I have been on Xeljanx since Oct. It has by far worked the best for me and I've been on everything....
Thanks! I had 30 days of samples and it was helping. Crossing my fingers it continues to!...
It finally came today! I started this process 11/5. I actually had no issues getting Humira, Remicade or Entyvio approved by our insurance. This has by far been the most difficult. Luckily I had a 30...
I call them everyday. First my script was “written wrong” then my preauthorization was lost. It has been a lot of mishaps. I hope the xeljanz is helping you!...
Hi all. I haven't been on in awhile. Long story short. 13 years into this. Failed all meds, failed a bunch of drug trials. Doctor gave me 30 days of Xeljanz (and knock on wood it is slowly helping)....
^Thanks :)...
I'm on year....oh 12 (I've lost count) with UC. I recently left a drug trial (jak inhibitor) b/c I got worse. My UC has always been limited to 25-30cm. With the most severe inflammation 10 and below....
I tried it (last year or was it the year before that). Luckily my GI had a ton of samples (so I never had to run it through insurance). I have a horrible gag reflux and it definitely made liquids...
^I think I replied to you in another post. It is available. I have 2 boxes under my counter now :) It took a lot of work to find a pharmacy to fill it. Have the Uceris drug rep help you. The Uceris...
I'm on Uceris foam. It is hard (!!) to find a pharmacy that can fill it. Walgreens ultimately filled my script after the drug rep for my GI helped me. CVS said they could not fill it. Make sure you...
I would say it was gradual improvement. Closer to week 3 before I saw changes. I've never had any UC med work super fast for me so I'm not the best person to gauge that on....
Hospitalized once 4 years ago. I weighted about 90 pounds. I was going to the bathroom non-stop. Tons of blood. I got a picc line, TPN, home nursing. It was no fun. But I was really, really sick. I...
I had less blood and mucous on 2x/day. My frequency before the foam was 6-8 times a day (w/ 2-4 imodium a lot of days). While using the foam 2x/day I was going 2-4 times (less imodium needed). Once I...
Hey! Uceris foam is definitely easier to use than Cortifoam. It doesn't go all over the place! There is an individual applicator for every use. I used it 2x/day for 2 weeks. Then 1x/day for...
Yes, that's the card!...
There is a not a specific foam card. The drug rep gave me a Uceris pill card and said it would work. My co-pay was $25 for 2 boxes (60 doses). Walgreens was able to order the foam for me. I jumped...
I haven't posted a lot lately but I'm still here! I am currently in a drug trial (the open phase part). GS-5745. I'm at week 16 w/ no improvement. I moved in to open label at week 9. Anyway, after...
I know....I'm about tired of fighting. My disease is moderate to severe to 25cm. The worse being the 12-15 area. I did have 3 ulcers that healed from last scope....
Based on google it is an "MMP9 mAb inhibitor". To qualify for the study you must have failed 2 biologics....
I've been screening for the last 2 weeks for a drug trial. I don't believe it has a name yet as my paperwork says "GS-5745." I should find out next week (had a flex sig Monday) to see if I qualify....
I've had 8 entyvio infusions w/out much success. I'm adding back Imuran to see if it helps after finishing a round of prednisone. My Entyvio infusion tips! First off the infusion is fast. I have my...
Thanks everyone for your input! I will be interested to see what the bloodwork says. Hopefully they will call today. I see my GI in 2 weeks so I can ask him his thoughts on it then as well....
Anyone developed a food allergy all of the sudden? I had an allergic reaction to shellfish at the beach. I really didn't think much of it at the time. I already had an appt. w/ my primary yesterday...
Hi all! I had a random allergic reaction to shellfish at the beach 2 weeks ago. I am awaiting the results of allergy testing and was given Epi pens to be on the safe side. I do not/well did not have...
Thanks!!! It was well received on my page :)...
It is a little lengthy but I felt the need to share here as well. I put this on my personal Facebook page. But just realized I'm a few days early on IBD day! Here goes: In honor of World IBD Day I...
I just got home from my 7th infusion today. I asked the nurses about C Diff from Entyvio and they had not seen any in their office. They are also an initial drug trial site so they have been...
Yes, I think the UC in general makes us more fatigued and the Entyvio definitely causes added fatigue (or it has for me). Does your Gi know you are having watery D? Have you had a C Diff test...
Right now there isn't a test to see if we have developed antibodies to Entyvio. They are working on it per my GI and the drug rep at their office. I haven't had quite the response we were hoping for....
It is such an easy infusion, right? I am in and out in right at an hour. I usually have a headache and light sensitivity for about a week afterwards. I have infusion 7 next week. Unfortunately I am...
I had a terrible tooth ache and ended up getting a root canal this week. I was given tylenol w/ codeine. I don't think it has really helped that much. I did cave and take ibuprofen (which is dumb b/c...
I just had a root canal on Wednesday and I had no infection. Mine was an issue caused by grinding my teeth and a crown that cracked....
I'm looking at the packet now. The ingredients are: serum-derived bovine immunoglobulin/protein isolate, dextrose, sunflower lecithin It is a decent size packet but mixes into liquids much easier...
I posted this on another thread…..I could not find a pharmacy to fill it either. So I called the drug company and there was a production error. So they haven't started actually making it yet (well as...
I've been slowly using Enteragam for about 10 days. It is a powder and you mix it w/ a cold beverage. It mixes much easier than VSL. Not sure if it is helping or not (I had a root canal and the pain...
I have tried oral Uceris twice. I just came off it last week after 6 weeks on it w/ no change....
As of 2 weeks ago Uceris Foam was not in production. I called the drug company. There was a "production error." The person I spoke to said there was not a firm date on when production would start. If...
Hi all! I'm still here just nothing too exciting to post. I have had 5 Entyvio infusions w/out much improvement. The last couple of weeks I have been in a lot of pain. Same UC symptoms I always have...
I just read that about being more effective for males. I have 6 days worth of samples. I'll give them a go. He said if I didn't like these I could go back on Apriso (or something similar)....
My doctor gave me some samples of Giazo today to try (in addition to Entyvio). I had some success years ago w/ brand-name Colazal (not the generic). I am not in remission from the Entyvio so he...
I'm still eh….flaring. I hate to even post on here b/c I feel so negative! I have had 4 or is it 5 infusions. One more before end of year....
We went to Disney 2 years ago and I was in a major flare. I was also on MTX and had to bring all the needles, disposal box etc. The good thing about Disney are there are tons of bathrooms. And they...
Good luck! I had my 4th dose two weeks ago. I've had a good # of side effects and not much relief (hopefully you will do tons better!). I have a 5th infusion scheduled before the end of the year. The...
That all makes sense. Thanks for taking the time to explain!...
Hi all! I have been on the pill for a zillion years (well probably 15 except when I was pregnant). My GI and Gyno think it is best I stay on the pill to regulate my hormones. I went off it a few...
You are only going 1 time a day?! Sooo jealous! Anyway, I would take the imodium about an hour before you leave. I've never taken the liquid but I believe it is supposed to work fairly quickly....
I have posted several times about this but I had a really hard time w/ mtx side effects (I was in a drug trial)....
100 via iv in the hospital. 60 mg oral....
I think failed can either mean it didn't work ever or it worked for a time frame and then stopped working. Humira never worked for me at all and Remicade did for about 6 months. When filing insurance...
Fatigue and headaches. They have lasted several days after each infusion....