Hi fadoozle, If my doctor looks at me and says, now that you have severe pancolitis you need to be on asacol for the rest of your life, i am more than willing. This scared me straight. I didn't have...
Im glad I found this website and thank you all for your input. Because it's my first day I didn't want to bore everyone with too many details, but I feel I've left you all thinking I'm some crazy...
I was still pretty sick at my last appt. I thought he said steroids and humira or maybe I thought humira was a steroid. Ugh. This is so frustrating. Im wondering why he wouldn't just put me back on...
Yes I did cut back on my own. My doctor tends to be busy and not return calls. He wants me on prednisone for several weeks then I have an appt at the end of sept when were supposed to discuss humira...
I started at 60 mg prednisone, down to 40. I've gone from 40 to 10 this week (my blood pressure is through the roof, and I feel like my bones are screaming in pain, along with all the other effects)....
I think I am a good case for pro-smoking to keep this disease in remission. I've smoked since I was young. The first time I quit had my first UC flare. Started smoking again, each time I stopped...
My doctor had me on asacol when I had a Crohn's flare over 3 years ago. Then I had a good colonoscopy. He mentioned that Asacol must have helped, but he never told me that I needed to continually...
I don't know why. I saw him after the colonoscopy which diagnosed me with pancolitis two weeks ago. He made that statement, said that I was already having side effects from Prednisone but the...
how my smoking was keeping everything in remission, but I decided to quit. He (off the record) said that he thinks the pancolitis has been spreading for the past two years since I quit smoking. I'm...