hmm...
Hi guys, I just got my second infusion of remicade and I tapered down to 20mg of prednisone. Tonight the blood came back. There was just a little bit, but I'm so fearful that as soon as I taper lower...
So sorry to hear about this. I know exactly how you're feeling. If it's not the cramping and urgencies, it's the pure exhaustion. If it's not the exhaustion, it's the medications not working. It...
4 pills was always the norm for me. If you seem to be doing well on it, he will probably lower the dose to 2-3 pills. 4 is the maximum amount though....
I would contact your doctor for a pregnancy test. They're so easy and quick that it's definitely worth checking out. You're most likely not pregnant, but you should just double check to avoid any...
Sorry to hear you're not doing well. I would request that you do some more testing. Tell him that you would like to check for c diff and other bacterial infections through stool samples. I know that...
Thank you so much. This is so encouraging. I think that this is really going to work for me since I'm already seeing some positive results. Woohoo :) 21 years old - Female - San Francisco Bay Area...
Don't worry too much about the prednisone! I've been on 3 rounds of it within the past year. It worked really, really well the first time. It bumped me right into remission. The second round it...
How long did it take you guys to get better from remicade? I had my first infusion yesterday, and I'm still going about 10 times with cramping. The blood is better and things are more formed though....
I'm sorry to hear that remicade stopped working for you. I'm starting it tomorrow for the first time & I'm really nervous. I know that a little bit of blood can usually be handled with immodium, but...
Hi guys. I'm in the worst flare yet and I'm not responding to Uceris or prednisone. I landed myself in the ER yesterday because of the insufferable pain & blood loss. I got 120mg of IV steroids and...
Hey guys. I'm a junior at UC Berkeley, and I'm feeling pretty isolated and alone lately because of my UC. It sucks. Do you know of any support groups? Healing Well is a fantastic group, but I see it...
I think it's the fact that my system is confused. I was eating a ton of carbs -- bagels, white bread, crackers. bananas -- and now I'm doing the juice and such. Should I stick with it and see if the...
Thanks for you input and advice. I have almost completed the intro diet and I'm just about ready to incorporate the apple sauce. When you first started, did your d worsen? I'm not having any more...
Best of luck! You can get through this :)...
Hi guys! So I'm on day #3 of the SCD and the bleeding has reduced significantly! But, I'm having the worst diarrhea I've had in a long time. I've read about "die-off" and such, but is this normal?...
Thank you! I'm glad I'm not alone with the depression, and it's interesting to know that there's legit chemistry to explain part of the cause. I hate to be a baby about it, because it could be so...
Thanks for sharing! Hopefully I get the same results. I just ordered the Yogourmet Maker. Should be here in a few days. :) ...
I am still in a flare right now. The prednisone isn't working this time around like it did last time. What is your diet like? ...
It's up and down for me. Sometimes I just feel very lonely and tired of not living a "normal" life. I wish I could go grab a slice of pizza and a beer with friends, but instead, I'm on the couch...
For the new year, I am trying out this SCD diet. I have a few questions, and would love to hear your stories. Has this diet worked for anyone? Has anyone used a yogurt maker to create the special...
My symptoms are absolutely worse when I am menstruating; bleeding worsens, shooting rectal pain happens frequently, and overall cramping persists....
I usually get the brown spotting also. Mention it to your doctor if you're worried about it. Better safe than sorry :)...
Hey poppyy, I know how you feel, because the same thing is happening to me right now as I taper off the prednisone. I feel lonely, depressed, and bored as the symptoms come towering back. I think the...
I am so sorry to hear this. I hope you feel better soon! Positive vibes your way. ER visits are the worst....
So sorry to hear this. Maybe trying some herbal remedies like slippery elm, fish oil, or coconut water. I have tried all three and they have seemed to help. I hope you heal well, and soon!...
How did you do when tapering off the steroids? I start to taper next week and I am worried that symptoms will come back. ...
Stress could have triggered a minor flare. Hope you get to feeling better soon!...
What is your job/degree? This sounds like a dream job for me!...
Yeah, could be the calories. Thanks for the positivity! Sometimes I just feel like my doctor is just as clueless as me about UC. It's a lot to figure out....
My doctor keeps recommending Gatorade though. I'm starting to think he has no idea what he's talking about half the time anyways....
I'm totally constipated. How can I help with the constipation?...
I have been getting really bad headaches. I am currently on 40mg of pred and 3mg of Lialda. Is this a common side effect for either of these drugs? I'm totally staying hydrated with lots of water,...
I hope you get better soon. My heart goes out to you!...
Thanks so much! ...
I would love for you to contact her! Please let me know of any connections you have!...
Does anyone know of a great herbal doctor in the Bay Area (Northern California)?...
Please contact your doctor if you are having what you think could be black stools! It's very important that they know this so that they can assess it....
Do you feel any pain though? Because I feel no pain at all. I only have occasional headaches and frequent, bloody, urgent bowl movements. ...
I have Ulcerative Colitis and was diagnosed a few weeks ago. I have inflammation in the left side of my colon and my rectal area. Tomorrow I go in for a CT scan because they suspect Crohns now. I'm...
I am on 40mg of prednisone a day. This is only day 3 of the dosage and I haven't seen results. Is this a large amount? What sort of side effects have any of you experienced? How long did it take to...
Thank you! I stopped the enema last night and already see a drastic improvement. :turn:...
A lot of people have different symptoms with UC. I personally have mucus and blood in stool with very, very frequent urgencies to have to go. You'll be fine regardless of the results. Have faith and...
Did you have problems with both the oral mesalamine and the enema? Is it possible to just be intolerant to the enema? My doctor seemed to think I was crazy and told me they were the same thing with...
Thank you for replying. I'm taking the Mesalamine Rectal Suspension, USP enema. It has mesalamine (4 grams), edetate disodium, potassium acetate, potassium metabisulfite, purified water, sodium...
I was just diagnosed with UC two weeks ago. I am a 20 year old college student. I started taking lialda mesalamine orally as soon as I was diagnosed and really saw no effect- neither positive nor...
I have heard that cannabis edibles or using a humidifier for a smoother inhale are less harsh ways than actually smoking it. I haven't tried it, but I am definitely not ruling it out. California...