Thanks. I guess I will be switching to Apriso as per my doctor. I'll check in to the card....
Hi all, I've just switched insurance companies, and Cigna has denied coverage for my AsacolHD. I've been in remission for several years and do not want to change anything! My doc tried an appeal but...
Hmmm...I'm pretty sure there is maltodextrin in VSL#3....
I tried taking flagyl once and it made things much, much worse....
I was on Imuran for three years. I did have more frequent colds that turned into sinus infections, but I also had a kid just starting preschool. Everyone in my house was sick! It kept me in...
I went through a similar situation about three years ago. I couldn't get off pred without flaring, and I was desperate to stay off aza as I was breastfeeding. I tried every home remedy and everything...
I'm also on Asacol HD, but that definitely didn't put me in remission. I also used prednisone until the Imuran kicked in....
Thanks for sharing. This looks like a positive development. I was a little depressed at the last talk on the latest developments in IBD treatments I went to as they announced new versions of steroids...
Thanks. Right now I think they are hoping it might heal on its own if they can clear up the infection with antibiotics. She is also on a liquid diet for bowel rest. I agree she should be seen by a...
Hey everyone. My mom is currently in the hospital being treated for a rectovaginal fistula. About three weeks ago she developed signs of an infection with severe cramping/pain in her colon. She was...
I have been in remission for three years while on it. I had a bit of nausea at first, but that got better after a couple weeks. Maybe more intense colds, but I've also had kids in preschool. It has...
After my second clear colonoscopy in three years, I am tapering off of Imuran. I'm nervous but also really excited about the prospect of being free of it. My previous three flares were all brought on...
My GI told me it was okay. I tried not to use it too much, as it seemed to help for awhile, but I usually felt worse after....
My new normal seems to be 1-3 bms per day depending on how much coffee I drink. It would have been unusual for me to go more than once per day previously. Also, bms seem softer/less formed than...
I have experienced a flare while breast feeding twice! It stinks trying to care for a little one and yourself. With my second child, I was so sick that my supply was very low and I ended up weaning...
Just had my scope yesterday. I got to take a year off last year, but this year they found a polyp. So I'll probably be back to every year now. :( Not fun, but I'm glad I did it....
I have found morning frequency and urgency are always the last symptoms to resolve. I've also found that even though I've been in remission for almost three years on Imuran, things aren't quite like...
Hi all. My five-year-old daughter has asthma, and after a hospital stay in December her meds were increased. She was taking one puff of 40 mcg Qvar twice daily, but is now doing 80 mcg. I thought she...
Hi. My 5yo daughter was recently diagnosed with asthma. One of the doctors we have seen suggested eliminating dairy from her diet as it might help with her symptoms. She only experiences symptoms...
I'm not sure why some docs prescribe one or the other. I am taking Imuran, and while I never actually threw up, I did experience nausea which increased greatly after I stopped the pred. It got...
I've had the same experience. It took a while, but it did get better. I took someone's advice to try starting off with 1/2 or 1/3 of the bottle. Once I was able to retain that I worked up to the...
I hope you are feeling better. It sounds like you have had a rough time. I have dealt with similar issues as I have flared after the births of both of my children. With my daughter, my inflammation...
I have been on Imuran since July and feel like I am almost in remission. I still have a little bit of urgency, but that is always the last symptom of mine to go. I think it is partly mental and...
I tried the Specific Carb Diet for about 10 days. I wasn't able to stick with it, but the one benefit I did notice from it is that it did pretty much eliminate all gas. After that I was able to...
I'm sorry you are feeling so much worse. I have never been in the hospital for my UC before, but this summer I think I definitely needed to go. I think things like multiple trips to the bathroom,...
During a flare, I usually experience blurry vision and kind of weird sensations in my eyes. I am always worried about inflammation in my eyes. During my last flare I went to an eye doctor, and he...
I'm sorry to hear about your son. I think Rowasa can take some time to work, and I know my AsacolHD did say something about improvement in 3 weeks. So maybe you just need to hang in there a while...
I did get the flu shot. I was under the impression that those of us on Imuran should get the flu shot. I did read in the drug info no to get any live vaccines (the flu mist) and not to even be around...
I've got it, too. I've taken two courses of clotrimazole lozenges, but they don't seem to be working. I am going back to the doctor later this week, so I am hoping to get something stronger. I read...
I've been taking Imuran for a little over two months, and I am feeling pretty good. Almost normal. I am still tapering pred, so I won't really know how effective it is until I am completely off the...
I had the cramping, too, but almost thought of that as a good thing...a little bit of warning before a bm....
I thought I was the only person who regularly went to the bathroom with two kids and a dog!...
I read that chamomile tea is "nature's valium." I think this can also be soothing to the gut. The ritual of drinking tea is also calming. I haven't been drinking it lately as I fear hot beverage...
I would be scared to be on the pred for so long, but if you just started 6mp, why not give it a chance to work before starting the remicade? What is your doctor's reasoning for this? I would want to...
I took steroid enemas while pregnant. My daughter is healthy and bright. I would talk to you doctor, but it seems lots of people have had to do it without bad results. You are very far along in your...
I think it sounds normal to be feeling this way. The prospect of surgery and the recovery is very scary. Remember, too, that prednisone can make the lows much lower. It definitely affects your mood,...
I've been on 40 mg for 5 weeks and will now start tapering by 5 mg per week. I also go by my symptoms, not by a set schedule. Then again, symptoms-wise, I should probably be at 40 mg awhile longer,...
mamabee, I'm very sorry to hear about your cousin and uncle. What a horrible thing for your family to go through. I feel like I could have written your post a few months ago. I, too, am a...
I've been on it for only four weeks now. I have also been on 40 mg of pred, so it is hard to know what is causing what in terms of symptom reduction and side effects. I have experienced some...
I've read in previous posts that a few people have experienced this and attributed it to l-glutamine. I don't take it regularly enough to notice, and I am also on pred which causes this for me. I'm...
Hi Melski, I'm sorry to hear about your situation. I know one of the scariest things about surgery is finding out your disease is actually Crohn's. I don't know much about the sugeries, but some...
I was also a teacher and somehow made it through the days. Immodium helped alot. I have always found that other than in the worst part of a flare, mornings and evenings are the worst times for me, so...
I second taking the entire dose in the morning. When I split the dose, I didn't sleep at all. I don't think it is a good idea to stay on even a low dose of pred for maintenance. It is not meant to be...
Hey Gina, How are you doing? Have you been to see a GI or to the ER? Hope you are doing okay....
I can actually remember watching a little of my last scope while on the twilight. I didn't feel any pain and wasn't bothered by it. I was certainly in a drugged state, but do remember being sort of...
Last time I was on pred I thought I had poison ivy, but then decided it wasn't. I had bumps like this on the insides of my arms and backs of my legs. I thought maybe it was eczema, but it may have...
Do you have your CCFA "I can't wait" card?...
Rowasa seemed to give me looser stools in the morning. It isn't really absorbed and always seemed to come back out to some degree. I asked about this once, too, and it seemed several others had this...
Hormones and antibiotics can definitely cause problems. I agree you should add a probiotic to see if this helps. It may help with the gas, too, or maybe diet modification would. Refined carbs, sugar,...
It seems like a long time to me, but I don't have much experience with it. I have read about people on here who have been on it for much longer, but I don't think that is a good place to be....