When hospitalized for a different disease I left with c diff. We thought it was my uc flares causing the horrific painful awful smelling diarrhea but two days out of the hospital it was still going...
I join the majority expressing caution before deciding you do not now have signs of UC and maybe never had it. UC is a clever little immune deficiency disease. I am a 79 year old female diagnosed...
Has anyone experienced pyoderma gangrenosum in conjunction with their uc? If so, I'd love to hear from you. [added a subject]...
I mix mine with plain Greek yogurt, approximately 1/4 cup thinned with enough soy milk to make it drinkable and stir in the packet. I don't need it to be any sweeter. The soy milk seems to sweeten it...
Faithmac - From my research on the web and VSL#3's own web site, it appears there are two different types of packets; an OTC packet and the DS packet available by prescription only. I'm so happy for...
And rbartolo, you've probably learned it is ds for double strength by now. If you go to you'll get a lot of information from the official site....
Faithmac - Just curious. Were the samples the OTC was giving out the DS or regular? Did he offer to give you a prescription for the DS so your insurance would cover it? I looked on line and found...
You're right. The pills do require refrigeration. I had forgotten that. They may not keep potency without refrigeration. My pharmacy didn't have them on hand so I located another pharmacy that had...
It always becomes confusing when third parties get involved so I can only share my experience with you. It took three times even for my doctor to get the prescription right. What I know is VSL#3...
Batman - My GI put me on Azathioprine. There was no improvement and I stopped taking it on my own. I am not recommending anyone follow my lead, I am just sharing my experience. I haven't been back to...
Shannon1 - Just FYI, at the top of the page there is a search box. I put in fecal transplant, hit the search button and got a whole bunch of entries from people who have used or are using it. Good...
What a nightmare you have been going through. I developed c diff after a round of antibiotics depleted my immune system of good flora. It was excruciatingly painful. Pardon the graphic description...
Hi, Matt. I might be beating a dead horse when I say once again, there are two types of VSL#3, capsules and packets. The capsules are an OTC (Over the Counter) product and I don't know of any...
Hi, Matt. Everyone understands because we have all been that quivering mass of uncertainty, trusting our doctors to know the best for us. I went on the web site you posted (I think it was you) and...
I have found the greatest healer to be me, myself. I hesitate to post what is happening with me because there are so many variables in everyone's life, including mine. A year ago I fell, was...
I echo the Depends recommendation. I would be trapped at home without Poise pads for my bladder incontinence and Depends for UC bowel incontinence. I truly empathize with janey47. It ain't no fun....
I failed to include the name of a probiotic that I have talked about on a different thread. It is Benebiotics, an enteric coated pill that has billions of good things. They are also very inexpensive...
Thanks to reading the probiotics thread I pursued the possibility that the VSL#3 DS packets would be covered by my insurance company. Took a lot of searching on the part of the insurance company's...
Thanks to all for sharing. I needed a good laugh and found that here. I don't know about others, but I can clear a building when I am flaring due to the ungodly smell associated with plain farts and...
I would love to get some kefir grains if you still have any. I'll make a trade with you. I am also a coffee lover but it was hard on me due to uti's. Was introduced to a coffee that I love. It also...
I can't begin to say how sympathetic I am for the young lady with c diff. How horrible to be young and so affected. C diff frequently occurs after a round of antibiotics has depleted your immune...
UTIs have been the bane of my existence along with myriad other health issues. In my case don't feel they are prednisone driven. The newly acquired doctor on my list of specialists, a urologist,...
Thanks to chicagobulls11 for helping me come to understand posting on the forum a little better. My apology if I haven't quite understood the process and offended anyone. This forum is a marvelous...
I am so lucky to have a wonderful secondary insurance that only cost me 13 years teaching to become vested. Since I loved teaching I consider it a gift. I am Medicare primary, required once you reach...
I have been on and off prednisone since Nov. of 2006. Highest dose I was ever on was 60 mgs for pyoderma gangrenosum in conjunction with my uc. In the beginning it was fairly easy to taper. Recently...
I haven't posted much on/about me. I am a seventy-seven year old female diagnosed with uc in the late 90's. Can't really remember when as I was advised by my primary dr. to have an "age" required...
We are all the same and yet so different. Can't give you advice on specifics, but wonder if you have researched probiotics. My son started researching for me, much to my gratitude, and we found many...
There is something called venous insufficiency. Just google venous insufficiency and you'll find a wealth of information. I have it intermittently in both feet. When I went totally Vegan, it...
I recently had an abscessed tooth that required an antibiotic to enable the dentist to do a root canal. I increased my probiotic intake to restore the good flora in my body. My son had researched...
I know all the "experts" say stress doesn't cause UC. I beg to differ. I am currently looking for a mental health counselor to help me work out some issues. I certainly want to be as healthy as...
It is always amazing to me how much alike and yet so different we all are. I only wish prednisone would amp me up as it does many people. Instead, I can easily doze off. I was recently prescribed 60...
When I am flaring sometimes it is within 2 hours of eating. The other day I was out to dinner with a friend. Ate some broccoli, the first time I had eaten broccoli in months. By the time I got home,...
Dear Mum of 3. You will find naysayers will always be more vocal than those who are open-minded and positive. Thank you for sharing. I am so happy for you and hope you and others who have good things...
My current doctors recommended decreases of 10 mg of prednisone at a time. I have been off and on prednisone for 5 years now due to pyoderma gangrenous accompanying my uc. I was on 40 mg with my...
Thanks for the post, misspinkie. I am so happy you have found relief at last. It is a constant unrelenting pain that most of us on this forum know all too well. I am so sorry you had such terrible...
It never seems to be food with me. It is always stress related. I experience something I think I have dealt with, and I apparently have only buried it in my subconscious and I'll flare. I have a...
i have Humira every other week and have for four months. I was also taking prednisone and have just gotten off prednisone, a very slow backing off. Just got off last week and I just started flaring...
In May of 2006 I lost my husband of 43 years to cancer. In November of 2006 I began to experience UC flares, along with a pyoderma outbreak on my scalp. I was so fortunate to have a wonderful doctor...