Hey guys! So I have some questions pertaining to my fistula. So almost 2 weeks ago I had my second seton stitch placed. Since I've had the procedure I've been pretty constipated. I'm going to the...
Thanks Kazbern! I need to update my signature actually. I haven't been on Humira since August because it didn't improve my condition at all and I started developing rashes on my face. So I stopped it...
Hello all, I doubt most of you remember me, but I'm the student from Kent State who has Crohn's Colitis. Last time I posted I was recovering from a flare that resulted in me losing half of my blood...
Hey notsosickygirl :) I actually might have one, I do feel a little sickly. I have a sore throat and have been coughing. Maybe that's it....
Hey man, I was 13 years old when I was diagnosed as well. I'm 22 years old now so it's been almost 10 years now. You'll def have ups and downs and it certainly won't be easy. Maybe you'll be lucky...
Hey guys. I know I haven't been on in a while. I had a fairly mild summer. No major bumps and wasn't going to the bathroom too often. Best I felt in a long, long time. However, I haven't been feeling...
Does anyone seem to get these? I'm not lacking sleep really. Perhaps it is because of the recent flare that I just got out of?...
Hi guys. Just wanted to give you an update since starting the clay powder. So many of you know my story since my flare up. I honestly thought I was going to lose my colon. Just last week I had the...
Hey, I too have extremely bad urgency. Once I have to go, I have to go. Hydrocortisone enemas helped me A LOT with that. You can't take them long term because they're a steroid based enema but it...
Okay, so I was thinking what could have caused this flare up (well what made this current flare over the top) then it dawned on me. My fraternity had a philanthropy that was sponsored by Monster...
Ha, that's funny! My fraternity brothers would like that game. Honestly, the only thing that keeps me sane through all of this is humor. My roommate at college (my cousin) and I would always make...
I started smoking in August 2011 to help keep my UC/Crohn's at bay. I'm diagnosed with Crohn's that only affects my colon and perianal region and I know smoking is supposed to be bad for Crohn's....
You guys are the best :) I don't know where I would be without your support. I wish we could all just get together one day and have a UC party LOL! I mean my moon face isn't terrible, it's just...
If I were you I would see a colorectal doctor right away. That sounds absolutely terrible. I have two fistulas and I hate that. NSAIDs are essentially over the counter drugs here such as aspirin....
I absolutely hate it! The reason I'm asking is because I make extra money on the side by modeling occasionally and this moon face thing isn't going to work for me!...
Hey guys, So, I started my taper from 40 MG to 35MG the other night and I started noticing moon face already from the steroids. For those of you who may not know what moon face is, it is the swelling...
Hey guys. Day two on the clay powder and other supplements and I must say, compared to monday I feel better! My cramps are slowly going away and my tongue is feeling better! I'm hoping it's just not...
Hey guys! So today I started taking a few supplements as you can see by the title. I know it's quite a lot to start all together but I'm sick of this darn flare and waiting for the 6MP to start...
I think it might be a side effect of all of the medicine that I have been on. I have a doctors appointment on Tuesday so I'll make sure to show my GI. I showed it to the doctors while I was admitted...
Hey guys. So since I've been flaring up my tongue has been extremely painful! It's red, has bumps all over it. Crack down the middle. It hurts! It's very sensitive to certain foods. It's weird and I...
Guys, I don't think he was so depressed. I think that he figured he was already 72 years old and didnt have much time left on his belt. I feel as if he felt like he was doing the right thing by...
I ordered a five pound bag!! oops, I hope it can sit a while so I can keep it for future flares. Okay, so a little less then a tea spoon to begin with. How long did it take for you to start noticing...
Thanks for the input! Sounds like I can't eat anything. Blah!...
You're the one who pays for their services! If they paid you, then I would feel bad. Just have your files transferred over and keep it at that....
I just ordered a bunch Pascalite clay from Wyoming. I'm at the point where I'm willing to try anything and if it helped you, I might as well give it a shot. Do you think being on prednisone will...
My doc recommended that I have a low fat/low fiber diet because of the stricture in my colon. Do any of you have any recommendations? I can't seem to find anything!...
Thank you guys so much for all of the responses. Luckily, my mother is a trooper and puts up with me. I talk to her about everything and it really helps me a lot. I cried to her the another night for...
Hey Guys, I'm starting to get very, very depressed from the steroids. I just feel so darn down right now it's too much. Any tips on how to handle it? Thanks guys....
There is this place in NJ that does 85 a session. It's not too bad and they seem very good at what they do. Honestly, I'm willing to try anything right now to save my colon....
Hey! Take a deep breath, it'll be okay. If anything the doctor might just lower the dosage of the Imuran. I know it happened to me before. I'm about to start Humira and Imuran/6MP tomorrow. I am...
Okay awesome, I'm going in for a consultation on Saturday. I need some mental relaxation....
Has anyone tried acupuncture for UC? What were your results? Thanks!...
Exactly my point! It's just going to spread to my small intestines....
I would tell him not to hesitate. I took 6MP and Remicade at the same time for years and honestly it gave me my life back. It doesn't work for me anymore, but I wouldn't want him to suffer like I'm...
Yeah it certainly is scary but at the same time it's such a small percentage. I mean, there's a chance of dying with getting your colon removed as well. I'm still going to start the 6MP and Humira...
http://clinicaltrials.gov/ct2/show/NCT00692939?term=Autologous+Stem+Cell+crohn%27s&rank=2 This is the link to the trial....
Thank you, Kazbern...
It is risky, but so is getting my whole colon removed. Quite frankly I'm at the point where I'm willing to try anything besides surgery. Stubborn, I know, but hey....
Long post ahead. I hope you don't mind. Two weeks ago I was admitted to the hospital to have an abscess drained. After they let me out of the hospital I went into a severe flare and last Monday I...
Hello all again, Some of you read my message earlier about going for surgery. I was on the phone with my doctor about to call it when all of the sudden my father called me. He found a research study...
Somedude, I was on all of them before. Not sure of the dosage but it stopped working for me. Gave me a good few years. I can't get a j-pouch because I have fistulas and such. It sucks so much....
After getting out of the hospital yesterday, things went so far down hill. I passed out running to the bathroom last night and had an accident. I cannot live like this anymore. I've tried everything....
Well, I'll continue on sulfasalazine while the 6MP and Humira start to kick in while I'm weaning off of the prednisone. I'm not going to lie, the pred is already making me emotionally crazy. I'm...
Hello Everybody, I'm being released from the hospital today. They officially took me off of the solumederal and started me on 40 MG prednisone this morning. I'm hoping the pred works as well as the...
Thanks everyone. I just want to be better by the summertime so I can enjoy taking my motorcycle out for a ride! I'm just hoping my face doesn't moon swell! It's my money maker :p...
Yeah my bleeding literally stopped after the first dose. Crazy....
Hello All, So I've been at the hospital for about 4 days now. I've gotten a scope and a MRI with barium suspension. The scope turned out terrible, they couldn't get past the sigmoid colon due to a...
The doctor has decided to put me on 6mp and humira. I've come to the point where I'm not even nervous about it. I just need something to help me feel better....
Well, here I am. I haven't been in the hospital since 2004. I went to visit my doctor yesterday and he said the only way they can help me is if I admit myself. The first night they made me drink...