Mouth ulcers! One after another....
Just eat???? I know how you feel. I ate nothing for a week before I was diagnosed. I would rather starve than go through the pain! Even pethadiene shots werent working Ended up in hospital on a drip...
Hi pooopystar! Allopurinol was my life saver! I too don't metabolize Imuran well and was put on Allopurinol after metabolite testing. I was originally on 200mg Imuran alone which wasnt working. I...
Itsalwayssomething, I too had low iron at one stage. My GI sent me for an iron infusion (IV, and not blood product). Said it is absorbed quicker than tabs and you don't get the constipating side...
Looking back, I had Uc for around 3 years before a major flare. The blood was minimal so my specialist (not a GI) was treating me for internal haemroids. I fell pregnant and bleeding stopped....
Imuran made me nauseas too but found ginger ale (made with real ginger not flavoring) or ginger tea helped settle it. I still suffer nausea occasionally. I have been on Imuran for around 18 months...
I'm B12 deficient caused by a low red cell count which is caused from the 6MP I'm on. I just have injections once a month. Some have them weekly. When I'm low it mostly makes me feel tired but I...
Doc told me pred leaves body pretty quick but it's the damage that it does to your body that takes time to repair. I was on high doses of pred, Imuran (alopecia is a side affect) and 5-ASA. Doc said...
Hi s_morgana My GI is in melbourne. Actually I'm currently seeing two who are working together on the study which is great since two heads are better than one. They both work at the IBD clinic in the...
I couldnt metabolize 6mp properly. Was put on allopurinol which is used to treat gout. It flips the way I metabolize 6mp and was the only thing that got me off pred and into remission. There are...
I know how you feel on the pred. If I was on a dose higher than 20mg which was a lot of the time, I would go into hysteria. I have a 2 year and 4 year old kids. Not nice for them to see mummy like...
Notsosicklygirl, thanks for you're response and also to the others have also posted. Its nice to see similar stories to my own. I was on 100 mg Imuran and 100mg allopurinol but recently dropped...
I went dairy and gluten free for a while which really helped with the bloating but didn't really seem to help with the UC. I tried pure aloe juice for a couple of months with no results. A few things...
I was diagnosed with UC in Aug 2010. I spent 13 months on pred averaging around 50 Mg's a day. It wasn't working. After 3 months on pred I started Imuran 200mg and mesalasine. That wasn't working...
Could be low B12 levels. UC patients sometimes don't absorb it well. Causes fatigue as well as the symptoms you mentioned. If this is the case probably best to have B12 injections rather than relying...