The Uceris drug sounds great! I really hope it works. Oral prednisone is terrible!...
I agree with padedo. Mesalamine makes my stool softer, too....
I am a big believer in the mind/body connection and that your faith can help you. However, If you are interested in trying some alternative therapies, try to find someone who takes an integrative...
I flew internationally in August and I took a sealed box of 7 enemas with a pharmacy label on the box. It was never opened by any security agents and I was never asked any questions. Sure it said...
No, you won't smell! haha! I've had pretty good luck with Remicade. The negatives are the infusions themselves and the pharmacy (Prescription Solutions) who fills my order (They are a nightmare)....
I love prunes, too! I would eat them more often but dried fruit gives me gas. :o/...
When he tapers the Hydrocortisone enemas is he adding the Rowasa back in? That might help....
Esh... on Pred for a year? You poor thing. ;o( I took Xanax when I was on Pred and I didn't have the symptoms you are describing but, pred. made me feel terrible on it's own so, maybe I just didn't...
So, are you smoking now? Or done with smoking? If you aren't smoking and are still in remission for several years I don't see why he wants you to take the medication!...
I felt weird on Lexapro, too. I like Pristiq much better. Although, I'm not on it at the moment....
What Quincy said. I understand your frustration. It's hard having a disease that basically means we get a certain kind of inflammation that they don't know the cause(es) of. I have UC in the sense...
A colonoscopy is necessary to diagnose IBD (UC or Crohn's). If you have UC or Crohn's there will be inflammation/ulcers. What medications have you tried? I would keep going with the elimination...
I am having a similar problem. I can't seem to stay off the rectal meds even being on remicade. Are you on anything besides the enemas? Could you switch to Canasa (suppository)? I find they are more...
I don't think people lose 23 lbs from hemorrhoids......
I hope it works for you! :o)...
I think for people with UC it's impossible to tell. I often wonder if my IBS symptoms are from all the scar tissue I have from the last 4 years of IBD... Maybe the IBS symptoms I had before I was...
I don't think you're being paranoid but, I give my daughter advil. Tylenol doesn't lower her fevers well enough, it doesn't last as long and it's not an anti-inflammatory. So, when she was teething...
You should try them! They worked fine for me. Sometimes people are bothered by the inactive ingredients but you'll never know if that's an issue for you until you try and the $10 co-pay is a lot...
I wouldn't freak out yet. The claim could have just had some errors on it. Give them a call and find out what's going on. I have to ask, what would have cost $40K so far? My infusions are about $3000...
Yes. I just got back from a trip and my carry on bag had like 10 pill bottles, suppositories and enemas. The TSA guy who searched my bag was very discreet and polite but I kept wondering if he was...
I noticed the inactive ingredients are different. I wonder if she could be sensitive to something in the enema. That might be a question your pharmacist could answer....
Tank, do you mean they want to do surgery if you don't respond to the 6MP? If so, I'm surprised your doctor wouldn't offer you the option of biologics. (Remicade, Humira, etc). I know a lot of people...
I didn't think you pooped on the floor! lol but I am glad it was just a garbage can mess, that's not such a big deal. :o)...
Oh, people please don't poop on floors and leave messes! That kind of stuff will make employees of retail establishments less likely to want to help people in need of a restroom. I worked in retail...
It's specifically the steroid enemas that cause thinning. I tried them when I was flaring last year and my doctor wanted me to be on them as short a time as possible. Hydrocortisone cream will thin...
I have always had the opposite experience. Stomach bugs usually make me worse....
I don't know about Methotrexate dosages but the dosage my doctor wants me to take of Imuran is lower than the amount normally used for UC so I doubt it lowers my immune system much. However, I...
I'm doing fine on Ultimate Flora Critical Colon. However even that is $45/ 30days. So, I think good quality probiotics are worth the money. I went off for a week while I was on vacation and I could...
Well, if you decide to do Remicade I would NOT take it with Azathioprine. That combo is REALLY risky for your gender/age group. And most of the cancer cases have been young males taking Remicade in...
75 mg of Azathioprine is a low dose. Unless, is he on 6-MP? Also, I just wanted to throw out there that Azathioprine/6MP take 3-6 months to take effect. So, you'll have to be patient to see if that...
Well, if you're taking an oral already maybe you could switch to the suppositories. They are much much easier to keep in. And then, maybe you could do them twice a day. They don't reach as high and...
Are they giving you something to alleviate the cramping? Like Bentyl? Hydrocortisone suppositories helped my fissure during my last flare....
I thought I could but then I realized I was squishing my abdominal muscles around. Yep, I'm a smart one... ;o)...
Good to know! I want another one, too! :o)...
Yeah. I got a nasty bruise on my hand from a Remicade IV there once. Every other time I've gotten my Remicade IV there, smooth sailing. Honestly, I think the nurse might have hit a nerve. ;o)...
I am perplexed because her doctor had her stop steroid enemas cold-turkey and switch to an oral UC med while on vacation. The enemas should have been tapered and oral meds often need to be tapered up...
I am really perplexed by your doctor....
you made me lol. It's always mortifying to have to point to the pharmacy shelf and say "that giant box. Yeah, that's mine." Fortunately my pharmacy knows me know and aren't surprised that I always...
IMHO if you have proctitis you will want to be on rectal meds for maintenance. I would go ahead and start the Canasa and request to stay on them or on Mesalamine enemas for maintenance. I find Canasa...
Nope. My doctor told me that most of his patients feel better after infusion number 3. :o)...
Maybe it's the prednisone reduction? I got all sorts of weird things like that tapering off pred....
I didn't sleep well on prednisone. That would be my guess!...
I would definitely use just the Lialda if that will work for you. Try to keep in mind that prednisone is really hard on the body. Your doctor might be pressuring you to go on Humira because he...
IMHO the point is to try and keep it so that people are helping each other by relating their own experiences and what things have helped and not helped them. The problem with your opinions against...
I think I understand now. You mean people's questions can be better answered when they give all relevant info clearly, etc etc. That's true!...
What do you mean by this part?...
I had problems with my knees and hips on prednisone and after I got off of it they got better slowly over the course of a few months. And, what quincy said too. I'm a little freaked out that your...
I didn't find anything effective for flare related pain except just stopping the flare. You could try bentyl for the cramping and hydrocortisone suppositories might help the fissure. I used Xanax...
Do you wear make up? I had a case of goopy eye recently and finally got rid of it after throwing away my eye cream (it must have gotten contaminated). The most common offender for me is mascara. The...
well, release, stay in, either way they are meant to treat the lower part more. Which was the point I was trying to make. Quincy is such a nit picker! :oP This might help:...