Just saw a website that can recommend good compound pharmacies. Research evidently has shown that not all are equal. I have been in remission now for 12 years....
I was originally prescribed by a homeopath doctor that is also an MD. Recently my regular doctor is the one who prescribes. It is made at a compound pharmacy as normal pharmacies do not stock it....
Started up the LDN again in May and still taking probiotics. Still in remission. Over 10 years!...
Coming up on 10 year anniversary of remission. Ready to hit 70 and still in remission state. I started taking LDN again, as my doctor said it wouldn't hurt. Still taking a probiotic. Love hot and...
I was and still take a probiotic. One that is refrigerated. The LDN I was taking was 2mg / day and was cut with acidophilus, which is in yogurt. I felt then and still today believe there was...
Glad to hear of your continuing healing. Are you taking any probiotics?...
Thank you for the reply Lanie. I listened to this guy yesterday https://www.youtube.com/watch?v=7nJgHBbEgsE&t=2183s and started to fast. Also stopped taking my metformin to see how this works. Have...
Another year and no signs of UC. My biggest problem is how big and hard they can be. Also very clean but that isn't a bother. Started taking some fish oil Omega 3, vitamin D and considering a...
Has anyone tried the supplement "Blood Balance"?...
Mark, That is great to hear. Glad for you. This is why I post every year. Great forum but you have to dig sometimes to find valuable info. By re-posting updates at least some others might find this...
I know you, IPOOP closed the discussion I happened to read. I periodlicly will update my post. You said you were sick and tired of 1 time posters with some marketing agenda. I assure you that I have...
Another year has gone by and oh how I love the Ghost Pepper Salsa. Poops are so solid and large, sometimes getting stuck, that I want to give them names. Thank you Lord. It was actually at church...
Read my post. I am diabetic and cured. I believe there is a strong relationship to sugar. I had also taken LDN. I was at my limit when God led me to LDN. I was up to 30 times per day no control etc....
The more I think about this and read other posts claiming to be cured I wonder how to change the title of my post to cured. I was criticized for saying cured years ago so put remission in the title....
Just got through with a nasty case of flu followed by Pneumonia. Had to take multiple scripts for different Antibiotics. I was a little nervous and semi resistant, waited 1 week to go to doctors....
Update. Have had a scope. There is some evidence of scar tissue. Otherwise all great. I eat Ghost pepper salsa, regularly, as well as whatever I want. Take the occasional probiotic, which reminds me...
Just as an update. Still doing great. LDN, Probiotics, Diabetic (controlled sugar) diet instrumental in my remission. I really notice my stomach growl when I eat a "crappy" meal....
Diabetes can give you these symptoms....
Thank you hateuc, me too. I was having mine made at a compound pharmacy in Tempe, AZ. Do not have any expertise on which is best. It took 6 weeks to "kick" in. My diagnosis was severe. My gastro said...
Not taking LDN anymore. My doctor said it would not hurt to keep taking but thought that I was doing so well that I would try without. Have been off of for years. Have to take occasional pain meds...
Thought I would give an update. I consider myself cured. I see some of the most inane things on line. One that just caught my attention said that the only cure for UC was removal of intestine. SAD...
I hadn't thought about this site for quite a while and just wanted to put out there how thankful I am for no symptoms. I eat whatever I want, although I try and for the most part eat around the...
If I hadn't had such great success with LDN I would have definitely, without blinking, gone for the fecal....
Gonk, Curious do you eat much sugar or any intake of alcohol?...
Mindoverbutter, was just updating this post and was wondering how you are doing?...
Quincy, Just changed it. By the way how are you doing?...
Actually a few months ago I had seriously strained my back. Tried doing it med free for a few days then decided that I needed to get rid of the pain. Stopped taking the LDN because of the blockage of...
Hopeful4uc, I was just updating a post I had originally put up that you had replied to and was wondering how you were doing. Went looking for you and found this thread, I see that you are doing well....
Hadn't been on the site in awhile and thought I would update the post. Still in remission. Eating now whatever I want which means raw jalapenos. Found a habanero salsa at the store that I like. Still...
Well I had a CAT scan, which they added for good measure, and the cystoscopy: nasty little test. They did not see any evidence of any fistulas, only an adrenal gland that is still in recovery mode....
Since going into remission I have now reintroduced salads and jalapenos/salsa. Love the stuff. No downside. I do avoid TOTALLY the pickled peppers that I used to use in everything prior to UC. :devil:...
Antibiotics and spoiled food....perfect storm...
Here is a little bit I found just poking around. I know there is more out there. Perhaps as you find information you can add it here. Dr Smith at Penn State could possibly know of other researchers...
Hi Portnoy44, You have had some serious challenges and I will pray that you are able to get relief and find healing. I do not know enough about LDN and some of your questions. I believe Naltrexone...
NY-Sooner, LDN was instrumental in my remission, was on it for about 1.5 years. I stopped as I was better and in my mind the less drugs the better. I have a long post on my remission but short...
mindoverbutter, Thank you for the reply. I hope things continue to get better. I agree that the less drugs the better. That is why I stopped taking the LDN. That is why I control my diabetes with...
Kyle, I think it is going to be quite different for most when it comes to diet. My diet stayed the same once I was diagnosed with diabetes. The thing that I stayed away from which seemed to make...
It took 6 weeks. My story is posted here: http://www.healingwell.com/community/default.aspx?f=38&m=2099301 You are right there is no one fix. You will read how desperate I had become. It was worth...
Andrina, I am curious why you have not tried LDN?...
Somedude, How long have you been on LDN? I apologize if you said and I missed it. It took 6 weeks for it to kick in for me. My doctor told me upfront it would take 4-6 weeks....
Hi TheKIT113, This is awesome with people sharing their experiences with surgery. The one thing I notice from the advice here is that people who have "tried everything" usually have not tried LDN. I...
babygoose, I am not sure why so many people have not tried LDN before taking extreme measure which I consider Remicade and surgery. I have had incredible results with the LDN. I was unable to find...
mindoverbutter, Thank you for the update. I will pray you continue to heal. Is there a reason you haven't tried LDN?...
There are a number of posts in this forum concerning LDN. Do some searches and you will find a wealth of information....
mindoverbutter, Stopped is stopped PTL. I am happy for you that you are off of the Prednisone. Is your colon healing?...
You say you have tried everything? Have you tried LDN. I just added to a post I have http://www.healingwell.com/community/default.aspx?f=38&m=2099301 and saw yours. This is on nasty disease. May you...
Have you thought about LDN? It may not work for everyone but I was going up to 30 times per day and was at my limit when I tried it. I hated Prednisone and am so thankful I gave the LDN 6 weeks. It...
Hi mindoverbutter, Thanks for the reply. Did they figure out how you got the bladder infection? I would like to avoid the procedure. Two years ago ago my doctor caught a mild bladder infection during...
Update: Here is my latest. I pushed myself a little too hard and had a relapse of the bladder infection and they put me on another round of antibiotics about 6 weeks ago for 10 days. Since then my...
I have a friend who has Parkinson's Disease. I usually post on the Ulcerative Colitis site. I noticed on the LDN site I referred him to that Parkinson's is listed. I was inches from having my colon...