinflammatory after I voiced my concern about NSAIDs and UC. It was called Voltaren Gel. She didn't think it would have...
While I'm excited to be graduating I'm also concerned because I have not yet lined up a job. Trying not to let the stress get too severe as to affect my UC as I'm currently feeling the best I have...
I am now a college senior living with UC. I didn't have it as an incoming freshman but my symptoms hit the summer after freshman year. Here are my suggestions. - Living in the dorms was a godsend for...
What are you mixing the miralax with? I mixed mine with gatorade and the miralax didn't seem to alter the taste of the gatorade at all so it actually tasted pretty good! Once I got toward the end of...
I had coccyx pain very briefly a couple of months ago. It only lasted a couple of days. It was a very strange feeling because it didn't feel like it was coming from my colon at all - it really felt...
I've seen that clip they used once before but I can't place it... it may have been on MSNBC. Regardless, loved Colbert's commentary and the fact that fecal transplant is gaining notoriety among the...
Thanks for the replies. Yeah I'm a bit confused because at my last scope my entire colon was inflamed - very distinctive UC-type inflammation of just the mucosa. My GI at the time sent me home with...
So the sedation is finally wearing off but forgive me if this message is a little jumbled. The doc says my colon looks completely healed which is good new however the very last part of the small...
Thanks for all the replies! I picked up some goodies from the grocery store tonight to get ready for tomorrow. Lemon ice is a great idea...! Never even thought about it. I have a weekly thursday...
I have a colonoscopy on friday and so thursday is an all-liquid day. Yay! (sarcasm) Anyone have any recommendations for broth brands? Beef versus chicken versus vegetable? Any other suggestions from...
Thanks for all the replies! I got swabbed this morning and the rapid was negative for strep!! The RN I saw also said the spots didn't look characteristic of thrush which I was also worried about. So...
Ahhh the joys of prednisone... Thought I just had a simple head cold but I just checked out the back of my throat and there are a lot of white spots back there so I suspect strep throat. I'm really...
Troy I'm very curious to hear which WI GI is doing FT! I live in Wisconsin and I'm definitely interested in trying FT myself especially since my latest medication doesn't seem to be doing its job!...
Hi WI MOM! Thanks for responding! I'm currently out in Madison for school but my parents live about a half hour north of Milwaukee so Froedert would actually be one of my top choices. I'm happy to...
I've been seeing a GI for a couple of years now - basically since my symptoms started - and I'm actually quite fond of him. He's very quick to respond to questions (via his nurse usually) and he...
My mother commented a couple of times post-diagnosis that she thought my eyelids looked darker but she didn't specifically mentioned under the eyes though I thought they were similarly dark - not...
Wow I'm really surprised that your doc told you you would always have to go multiple times in the morning. Unless that was normal to you pre-UC I would think that should eventually become less of an...
I just went from 2.5mg down to zero two days ago and I am still feeling fine. However, your case sounds a little different than mine. I had no UC related symptoms when I and my GI decided to stop the...
I have been doing a similar pred taper over the past couple of months (30 to 20 to 15 to 12.5 and down by 2.5 from there). Today was meant to be my last day on 2.5mg. Unfortunately though I don't...
That is spectacular! Congrats! Truly an inspiring story for the rest of us!...
Keeping the thread alive! Dr. G, I was wondering if there has been any forward progress with the other guinea pig from Rochester you mentioned you were in talks with to do the FT via scope? (Eph I...
Very interesting... I didn't realize it wasn't all that common to get general anesthesia! I'm kinda a newcomer to this disease still but I've had propofol with my one colonoscopy and even for my last...
I am optimistic that it is indeed working! Its hard to say for sure since I am still taking prednisone and am surely seeing some benefit from that but I am at a point in my taper (10mg) where on...
summerstorm - I don't think it is fair to equate colectomy with removing a tumor or an appendix. Neither of those serve a purpose in the human body and the former is actually harmful. The colon, on...
Hey Pauly, great to hear things have turned around! I'm hoping for similar results from the imuran myself. Still working on my prednisone taper so only time will tell. Considering your question about...
I appreciate the subtle distinction you are trying to convey, q, and agree that it would be a shame for someone to forego use of rectal meds simply because they don't reach the highest of...
I think one of the trickiest things about this disease, at least in my own mind, is that part of me is tempted to throw every possible treatment at my colon until something sticks but I know that if...
Thanks for your responses all! InSoFla its encouraging to hear that you were able to use rectals despite being unable to tolerate oral 5ASAs. I see from your sig that they didn't work for you but as...
So here is my dilemma - I've tried a variety of oral 5-ASA's and with all of them I was immediately running to the toilet more often than usual (well...usual for UC) with massive amounts of blood -...
I am getting so excited following this thread every day! SAS definitely continue to keep us updated. Dr. G, I think it is amazing that you have been so willing to extend this opportunity to the rest...
How much prednisone were you taking when you started the imuran? I started my imuran a little over a week ago and I'm currently taking 20mg prednisone a day but I'm hoping to start my taper soon so...
I agree -- It would be interesting and helpful to know what dose the patients were taking. However since it does specifically state they were taking it for IBD I would suspect it wouldn't be out of...
I'm sorry to hear you're having such terrible side effects! I also just started azathioprine (generic imuran) but I haven't noticed any changes. Have you talked to your GI? I know a potential side...
I suppose once you figure out you're intolerant to mesalamines (as I am) there is not really any next step between that and Imuran. Its stressful knowing that I'm only 6 months into my diagnosis and...
turtle521 and others - I'm curious what you've been using as a maintenance medication for your UC up to this point? Had you been on first-line therapies (i.e. mesalamines) and they have just stopped...
Hi MomofNiko! Your son's situations sounds somewhat similar to mine. I too was diagnosed in Oct 2010 with pancolitis (UC of the entire colon). I'm a 21yr old female but was about 100lb at the time of...
From what my GI and I discussed it didn't sound like he had intentions of taking me completely off the prednisone until around the time the Aza would actually start working which means I would still...
Well this is my first post on this forum but I've been following a lot of the threads since my diagnosis in october. I apologize for the length of this post but I want to make sure you have to whole...