So sorry to hear you're having problems with the LDN, InSoFla :( I hope you can figure everything out soon! Ever since I found out I had C-Diff and went on the Vancocin, I have been SO much better....
My GI doc tested for it. I am still on LDN and will continue that for the 6 months and after if I notice it's helping me still. I am still only doing the VSL 2x's a day b/c if I do more, I run out...
Just wanted to post a quick update. I was diagnosed last Friday with C Diff and I have no idea how long I had it for. All this time that I thought I was flaring, I actually had that, so I'm a little...
NiRo, That was my thought process with being on Prednisone while having C Diff all this time. Really frustrated, but at this point, I have no choice :/ Thanks for the info for the fecal transplant! I...
I am tapering the Prednisone now. Tomorrow I'll be down to 30mg...doing a slow taper. I've been on it since August unfortunately and now being diagnosed with C Diff (which I know I've had since...
I've read up on it, but have no idea where to begin. Have to do more research, but it is definitely something I would consider. Right now I only have 2-3 BMs a day, but with blood and...
Been in a flare since March, but my GI decided now to do stool samples and found out today I have C Diff. No idea for how long. Starting vacomycin (sp?) today, 4xs daily for 1 month. Any advice?...
Thanks for checking in InSoFla! I've been meaning to post an update. Last night I started my Pred taper to 35mg. Both of my doctors are on the same page with the slower taper, so that's a relief. My...
I started with the 5 day intro diet and then from there I introduced the homedmade yogurt. So an example day would be: Breakfast: tall glass of yogurt with honey Lunch: Fish, Broiled burger, turkey...
Mom2girls, I am so sorry to hear you're still not doing well :( I give you so much credit for even going to the grocery store! When I felt like that, my husband did all the errands. Is there anyone...
InSoFla, I'm definitely going to follow doctors orders! Another week isn't going to hurt..I just have to be patient! lol I'm doing the Slippery Elm 3x's a day (3tbsp). I do that with my VSL....
InSoFla, I definitely think the SCD has helped, but I haven't been that strict this past week, so I'm hoping to get myself back on track! I really think the true test will be when I start to wean off...
Just wanted to update since I started LDN Monday... Ever since that night, I've only had to use Lomotil 1 time (that was yesterday). I have been able to sleep all night without waking to use the...
Last night was the first night in three nights that I didn't have to wake up and use the bathroom! Didn't even take Lomotil! Don't know what it was from, but I'll take it :) I have gone 3 times so...
I am taking the L-Glutamine pills for now and will probably switch to the powder when I'm finished this bottle. It's 1000mg and he has me taking 2@ 2x a day. I am definitely going to wait on the Zinc...
First of all, congratulations on your pregnancy! That is so exciting! I have 2 girls and with both pregnancies, I flared all throughout my 1st trimester (diarrhea, bleeding, urgency), which I read is...
InSoFla: I am doing well...still on 40mg of Prednisone after that bad week, but I'm starting LDN tonight! It's the oral at 4.5mg (which I'm kind of nervous b/c it's the highest dose, what do you...
Mom2girls, How have you been since starting the LDN? I go tomorrow for my appt and I've been thinking about you all week! I really hope you're seeing some improvement. Praying for you!...
Just wanted to post a quick update and get some insight. I weaned to 30mg Pred last Wednesday and all was well until Saturday morninig when I woke up having multiple, painful, urgent, bloody, loose...
Def less symptoms of D, urgency, blood, and BM's so I am more confident going into this taper than I was last week. Tomorrow I am going to add the slip elm and VSL after lunch...up it to 2x's a day...
Got an appt with a Dr that prescribes LDN for Sept. 12! So excited. Starting to taper Pred today...should I go down to 30 or 35? I'm thinking 35 b/c I want to take everything slowly. Last couple...
So excited for you mom2girls...can't wait to follow you on your LDN journey! I just got off the phone with a Dr. in NY that prescribes LDN and I have an appt on Sept 12! I am beyond excited :) I got...
