I recall Azathioprine working well for me in the past. No side effects. Unfortunately, something was off in my blood work so the medication had to be stopped. If you go on it, make sure you follow...
I've tried high grade Manuka honey. It didn't help my UC at all but it sure did taste good :)...
I developed my UC around midterm exam time in my 1st year of university. However, I was on Accutane in Grade 12 and I feel as though that had something to do with the UC, as well....
Hello :) I failed Humira and was put on Remicade. Remicade worked wonders for me but unfortunately, after about a year, it stopped working. I didn't develop any antibodies, just the drug trough...
Hello Everyone, Just posting a VERY late update. I got on a medication to control my UC and the pain is gone now. I'm on XELJANZ now. My GI said he doesn't understand why I get this pain because it...
Thanks a bunch! :D...
Thank you very much! If you do have to start Xeljanz, I hope it works for you, too. A lot of doctors have told me that we just need to find that one drug that works for us. Hopefully, this is the...
Thank you very much :D...
Hello Everyone, I haven't posted in a very long time but I was started on Xeljanz in mid December so I thought I'd comment on my progress. Previously, I had tried the 5 ASAs, Imuran, Humira,...
Honestly, I have no idea. I didn't bother asking >.< I'll ask my hospitalist today and edit this reply with an update. Thank you for your well wishes! EDIT: I have slow gut motility (really slow);...
Thank you for replying! I'm going to give it a go. I really hope it works. Drinking prune juice sounds better than drinking Ped Lyte. Fingers crossed. Thanks again!...
I tried Metamucil. That's the same thing, right? If so, my gastroenterologist told my hospitalist (I'm currently in hospital) to stop it immediately. I was taking it every morning. UPDATE: I'm on...
I had significant hair loss when I was on Prednisone. I don't know the science behind it but that was my personal experience. Same thing happened to my mom when she was taking Prednisone. I also had...
Hello Everyone, I originally posted this under the IBS forum however, I think it's relevant here as well because I have Ulcerative Colitis. I've recently been diagnosed with IBS-C. I've had fecal...
Hello Everyone, I've recently been diagnosed with IBS-C. I've had fecal loading for months. My doctor has tried everything: ▪Sennokot ▪Ducolax ▪Pico Salax ▪Mineral Oil (oral & enema) ▪Soap Suds Enema...
Thanks a bunch, John! I'm going to bring this up to my family doctor. Told my GI and he said this is something the family doctor should handle. I think I'm going to have to push him a little more if...
I AM SO HAPPY TO READ THIS! I feel like one of us has succeeded! YAY! I have the same reservations regarding traveling. Reading your story makes me hopeful that one day I'll be able to travel and...
Hi iPoop! It's nice to hear from you again. Thanks for always responding to my threads. I did have a blood test done and my numbers were high. My doctor said that it's not a good indicator because I...
Hi Mike. I brought up what you said to the doctors and we're trying out some things. I'm on pantaloc right now. The doctor is trying something called Pink Lady, too? First time I've ever heard of...
I went to the ER. You were right. Stopped the pain right away. As you said, they can't seem to figure out what's causing it but the pain is a LOT better than when I walked into the ER. They're...
Local MM place? I'm in Canada. I'm in the Greater Toronto Area but I've never heard of access to MM being that easy. It has been such a difficult challenge to get any doctor to take the idea...
No, I haven't really looked at other GIs that have experience in IBD pain. My family doctor is prescribing the pain medication, not my GI. My GI says he's not experienced with pain medications so he...
Hello Mark, I brought up medical marijuana in the past (2 years ago when I was having this same kind of pain) and my doctor laughed at the idea. From the research I've done, it seems a whole lot...
Yes, I am extremely scared that an addiction could develop. Another reason, I want to stop using opioids but my pain is so severe. I'm so lost in terms of what I should do >.<...
Thank you for the link, Mike. The doctor has ruled out all of the reasons under the document. I do apparently have gastritis but the doctors keep saying that the level of my pain does not correlate....
