Hi - well just wanted to say that I have tried everything and nothing worked but the LDN and no sugar diet (for 6 weeks) to kick my remission in to gear; had pancolitits now for about 4 + years; on...
Hi - I am responding as well about the LDN. I also had a combination of things that I tried on my own with no success with Remicade or Humira..besides the cost of these meds,**sigh** I went sugar...
Hi all - just reporting in. Well, I'm actually constipated, the LDN is sure working, the x-ray showed that I'm pretty packed. So I need to be better to my colon. I have been eating extra-fiber soft...
Hi - well just reporting back that LDN is still working for me along with probiotics. I'm on VSL3 and may try Mutraflor probiotic...to get more good bacteria in my gut qwithout the gas. I still need...
Hi all - just checking in. LDN is still working wonderfully for me! I have been on LDN since last summer July 2011. No bleeding, no urgency unless I eat way too much popcorn. The big help with me was...
Hi - LDN is still working for me...gave me my life back. My stools are pretty good; but not necessarily like pre-UC. We need to remember that our cells in the colon are different; altered, but I have...
This is very good news that GI's are starting to consider LDN for treatment. I'm going to contact my group here in Minneapolis, MN to see if they are perscribing it. I had to go to another physician...
Hmm, this is sound information. However the key is to heal the colon for uc so you can eat healthy. Eating raw organic veggies on an inflammed colon will result in a more inflamed colon. The immune...
Hi- I'm back! Well, LDN is still working, but I definetely got lazy, lazy about the foods that do not agree with me; and instantly brings me into a flare. However the LDN is working round the clock...
Hi! This disease is very stubborn. My disease started after taking antibiotics for my complexion in my 40's, along with a huge amount of stress; I got really messed-up. I changed my diet; go the...
Yep, LDN has given my life back. I eat just about everything with no problem; when I have a blip I make sure I don't forget VSL#3, psylium seed powder and I occastional use mesalamine enama. But it...
Here's my update....I'm doing great on LDN!! I still take only 1 VSL#3 with evening meal and only 1 tsp of psyllium seed powder with yogurt or apple sauce daily. I feel great, I can eat just about...
Hello All: Just wanted to check in. LDN has been working wonderfully for me /community/emoticons/tongue.gif I figured out to stay clear of coffee, /community/emoticons/sad.gif , but I will have light...
Hello all: Well, I would like to chime and give my update. Been on LDN for 2 1/2 months now. In total remission, unless I over eat bad stuff that have always bothered me ie: too many raisins, too...
Flu Shot or eating fresh pork! Ugh! /community/emoticons/confused.gif I think either one messed me up. Working at the hospital employees are strongly encouraged to get the flu shot. I took it last...
Hello All: Just to let you know my update. I am doing very well being on LDN. It has been now 2 1/2 months and I can eat pretty much anything; however I'm trying to be careful. I alway try to eat...
Hello All: My personal experience with LDN...it's really WORKS!! I have been following LDN info from this forum and website/other sources for about one year and decided to try LDN on 7/14 and within...
Update on my condition with LDN. It's been 9 weeks and doing very well. Formed stools, I'm eating more gluten products without a problem. I'm eating wheat bread with peanut butter and light on the...
Astar: I too was EXTREMELY EXHAUSTED being on LDN for the first month, however at 6 - 7 weeks my stools were firmed and only 1 to 2 bm a day, no bleeding, minimal urgency. It's like wow. I do eat...
mom2girls: You are welcome! I too was extremely exhausted when I first started LDN...I think my body was working hard on doing what LDN wants it to do! However, if and that is a big IF I get adequate...
mom2girls- So happy you are trying LDN! I am having wonderful success with it. I've seen improvement at about 2 weeks, then gradual improvement thereafter. I stuck to the SCD diet modified a bit to...
jray1971- That is awesome news! So happy for you. I think I'm seeing some improvement as well. Some days no bowel movement, others about 3-4. No blood though, hurray! I really want no symptoms at...
mambee- Totally understand where you are coming from. My husband and I just went through the same thing last Christmas and as you know there is help, hope, compassion and love. It took me a long time...
Update: Well I'm trying psyllium seed poweder and it has been working almost right away. I'm also on LDN, but not sure if the LDN will get me into remission. I only use about 1 tsp in am and 1 tsp in...