Prob right before I got pregnant last Feb. Due for my next one in Sept, but they want to get this flare under control first. Very eager to hear what's going on in there! Another good day...no...
Doing just that InSoFla! Thinking I should do 40 to 35mg and so on for the Prednisone taper. Yes, doing 1tbsp of slip elm and packet of VSL. Right after breakfast. More formed stools today and no...
I've started the VSL#3DS and the Slippery Elm Bark the last 2 days only after my 1st morning meal. I want to take it slowly. I've noticed I feel more bloated and gassy, but nothing problematic. My...
Thank you so much Hopefuly4uc...it means so much to have every kind of support during this time. It is definitely a one day at a time way of thinking! He is still in that mindset that he doesn't have...
Thanks mom2girls...hope you have a great weekend as well :) ((hugs))...
Thanks InSoFla!...
So, I just received all my supplements in the mail! I have VSL#3, Chia Seeds Maca Root Powder Slippery Elm Bark Vit. K Pro Optima Whey Protein Vit D (which I have to wait to get my levels tested...
Thanks you all for all your kind words and huge support. It means more than you know. I have so much support from family and friends this time around, so it's helping me get through all the daily...
InSoFla, thanks for your concern. He has agreed to continue to seek treatment. Kind of a mini breakthrough today, but a VERY long road ahead. I forgot to mention in my original post that my brother...
Well, just called GI and I still haven't heard back. Tapered down to 30mg as of yesterday and woke up this morning with bloody diarrhea 4 x's so far :( Took Lomotil b/c the day ahead of me is just...
Mom2girls...my diet has been the Routine 5 day Intro Diet, and then each day I've incorporated chicken, turkey, steak, any fish, but shellfish, string beans, carrots, and asparagus, SCD homemade...
So great to hear! You are so blessed to have family that can take your 3 yr old so you can get a break! With everything that has happened in the past 2 months, I only have my Mom to help me and she's...
Started tapering down to 30mg as of today! So far no side effects, but positive ones...less bathroom visits (about 2-3 a day). The urgency is subsiding, but still there. I mostly see some blood in my...
Ok thanks mom2girls! They actually do feel more like menstrual cramps now that you say that...but they only last before and during the BM....
So glad you got the LDN and Rowasa! Can't wait to hear your results!...
Yes the cramping only precedes a BM. I am praying and sticking to the SCD diet, so hopefully that will allow me to taper more easily. Dreading when the time comes, but trying to stay positive! Hope...
Prednisone seems to be helping. Yesterday I had no blood and firmer stools...no where near "normal" yet though. Today I had some bleeding on my 3rd BM so far. I've also noticed more crampiness before...
Thanks mom2girls! Good luck and keep us posted with what your doctor says!...
Thanks InSoFla...I will definitely keep you posted. It's because of this forum and people like you, that I feel hope!...
Mom2girls- I've been doing the Rowasa enemas AND Canasa together nightly and I feel like between that and the Prednisone, it's been a huge difference. Maybe try a mesalamine enema with a suppository....
Thank you so much InSoFla! That is exactly what I needed :) I just ordered the Slippery Elm Bark Powder and the Psyllium Seed Husk Powder, and Chia Seeds from Pacific Botanicals. Going to talk to my...
Thank you!...
Yeah my mom gets some vitamins from there...forgot about it! Thanks...
Great! Thanks for your help princess :)...
Cjgk: nope I'm right there with you!...
Mom2girls I hope you find relief fast. Wish we all lived near each other to take turns watching the kids and making meals...life would be so much easier!...
sickmom and aquafly79, It is so terrible the things we go through to take care of our kids. I can't count how many times I've given my 2nd daughter her bottle while I was on the toilet :( My 1st...
I'm looking for the best place to buy Slippery Elm Bark, VSL#3, and Psyllium Seed Powder. Any recommendations? Also, how much should I buy at first? I'm about to being taking Krill Oil, Vit D, and...