I will keep everyone updated. As I said before, I know I will beat this!! :)...
So the last couple weeks have been whirlwind of tests and emotions for me and my family. My last round of tests have unfortunately revealed colon cancer that has spread to my liver. An MRI detected...
It was like the color of Strong Iced Tea. I drank a lot water yesterday and it was much better. However, when I woke this morning it was a little darker (not as dark) again. :( I have not had an MRCP...
As many of you know had mild-moderate UC throughout most of my colon. In additional to this I also have an issue with my liver. My PCP says it is only a fatty liver, and my GI says he thinks it might...
I agree completely. Stress can have a huge impact on the body....
Odd, my doctors say IBD is NOT caused by stress. However, stress can increase symptoms....
Wow Bacon! I tend to stay away from anything greasy as it affects me almost immediately....
Stero: What brand of fish oil do you use. I tried 3 different brands but gave up because they all gave me fish burps and fish breath....
I had stopped diary (milk) and soda for over 5 years and I was doing much better, I slowly introduced them again about 18 months ago. About 3 months ago I started to notice they were bothering me...
Fortunately, I did not. In fact even with 10+ years of UC I have had very little bleeding and mostly bright red on toilet paper....
I have had worsening symptoms the last 6 months, muscle\colon spasms and severe gas, and constant dull pain just under my rib cage on the left side. Can someone recommend a diet. There are so many...
So I saw my GI about an hour ago and based on what I described he believes it is related to the colitis. He prescribed Hyoscyamine (anti-spasm) for me to use AS NEEDED and also wants me to start on a...
I just saw my GI an hour ago and he gave me a prescription for the same thing. It is an as needed medication as it can interfere with driving and stuff....
No I haven't. Fortunately it has been years since I took predisone. And even then i only on it for 6 weeks....
It is actually pain on the both sides. It is more concentrated to the muscle along my spine. However, it starts in the rib which leads me to think inflammation of the rib cage. I was on Lialida for a...
I had an abdominal ultrasound performed about 3 weeks ago. My PCP thought I had kidney stones but the u/s only showed that I have fatty liver (awesome right). Gallbladder looked fine....
Morning Everyone, I have had UC for 10+ years and the last few weeks, I have been having middle pack pain. I am not sure if it is related to my UC or not. The pain is actually felt on both sides and...
I am sorry you are having a difficult time with using an enema. The only way I have been able to keep them in is to use it right before bed and go lay down. The less I move the better. Every day it...
Yup...
Oh I know the Lialda did not cause the PSC. But he said toxicity from the Lialda can cause inflammation of the liver. Keep us updated!...
I was on Lialda the past year and it worked GREAT for me. Unfortunately, my liver enzymes have been creeping up over the last several months and a liver biopsy showed inflammation. My GI thinks it is...
UPDATE! I met with my doctor again last night. I mentioned the possibility of this being caused by the Lialda. He said is definitely possible. We looked at my bloodwork and medication from the last...
I actually read somewhere that someone with PSC, had a liver transplant and their UC went away. I am praying a transplant will not be needed. Plus anything can happen in the next 10 years. They may...
Do you know which hospital in PA they're sending your biopsy results to? The first report came back inconclusive for PSC, he contacted the pathologist and told him about my history, and an amendment...
Well Doc said it is consistent with PSC, which is also consistent with medication causing inflammation, Hep C. I have had Ultrasound, MRCP which all came back fine. The biopsy is the only thing that...
I am picking up the Urso tonight. Not sure on the dosage. I meet with my doctor the end of july, so I am going to try and get copies of everything. Plus I am going to ask if it is possible to try a...
I talked to my Doctor again. He was able to get an amendment to my Biopsy, the report showed that the sample is consist with PSC. He called in a script for Urso which I am to start taking...
I had an ultrasound of my lower abdomen a couple years ago, except for my colon everything looked fine. My cholesterol has been around 195 - 200 since my first blood test when I was 17. I don't want...
I had an MRCP about a year ago, and everything looked normal. He did mention putting me on ursodiol, but he wants some more info before he does that. How high were your LFTs before ursodiol? I have...
Well, I finally talked to my Gastro last night. My liver biopsy results came back: Mild Scaring Mild - Moderate Inflammation Consist with HepC (Which I do not have) Indeterminate for PSC Last blood...
I have been on Lialda for just over a year. No side effects. And so far it has provided the best results in controlling my symptoms. Over the years, I have been on Asacol, Pentasa, and Colosal...
Ok, I had the biopsy on wednesday. While it was no were as bad I was expecting still not something I want to do again. I will be going over the results with my gastro early next week....
D only in the morning. I have not had a normal bowel movement in over 10 years :(...
I was thinking about seeing a rheumatologist. I have had upper back pain (by both shoulder blades) for over a year. It comes in goes, some days it is worse then others. Both my Gastro and General...
What Probiotics is everyone using? I am going to start taking them, but not sure which one. Mike...
Awesome news on the 100% remission. I have never had 100% remission, I think I am at 60% right now, still some frequent urges and d. I get a couple sinus infections every year. Antibiotics definitely...
I had an MRCP last year and the results came back negative (everything looked good - except my colon of course). My LFTs have slowly been creeping up over the last few years. My GGT is over 500,...
Hi Everyone, I was dx about 12 years ago with UC, now due to consistently (slowly) elevating LFTs my dr ordered a Liver Biopsy, It is scheduled for next tuesday. Anyone else have this procedure done....