Update: Well, I definelty have more energy when I get the appropriate sleep. No bleeding, unless I strain too hard, then bleeding from an internal hemi. My stools though are small (2 thumbs size),...
This disease is very frustrating and time consuming...I've never been close to remission until now with the psyllium seed powder, LDN and diet..not sure what is working, but a little relief is a...
richochet96 I feel your pain. I and several people on this forum have faced that decision of surgery. I too had failed on all medications, Cimzia was next, after Humira failed me. I have personally...
Things are still improving even being on the oral LDN. I added in psyllium seed powder and mesalamine enamas and I have seen significant improvement. The psyllium seed must have anti-inflammatory...
Hi - 6PM Not a good experience for me. I tried 6MP for about 3 months. I was tired, slight headaches and liver values were consistantly too high and then one morning I throw-up, throw-up and throw-up...
badslinke - So glad you are starting up LDN again. I'm currently on oral LDN with hypoallergenic filler, I will be getting transdermal shortly and will switch shortly, I want to see if I get better...
[color=blue>badslinke- hmmm? [/color]...
Hi All - I have considered this treatment, but am trying the LDN protocol first, starting on transdermal LDN this week, used oral for one month...some improvement, but then slowly not working...hence...
Well my screen name is because I'm hopeful for UC. Don't know why I got UC, probably antibiotics treating complexion issues for 18 months probably killed all the good guys! Anyway, I'm just...
Good news! I can get the script in transdermal form and they faxed it to Skips Pharmacy today. [img]/community/emoticons/turn.gif They also stated to have it filled with the emu oil, (I think that...
Hi All: I'm currently using the oral, with the filler of hypoallergenic. It's been a month so far, I actually need to order again. Should I try the transdermal? I think I read that the oral is hard...
Pretty bad day: Got the urge and yep you guessed it, didn't make it to the restroom. Thank God I was not at work, I was leaving and whamo, had no control at all. And then my car broke down, ugh...so...
Thanks for the advise. I agree with the OLE, I'm a bit nervous to try it. I already did the 7 weeks of nystatin and I did feel like crap for about 3 days yet I did achieve one normal, real normal...
Hi All- I'm closely viewing this thread and I'm so uplifted on the progress that each one of you are having. diaperman- Sorry to read about your dysplsia results- I know you will get through this....
InSoFla: Well I think I'm having a blip. I currently am taking LDN at about 3.0 or 3.5mg, wondering if that is the reason for the blip and the stomach flu went around at work, a quick 24 hour thing,...
BitterSweet 31; Yes I was definetly in a flare, not the 10-20 times a day, but mine was always like 7-10 times a day with the blood, mucus and D. I never have been in remission, until currently on my...
[color=purple>InSoFla- If this is working for so many people, how can we get LDN recognized as an effective treatment for UC/Crohns and be used as one of the first line medications for UC?[/color]...
badslinke- The antifungal medication worked for a bit with diet, however it was sooo difficult for me to stay so strict with the diet. I was getting so thin that I would just eat a strawberry (little...
Day 16: This morning my stools were a bit more normal, very, very little blood and limited urgency. I do have a bit of pain, but I'm sure my colon is not used to the formed stools and is probably...
I got the antifungal "Nystatin" from my GI, but he wasn't too sure that this was it....old school thinking again. I will keep you posted on my progress! ...
6-8 weeks. My tongue is now pink and I did the spit test and it appears to be much, much better, but probably not all gone. two days. I had some pasta with a little butter and it sits ok, I still am...
jray1971- I wish you luck in your healing journey with LDN. Today is day 14, and I had a normal stool this morning with little sense of urgency. This is the second time I'm had normal stool....like...
The diet modifications e believe will not be for very long. I have already introduced a little gluten back into my diet, just a bit and so far so good. I did this on day 14 after starting LDN and...
So, this is the topic of LDN! This is working people! Please try this before the biologic's like Remicade, Humira, and the new one now Cimzia (these drugs suppress the immune system). Where LDN...
I think I saw at least 6 months is that correct? Then taber down to every other day and so on. More to come! ...
Hi InSoFla: I checked with Skips pharmacy and they do use the same filler (Methocyulose) as their hypoallergenic filler for LDN, so I feel a bit more comfortable. I just need to give this time. I did...