Thank you very much for responding. They have checked other organs. I haven't tried acupuncture. It's something I would be open to but I can't even leave my house at the moment. A hot bath...
Hello Everyone, I am back again because I need your help with my pain. It is getting insane and I cannot figure out why. My UC is active but my doctors keep telling me that the level of my pain does...
Thanks for your comment and support, B! I really appreciate it :) The note idea is sounds promising, ay? :D...
Thanks a bunch, Sam :') That's a great idea. I'm going to ask him to write my GP a note if he thinks my mental health is fine. I'm going to ask him to really stress that in his note. Fingers...
Has your blood work been normal when you've gone to the hospital with this kind of pain? I remember I had to be taken off of Imuran. I went into the hospital with GI pain (not back pain though) and...
Thanks a bunch, Samantha. It was really upsetting when he told me to go see a psychiatrist. I feel like whenever this pain returns, he starts telling me that I'm stressed in life and that's why it...
Hey Sherry. He feels certain that it isn't Costo. I did a bone scan last year because of my Prednisone use and he said that would have picked it up. I do use a heating pad :D It kind of helps but...
Hi Matt! When I'm flaring, my sense of smell is heightened like CRAZY and not in a good way. I become so sensitive to smells and I can pick up smells that are quite faint to others. If I smell...
UPDATE: My doctor has no idea why I'm in pain. There doesn't seem to be a clear cause. He wants me to go see a psychiatrist to see if there is a mental health component so I will be doing that and...
Thanks a bunch for replying, Verucasalt2.0. I've made note of the things you've mentioned to discuss with my doctor. I hate taking opioids but the pain is so horrendous. I feel like I'm having a...
Thanks a bunch for replying, notsosicklygirl! I agree with you; the key is to heal the inflammation but unfortunately the inflammation won't heal and I need something in the mean time to cope with...
Thanks a bunch, UCjustsucks! A lot of people have mentioned Tramadol. Must be good stuff! I'll be asking my doctor about it....
Thanks a bunch, DBwithUC! Lots of new things I've never used in your reply. I'll be talking to my doctor about the Celebrex for sure!...
Thank you for replying, Sherry. I'll definitely be asking my doctor about Toradol. I've never thought of taking Tylenol Arthritis. Are you taking that because of arthritis pain or just because it's...
Thank you for replying, iPoop. Seems like we can't get away for narcotics even if it's the codeine in T3s. I'm just very scared taking such pain killers because I've heard horror stories of people...
Hello Soynomore. My pain is a combination of the typical UC flare pain as well as terrible epigastric/chest pain. The reason for the later is currently unknown but from asking the people on this...
Hi Minners! I have some Buscopan but I find that it's not working too well. Granted, my doctor didn't give me any instructions with it. He said I could just buy it over the counter. How much of it...
I'm curious to know what you guys take for pain. My doctor has said that I absolutely cannot take Advil so the only over-the-counter pain medication left is Tylenol, which does absolutely nothing for...
You gotta be careful when you post words like "cure" and "this will work good" because some people on here have tried everything you've stated and they're still in very poor health. Just a heads up....
Thank you very much, Mike! Yes, they ruled out pancreatitis, as well. I checked the link you sent and boy oh boy, do those symptoms sound just like what I'm experiencing; especially the all over...
Thank you so much for replying. This has definitely happened to me before. I've been in and out of hospital many times for this pain. The longest was when I was admitted in hospital for around 5-6...
Thanks for all of your help! I will definitely check back. I doubt it's related to UC now but nonetheless, I shall share what I find out. Fingers crossed I get some sort of diagnosis because there...
Thanks a bunch for your well wishes, Mike! Much appreciated....
Thanks a bunch for your well wishes. I really appreciate it! Through reading everyone's replies, I'm feeling quite strongly that it might be costochondritis ....
What a scary situation :/ The fact that they couldn't figure it out until it ruptured. That's just terrifying. I'm doing to talk to my doctor about this and bring up you story. Makes me think that...