Last night my stomach became extremely bloated and I could hear liquid moving around—I mean, it was LOUD. I felt incredibly nauseous. I was in the bathroom much of the night, unable to go and just...
For what it's worth, I have two glasses of red wine almost every night and I'm on 6MP. My blood tests (which I have done regularly) have always been fine....
Thanks, all. Sherry, my last blood test indicated an elevated level pertaining to my liver (?) but not enough for my GI doc to be worried or take me off the medicine ... and not enough to do a sooner...
Some of you may have read my post about wondering if 6mp and was causing my sores. Went to the doctor and apparently the sore on my mouth is a side effect of the 6mp—prescription cream prescribed. He...
No side effects for me! From what I understand it works better for patients w/ proctitis (because of where our inflammation is)....
Interesting, thanks. And yes, the vancomycin is for the c-diff. I'm on a 34-week taper w/ testing throughout....
My sig is wrong, will update in a sec but currently taking one vancomycin and I'm off the prednisone....
Hi! A few weeks ago I got a sore on the outside corner of my mouth that won't go away. Had one on my tongue, but only for a few days. Have a very large one below my hip ... it has a lump underneath...
I'm so sorry your daughter is going through this. Has she been prescribed Vancomycin for the c-diff? 10 days and then if that doesn't work, a tapered dose—I'd definitely ask your doctor about it....
Thanks, Kgruben. It's awful! Just talked to my GI doctor. My blood work came back fine (she has me test often while taking 6-MP) so now just waiting on c-diff test results. She mentioned Remicade but...
My sig is wrong. Here's my updated med list: currently dealing w/ c-diff + proctitis: • vancomycin 3x/day • balsalazide 750mg 9x/day • 6-MP 50mg 1x/day • prednisone 5mg/day (tapered from 40mg/day,...
Hi! My c-diff is back. Saw an infectious disease specialist. He said in all his years of practice he's never dealt with someone who has had it this severe and that what my GI doctor is doing is...
Thanks so much for the feedback. And I laughed out loud when I read some of them this morning as I've already started cleaning out the pantry (after making the kids breakfast) and was wondering what...
I'm only on day two of prednisone (40mg in the morning) and I feel like it's a magic drug, in a way. I went from almost daily accidents/blood/mucus/many trips to the bathroom/everything else that...
Thanks, quincy. Yes, right now I'm still taking a (4g) mesalamine enema at night, but per your suggestions I'm going to talk to my doctor at my Monday appointment about switching generics/dropping to...
Thanks so much for all the suggestions. I ended up following my doctor's advice and started the oral pred this morning, five days of 40mg, then five days of 30mg, etc., etc. (and I know this goes...
I have an in-person appointment scheduled with my GI doctor Monday ... I will ask her about another generic enema. Thanks! Yes, I had a colonoscopy, which is how the proctitis was diagnosed. There...
I've been on the mesalamine enemas for a long time—almost a year now. Most nights I'm able to retain them and they do seem to reduce blood/mucous. I take the iron before bed along with 500mg of...
Hi, quincy, 5ASA is mesalamine, right? I take a mesalamine enema every night but my GI doc said oral 5ASAs like Asacol (which I asked her about specifically, a long time ago) work better for people...
I don't know why my sig didn't appear. Here's my med history: currently taking: • balsalazide 750mg 9x/day • 6-MP 50mg 1x/day • mesalamine enema every night • fluoxetine 20mg 1x/day • iron + vitamin...
Hi! Previously I took a steroid enema every night but had to quit because of an adverse reaction (puffy face, hands, etc.). So my GI doctor has been hesitant to put me on oral steroids for my...
Hi! Similar situation. A little more than a year ago I was diagnosed with proctitis and c-diff after I had a colonoscopy. My primary care doc suspected c-diff because of symptoms I was experiencing...
I was diagnosed with c-diff more than a year ago and a very long and slow taper of Vancomycin is the only thing that worked for me. I did Flagyl for 10 days but after that didn't work, I was...
I see Dr. Gail Bongiovanni in Cincinnati. She came very highly recommended by several other doctors. It can take awhile to get your first appointment with her, but the wait is definitely worth it....
fredflats: I took a corticosteroid enema for a long time (or is oral Prednisone different?) and it didn't help at all + caused lots of swelling (which I had take another medication to get rid of). My...
Thank you, for all the helpful comments. I've started a food journal and hopefully, within a few weeks, I'll begin to see some trends re what I eat and my symptoms. It's nice to know that others have...
Thanks for the feedback, Joanna. Will start a food journal tonight. And that Food Combining Chart is very interesting. I've never seen it. To do that, do you typically not eat meals, per se, but...
Thanks for the response, imagardener2. I think the journal is a great idea and better than me just randomly choosing things to eliminate here and there. And you have given me the mental boost I...
A lot of people have suggested the Paleo diet to me, XtraOrdinaryGuy. And goodness no! The diet above was not my gluten-free diet. I even went as far as to look into my medications/cosmetics when I...
Quincy: Forgot to add that my GI doctor can't say I'm completely free of c-diff yet, given that I'm still on Vanco. BUT my last three tests have been negative AND she felt it was in enough of a...
Thanks for the response! • I take two capsules of Saccharomyces Boulardii + Mos probiotics/day. Interesting about the yogurt ... • Typical diet: Breakfast: coffee w/ half+half, Greek yogurt w/ honey...
Hi! I've been battling c-diff + proctitis for more than a year and in that time have never been in remission. After many rounds of Vancomycin, my c-diff is finally under control—my last three tests...
No, I haven't! I've tried mesalamine enemas 2x a day but I wasn't able to hold the day one. I'll ask my doctor about it. May I ask, does he stay in bed for an hour with them, then? I thought it was...
Thank you so much for all the replies! It's not something I like to talk about with a lot of people and it's nice to know that I'm not alone. I plan to call my GI doctor in the morning. This weekend...
Thanks so much for the response, notsosicklygirl. To answer your questions, I do have light cramping when going and when I have a bad day (like today) I probably go 20+ times. But since early spring...
Early spring of this year I was put on antibiotics for a cough. The cough subsided but then I started having severe d w/ blood. Although I tested negative for it my primary care doctor suspected...