I looked briefly on jpouch. Will check back just no real site to post about FAP and what odds 1 out of 10k. Crazy and nobody in my family has FAP, I am the first that we know of. I have had IC since...
I don't have UC but what my disease is I can't find any real message boards since it is rare. I was sent here by a online friend who had her colon removed and said this forum was her saving grace...