Thank you Jess! I am so relieved to finally get a diagnosis but need to let my doc in Florida know, since apparently he is the last one to know I am positive. I am not looking forward to the herxing...
BTW...I just found out I have Lyme Disease after suffering from horrific symptoms for the past five years. if you have not been tested for Lyme, Find a doctor who will work with you on ordering the...
Hey Marty, I was diagnosed with UC back in the late 1990's and now I am not sure if I truly have "traditonal UC/UP". I took the standard meds for nine years and started devloping worsening GI...
Hey Jeanne, I was just diagnosed with Lyme after suffering for five years and seeing over 20 docs. I am currently living in southeast Georgia and recently moved from the Tampa area. I was diagnosed...
Thank you for sharing this info..... I be investigating this for sure. I have been taking a low dose of clonazapam (Klonopin) for the past three years and I started taking bioidenitcal progesterone...
Very interesting! I had done some research last month and discovered a Canadian Lyme forum where several members were discussing their sleep/nocturnal myoclonus symptoms. How long did it take before...
Thank you so much for your support. I am also on another state forum and exchange research info with a state advocate. Very interesting about the Flagella. My husband had some dental...
I have felt like hell for five years but the first 1.5 years, I literally thought I was going to die. My puzzle was solved in a "backward manner" meaning that I spent the last five years conducting...
Igenex IgM Western Blot: 18+ **31=++ **39=Indeterminate **41=+ 58= + 66=+...
I finally received my Igenex results back... IgM Western Blot: Positive (Igenex positive) Four bands are +, One Band is ++ One band is Indeterminate. My Multiplex B. Burgdor. Serum Plasmid is...
Hi Razzle, So sorry it has taken me so long to get back to you. You can check out www. salicylatesensitivity.com for info on salicylates. I just received my verbal on the Igenex test and it was...
Hi Razzle, I discovered I had a sulfa alllegy when I was in high school. I broke out in hives when taking bactrium for an ear infection. Sulfa allergies are common and many people who have problems...
I actually react to all spices (except sea salt), as they are very high in salicylates. If I were to eat a spice such as cinnamon (or any other), it would worsen my myoclonus....
Razzle, Do you have problems with salicylates such as MCS caused by exposure to colognes, fabric softeners, air freshners, cleaning products? Are you super sensitive to medications (most contain...
I do NOT get sounds in my head...just nocturnal myoclonus (limb and muscles jumping at sleep onset, day or night). I have a copies of all my labs from the last five years, including my recent...
Thank you for the warm welcome. I have actually already seen many of these websites and am familiar with the unreliability of the testing. I am a member of the Florida Lyme Group and have been...
Lymester, My nocturnal myoclonus symptoms were horrific back in 2006-2008. Back then, I was engaging in strenuous exercise and noticed that my symptoms were worsening when exercising. I was under...
I have been tested for everything under the sun, except the proper test for Lyme. I do not have apnea. I have severe salicylate intolerance, which I developed in 2006. After seeing approx. 20...
I have not been diagnosed with lyme at the present time but am looking into possibly having my doctor in Fl. order the Igenex Lyme test. I was tested (unreliable western blot-Quest Lab) a few months...