Hey! I actually had my first Remicade infusion on Monday. It went well. I'm still on the 6MP and LDN and all the supplements listed. I really don't like the thought of being on both Remicade and 6MP...
Mamabee - Can you tell me exactly what you eat on the SCD?...
Mamabee - yes enjoy the good days! This disease is so unpredictable. I hope you find lasting relief! I too think of you and am keeping my fingers crossed for total healing! Keep me in your prayers. I...
Still bleeding, urgency and feeling like crap (pun intended)! I even called the doctor about starting Remicade. That's how bad it is. I can't even go to the grocery store without having to go 3...
I honestly don't see much of a change being on SCD. I just get more irritable! Ha!...
Mamabee, so glad to hear your doing so well!!!! Great news! I've been struggling this week! Almost thinking about trying to incorporate the antibiotic combo but not sure. I'm not doing the SCD, but I...
Astar, good to know you were extremely exhausted the first month, because I am SO EXHAUSTED too! Plus, I am tapering Prednisone which has it's own withdrawal symptoms which includes fatigue. No...
thanks guys! What you are saying makes sense. I am going to have the Mirena taken out. I don't think it caused the flare, but I don't think it's helping it either!...
I don't necessarily think the IUD I had put in (Mirena) in March caused my flare. I believe it was caused from labor and postpartum, but has anyone heard of Mirena (or other IUD's) making a flare...
I forgot to mention I went down to 5 mg of Prednisone yesterday. Maybe that has something to do with it!...
Hey mamabee! I am taking the same dose and filler as you. Today has been rough. I feel like I'm coming down with something. I'm guessing it's either from the LDN or 6MP. I'm exhausted, weak....used...
Hey mamabee! I am actually doing really good. I still have blood and D, but the urgency and frequency are down ALOT! I'm also starting to have more formed stool (yay!!!!). I really feel like I'm on...
Super8, I just want you to know I know exactly how you are feeling. I've been flaring since May and it's been so bad. Blood, mucus, urgency and I don't want to get out of bed I'm so tired! I totally...
Thanks for the suggestions, Sally! I'm determined to see this through! Just ready to feel better and to be a better mom to my girls.I know it's probably all in my head, they don't notice anythings...
Thanks Sally! I needed to hear that. How did you feel when you started LDN? Did you have any side effects? I'm exhausted!...
Thank YOU hopeful4uc! I really needed to read your post today! I'm very discouraged! I had a lot of blood, pain and urgency this morning! I wake up tired! I feel like I'm not being a good mom to my...
I'm on oral w/ acidophilus filler. I never notice a difference when I start try the SCD, but will certainly try again!...
I started LDN last night! I'm really hoping this will work!!!...
Thanks Mamabee! I started the LDN last night. Today has been rough. Blood, pain, D, urgency, tired! We had a Meet & Greet at my daughter's preschool today. It was all I could do to get out of the...
Okay, I ended up starting LDN last night. I've been better but still bleeding and some loose stool and urgency. I just didn't want to risk feeling bad because of the antibiotics! I hope it helps!...
I have to agree badslinke....psyllium seed is a great thing to add to your diet!...
Oh and thank you badslinke for your post as well! I really appreciate everyone's feedback! It is so helpful!...
Thanks NSSG and CGK! Today was a bad day! So frustrating! I'm still confused. I'm going to go to bed and see how I feel tomorrow!...
Thanks for the advice. I'm still weighing my options and will probably start something tomorrow (either the LDN or antibiotics or both). Today was a rough day. I'm sick and tired of being sick and...
Okay guys, I need your feedback on what to do. I have my prescription for oral LDN with Acidophilus filler but I haven't started it yet. I also have the 3 antibiotics (Amoxicillin, Tetracycline and...
Glad you received your supplements! I'm also glad your husband is getting help. Have a good weekend! ((hugs))...
Mamabee - Every flare I've had has come during a very stressful time in my life. My wedding, a big move from Georgia to New Jersey, and then after having both my girls. It definitely does trigger...
Great! Thanks CGK!...
Yes, I am blessed with family willing to step in and help! My parents and my husbands parents live 2 hours away so they can't help often, but it's nice to get a break every once in a while. I am...
Good to hear sickmom! I'm also tapering at 25 mg. My mother-in-law took my 3 year old to stay with her until Sunday! So, it's just me and my 8 month old (who is so easy going). I'm hoping this...
InSoFla, Will do!...
Thanks everyone! My holistic doctor wants to do more research before prescribing the antibiotics for me. I'm going to email her the study that was done. Are there any other websites I can pass along...
Red_34 That is too funny! So true! Those Lifetime movies definitely make you feel better about your life!...
From what I've read it sounds like everyone else felt the same way until they were finally off the antibiotics. The good news is the blood is gone! That is always a good indication that the...
I love yoga too princesa! I do a class at the gym and we have 10 minutes of relaxation time at the end. I love it! Sounds like you have some good rituals too sas! Glad you found a therapist you...
That is terrific news Mamabee! I pray that you continue to get better and better even with the taper. Glad the diet is working for you! I have definitely started eating more healthy. Chicken, fish,...
I'll start.....I love to exercise. Getting out of the house, going to the gym and working up a good sweat always makes me feel good! Yoga is a wonderful way for me to wind down and de-stress! I write...
Let's encourage each other! This disease can certainly get you down sometimes! I would love to know what you do to encourage yourself when faced with bad UC days. We spend so much time talking and...
Hey Bubwee! Welcome! Healing Well is a great source and there are plenty of moms on here that can totally sympathis with you! As far as your diet, I tried the SCD and did see results, its so...
I was wondering about that. Thanks babeinthewoods!...
Mamabee - how are you doing on the Prednisone?...
Thanks CGK, NSSG and InSoFla! CGK- from your thread it seems like you've had good results with the antibiotic combo! NSSG- I've been on the Prozac since the birth of my first daughter, this flare...
Thanks therearemiracles, mom2panda and notsosicklygirl! I'm trying to get my holistic doctor who is also an m.d. to prescribe it for me. she prescribed the LDN on Monday, but I'm going to hold off on...
InSoFla - When I emailed my pharmacist about the transdermal crean with sucrose filler this was his response: Sorry to say that does not make sense..any chance you have the article …sounds more like...
therearemiracles - So you are saying I shouldn't take Flagyl and cipro together? I should take 3 different ones together? can you explain? Thank you so much!!...
InSoFla - is the sucrose filler for the transdermal cream or oral? The email I received back from my pharmacist when I asked for the sucrose filler in the cream is below: Sorry to say that does not...
Okay, I'm tapering the Prednisone because it's not doing much. Stopped the cortifoam and will start Rowasa tonight. I'm still taking 6MP and waiting on it to kick in. Still a lot of blood in the...
Thanks babeinthewoods! I remember reading your story! Wow! I've got to find something that works! I'm really getting frustrated!...
I actually read ALL of those posts last night. It took me over 2 hours! Very interesting. So you didn't do a combo antibiotic treatment, just Flagyl? How long until you saw results after you started...
Thanks babeinthewoods! I did open one package. I'll just keep what I have and eat it with applesauce like you suggested. I see you've been in remission since March of 2010. What put you into...