Hello, I do high intensity cycling almost every day. When I was first diagnosed I found exercise was part of the regimen that kept me healthy. I try to do 20 miles a day averaging 20- 25 mph and a...
I’ve been on Rinvoq for just over a year now with no problems whatsoever. I have a history of blood clots, so I was apprehensive to go on this drug but as I understand it, the cardiac and clot...
So, you can develop antibodies to biologics like Remicade but because Rinvoq is not a biologic you will not develop antibodies? Also does everyone eventually develop antibodies to biologics or just a...
Yes she seems crazy. I was merely trying to contribute and say rather that adding more drugs, maybe try ginger again and MM has helped millions with nausea. This forum is being ruined by the nutbars,...
Between ginger and MM sounds like you're all set...
When I'm not in a flare, popcorn is ok if I don't go overboard. Popcorn and beer while watching football or NBA, perfect!...
kefir has been extremely helpful to me. It loads you up with good bacteria, is delicious and cheap at Aldi. Congrats on your continued remission!...
Have you tried ginger? Celetial Seasonings makes a great ginger tea (jamming Lemon Ginger) that helps me a lot with nausea. There are also many ginger products if you don't like tea....
Who said anything about rectal meds? Rectal meds again, really?...
I find it interesting that an entire subject is banned here but when members take part is trolling and personal attacks, that's ok. Who is minding the store?...
Not really in a flare, no vomiting, very little diarrhea, not sweating much....
Thank you for this info, This is crazy, I had this question when I started Rinvoq a year ago and I swear there were lots of articles explaining how it was a biologic, a new one etc. Learn something...
It's not a big deal but just Google "is Rinvoq a biologic?" the internet and the Rinvoq website itself say yes...
Thanks for replies, this potassium issue is a tough one. Hard to keep the levels up, very hard to get back in range. All the while not sure why it's happening. Low potassium is very bad, effects the...
"RINVOQ is the brand name for upadacitinib, a biologic drug belonging to a group of medications known as Janus kinase (JAK) inhibitors" Rinvoq is a biologic and considered as such by the medical...
Yes I eat and drink foods high in potassium to no effect, always have....
Has anyone else here had low potassium levels in their bloodwork? Mine was 2.5 when I did bloodwork last month so my doctor put me on time release potassium pills for a week. We redid the bloodwork...
Blue Cross/Blue Shied sucks I am so glad to be off that hellish insurance policy. Do you have an option for other insurance companies?...
2 biologics is a no go because it's too much immune suppression. The danger of serious infection is real. Rinvoq 15mg seems to have kept things barely under control. It's a tricky situation bc if the...
Nausea is definitely an ongoing problem for me as part of my UC. I always thought it was the meds, but even when I've taken a break from the meds, the nausea continues. Ginger and bland foods like...
omg what is this obsession with rectal meds???"" is not a personal attack, I mention no names, it is a general statement with no personal intent. Do you know what a personal attack means? "Personal...
Here we go with the personal attacks. I question the effectiveness of rectal meds and she questions me personally. And on it goes.......
Wow, I didn't know that. The definition of UC is when only the colon is involved, Crohns is when both the small intestine and colon are involved. Thats pretty much it. Wherever your flares start is...
I have never had a flare start in the last 12" of my colon ever. My flares always start up high in the same spot and radiate out until my entire colon is involved. Yes I've used Rowasa, but it never...
Rectal meds will only work for the very small minority of UC sufferers who have involvement in the last 12" of their colon. Yes they are worth trying for that VERY SMALL percentage, the rest of us,...
OMG what is this obsession with rectal meds?...
Thanks for your thoughts. Yes I am still at 15mg, saving 30 for if things go off the rails. I am still on a razors edge but it seems to be not getting out of control. I am still concerned that this...
Update: this flare seems to be calming down. This was nowhere as bad as in the past. The only thing that has changed is the medication, if this is what flares are like on Rinvoq, I can handle it no...
Thank you Clo, very well explained. I'm sorry you went though all that and are still. Whenever I am feeling "woe is me" I think about how many other UC/Crohns patients have been through much worse...
Some pertinent info regarding the newest biologic, it's not 100% but better than current therapies: Rinvoq’s Effectiveness in Treating Crohn’s, Ulcerative Colitis Shown in Studies Nearly half (49%)...
Glad you're seeing some improvement, sounds like you need a new doctor. Just remember, rectal meds can only treat about 12" into your colon, if that's where the problem is then great, if not you're...
clo2014, I'm confused, "I have a colostomy so I don't think my numbers are pertinent. " I don't understand. Why would you be on Remicade if your colon was removed?...
My remission is like yours, I can enjoy a cold beer with any foods I like with no downside. I drink kefir always, just a small amount in the morning to keep gut microbes healthy. I exercise every day...
Get checked for Cdiff, it's a simple test you can do at home. I had it once and it was a bit different from a normal flare. If Cdiff gets out of hand, it can be quite serious. Best to you...
Best of luck WayneTX, hopefully this will do the trick....
Sara14? Are you referring to me or Q? Either way, this forum could be a great resource especially when we are suffering flares if people would just leave the pettiness and snakiness at the door....
So sorry you're going through this BG, we all know the evils of prednisone but you seem to be catching the worst of it. Try to breathe, deep breathing, it really helps. Maybe try some cannibis...
Thanks so much! It's been a slow build, with me historically it starts as morning blood and the runs but I can still go about my day, then a few days later I cannot leave the house, to being...
" no biological is likely to cure IBD by addressing the primary pathogenic mecha- nism of these barrier diseases." So, there is a ton of information in this article, the main takeaway seems to be...
Wow, that is eye opening, thanks Old Mike!...
I have been on Rinvoq for a year now, it worked very fast getting me into remission and all was well until this week. I am having a full-on flare after all this time, I am wondering if anyone else...
Quincy, I have a suggestion -why don't you put me on ignore, then you won't feel the intense urge you seem to have to leave snarky or demeaning replies to my posts. Problem solved!...
When my doc started me on Rinvoq, he said one of the advantages was that you can stop it anytime and restart with no issues. Rinvoq is a jak inhibitor but is also considered a biologic. It can be...
That's an interesting way to look at it. I think one of the advantages of biologics is that you can stop taking them if needed and restart when things are better. I am on Rinvoq and currently having...
Replying to posts is one thing, stalking and trolling certain people here is another matter. It's very obvious, completely unnecessary and damaging to this forum and the people who come here in pain...
"BeatUC gets paranoid when I reply to her posts...She must get over herself. q" Another putdown. Q is a troll. Admin certainly you can see the problem, why are personal attacks allowed here?...
Thanks for the answer. No it's not you lol, thanks. There should be a feature that hides our posts to certain users who stalk our posts and put up negative replies. These people are trolls and...
"beatUC........quick Q....if you were on prednisone 20 years did you acquire moon face I asked my GI about that and she said it takes several years on prednisone to get moon face. My side effect from...
"@ beatUC, when you block a member you will no longer see their posts, that's how that feature works." Thanks for your reply. No I mean do they still see my posts....
Question for the moderators: If I "ignore" a user, can they still see my posts? THanks...