I am so sorry to hear it Sara. I hope they figure out a solution soon. Sending healing vibes....
NSaids are not recommended for those with a j-pouch - from Cleveland Clinic literature - "Patients are encouraged to avoid NSAIDs, since these agents may contribute to pouchitis and pouch...
I found the Benylin products worked - The All-in-One caplets. They have both a day and a night version and you can buy a package that contains both. Good luck...
I was also told no to donating blood too. We cannot afford to give up that much fluid due to the dehydration factor....
For the Canadians in the group - please get out to M&M Meats today to support the fundraiser for the Crohn's and Colitis Foundation of Canada. locations all across Canada are participating. Money...
For the Canadians in the group - please get out to M&M Meats today to support the fundraiser for the Crohn's and Colitis Foundation of Canada. Locations all across Canada are participating. Money...
Here is a link to the jpouch group. Lots and lots of information there. Check out the forum too. http://www.j-pouch.org/Whatis.html What you are experiencing is normal. You train your pouch by...
I agree with chcl. Take the pred. Get yourself back to a good level of health and then focus on the natural stuff....
Thanks for the info. This however is a post from last year. I no longer have an ostomy as I opted for the jpouch. I had trouble with cymed too though. I never was able to find something that worked...
Good luck!...
Rough couple of days. Fighting a lot of cramping, nausea and vomiting. I am passing stool, but only just this morning passed some gas. Doc said the cramping could be caused by a partial ileus,...
Sorry to hear it! What disappointing news. :(...
Surgery is done. Everything went well according to the Docs. I got a pleasant surprise with my room. It is in a brand new reno'd area of the hospital, and they gave me a private room instead of...
Looking forward to it. Excited and a bit nervous. Trying to remember to keep my eye on the prize and that the coming weeks are temporary and will improve over time. My husband also installed my bidet...
Potato chips and pretzels are good choices. They have lots of salt and they also help to thicken the output to prevent dehydration. I also have lower BP, but I have no symptoms from it. I eat tons of...
Thanks! And good luck to you, Sara!...
Excited and a bit nervous. Happy to get rid of the bag. I didn't mind it, but my skin was/is a disaster. Amazing to think that 4 years ago, I had never even heard of UC. Funny how life bites you in...
2 years. From my first and only flare to just before my surgery....
All good ideas! I also recommend the earplugs and a sleep mask if you can. I was kept awake or woken a few times by roommates or nurses. Your own pillow for sure. Yes to lib balm and moisturizer Make...
No bowel prep for either of my first two surgeries. None required for my third either. As a matter of fact, I can have clear fluids up until 3 hours before my surgery - it's even encouraged....
You may want to try a convex wafer as others have said. It helps to separate the stoma from the skin as it pushes down on your skin a bit, forcing the stoma out. I had to switch to convex with my...
Many people do manage by themselves and it's likely you will be able to manage too. I had someone here for about a week, but that was more to help with the kids, cooking and cleaning. If I only had...
I bought that lacey thing but never used it. It is only for use with the small pouch that you can also wear for intimate moments. The larger (regular size) pouch doesn't fit well and is bulky. And, I...
I just had step 2 on Jan 11 and am hoping to have step 3 in the next 4 weeks. Is the recovery as hard (or harder?!) than the first surgery? Yes, it was harder. I recovered very well in hospital to...
I was told anything goes after 8 weeks - including pilates which is all abdominal/back/core work. After my 1st surgery, I went back to pilates, kickboxing and soccer with no trouble. If I ever felt...
Sounds like something is going on. Do you have a partial blockage? Any pain? How much are you outputting? More than usual?...
This is the exact system that I am using for my new loop oleo - except I use is the extended wear Assura. I even use the Adapt ring (well, 1/2 of one). I don't have any issues in the shower of...
Glad you had a good experience. When this happened to me in Toronto, I went through the scanner. No one even looked twice or asked a question. I've flown at least 4 times since having my ostomy (all...
Darn! I would have LOVED to have tried this. Too late for me now. I did do a home version, but a trial would've been better. Good luck! I am excited for you - and laughingduck too! I look forward to...
Have you tried a convex wafer? I have a new loop ileo and had to switch to one myself....
The part at the end with the water, I don't understand, but the rest is helpful....
Video here: http://www.youtube.com/watch?v=ikBcwqV-p-w I use these too. Worth giving it a try....
Congratulations!...
End-ileo - Nov 2011 Loop-ileo - Jan 2012 Total = 15 months so far...
I am sure you will be fine. I was advised I could even start pilates 8 weeks post and all other exercise 6 weeks post....
Your output is more important than your input. Start measuring your output. You should not be outputting more than 2 litres in a 24 hour period. If you are, you'll need to go to the hospital to get...
@Pluot - I am doing well with both, now. I had some trouble with the loop stoma - so much different and not nearly as nice, but I've solved my issues and now 3 weeks out and all is good. I think it...
I am currently in my post-op stage, so I will give you some of the information that has been given to me. For the first 6 weeks after surgery, you have to have low residue foods - as you know....
Don't answer if you don't want to. Merely just for curiosity/fun. I wasn't expecting a pattern. The same post is over on the UC board, and there does not seem to be any pattern....
@deltaforce - This was merely for curiosity sake as I noted. If you think it is such BS, you didn't have to participate....
I borrowed this from a small FB group and was wondering what the results are on a larger scale: "I'm conducting an informal survey. I recently read somewhere that your blood type can make you more...
I took this from a small FB board, but I'm curious how it will apply on a larger scale (also posting it on the Ostomy Board): I'm conducting an informal survey. I recently read somewhere that your...
Unfortunately, there is no simple answer. It is all trial and error. Some questions and suggestions: 1. Have you measured your stoma recently to see if there has been a change? 2. Try eating...
I always found the home-care nurses knew nothing about ostomies - even though they were supposed to. I knew way more than any of mine. Glad you got it changed. That's a great milestone!...
I am using convex and I am 2 weeks post-op with my loop-ileo. My nurse would prefer I use a flat flange if possible, but if not to use a "light" convex flange. Try using Coloplast "light" convex...
Hi all, I am having pain in my abdomen, back and now a sharper pain on the left side (especially when up). Initially, I thought it might be a UTI because everything abdominally kind of hurts after I...
Are you still on narcotic pain meds? I even got a bit constipated with my ileo because of my meds....
I have no regrets at all. I am going for the jpouch but only because I have had some issues with my sensitive skin and the flanges. It's kind of awesome with the stoma. You can eat pretty much...
There is NO pain with a stoma. You don't feel anything on the way out. Once you find a system that works, you won't even know you have it. Honestly, there is no pain and lots of people have no...