I use Cal/Mg. I saw a pretty significant difference in form when I started taking it. My UC is the simmering type - flares are never terrible, but the remission is never quite solid either. I thank...
Wanted to bump this thread. 23andMe is doing an IBD study with Pfizer. The purpose is *likely* to see if genetic markers can be used to prescribe specialized treatment plans (rather than the try...
Wow the first one is fantastic. It's in laymen's terms, and is easy to imbibe. I have sent it on to my GI, who himself suffers from Crohn's. Looking forward to hearing back from him....
Hi sickinCali, from your severe response to gluten, I don't think you quite fall into the traditional pathology of UC - sounds much more like a very bad allergy. What have doctor's said about Celiac...
If you achieved remission with just a diet change, it likely means that your inflammation is not too bad. I would surely not go on prednisone because as mentioned before it's just a bandaid and you...
Hi, In my experience GI's are too busy to care about your long term health, so to them prescribing predisone is an easy way to control your symptoms temporarily. If you don't think that your...
L-Glutamine won't help you control your body's inflammatory response, but it will definitely help heal the damaged mucus layer that protects the epithelial tissue of the colon, which is the cause of...
Yep my CRP went up to the high single digits during my last flare, which has some similar symptoms as yours. What worked for me is Rowasa, because the streaks in the stool looked like they indicated...
Hi Bez, I do not personally supplement with Butyrate, but have considered it because of all the research supporting it's benefits to the healing and transit process within the colon. The predisone is...
I can see how that would be a tough set of circumstances to experience. Stay strong OM - and keep up the good fight! I love seeing the research you uncover (I read a lot of it), and I am also...
Sorry about your son. Hope he is coping well. If there is one thing that comes up all the time through all the reading on epithelial recovery, it is that it is a slow process. And it seems to be very...
It's never too late OM! It might just take longer for the body to kick back into gear and start healing. Guessing you have pancolitis? What meds are you on? What about your diet?...
I have contacted the CCFA asking them about any studies they have on their radar about addressing epithelial protection by strengthening the mucus. I live in Pittsburgh, and they have a local CCFA...
That's a good paper OM - but I wonder if there is any incentive for research to address the issue? I passed on the paper regarding the amino acid supplementation to a friend of mine who is currently...
Thanks Mike. I'll probably go slow with the L-Threonine. I did notice that 5g of glutamine was way too much in an enema (messed up the consistency of the stool), 2.5 seems to be ok. If I add...
Great thread OM and Mark. About 2 months ago I changed my diet and started rowasa nightly, and the obvious signs of inflammation (mucus, blood in stool) got better. Since then I have been waging an...
"I think it is not our microbiome. It's our genes." For now, this is a chicken or the egg coming first question. There's really not enough research out there to assign causality. The research does...
It was a 14 day course. Guardian7 - Eating is the hardest part! I'm hungry all the time but I have to be very choosy about what I eat. I'm adding about 15g of L-Glutamine per day as well which I...
Guardian7 - Agreed! I wasn't able to access the study. Did they begin with anti-biotics? I think the main aspects missing from most FMT studies is that: 1. They take fellow UCers that are flaring...
Update: Still holding strong after 2 FT's - I've been consuming quite a bit of vegetable soups that are high in fiber that have resulted in large morning BM's. But thus far everything is holding...
One thing that I would add here is that the pathology of UC is quite complex (clearly...since the causation is yet to be determined), so limiting the treatment plan to FMT alone is likely not to...
I actually have no issues with pan-fried stuff (we do use very little oil though)...I do still stay away from deep fried though. We use peanut oil, olive oil, and avocado oil - those tend to work...
Hi all, I've been in a persistent flare for a few months now. I went on prednisone for a couple of months, tapered off, and the symptoms came back in a few weeks. Then a month or so ago I started...
Hi there, A strict diet goes a very long way in minimizing the effects of a flare. Here are some guidelines that work for me when I flare: - A diet that is very low in grains (carbs) - Very sparing...
I just got some PC gel capsules for myself, and was thinking of making retention enemas out of them. The old thread below seems to show some history of it on this forum. Has anyone tried it? Results?...
Yea I use VSL daily. I have also done some home FT's in the past with decent results...although it's not a "cure" for me like it has been for some. Currently it seems like the Rowasa is making the D...
Thanks quincy. I'm on Asacol 3200mg, Azathiprint 100mg, Canasa and Rowasa (alternating days). I did push for a stool test, and he ordered one as well as a blood test. Secretly I was hoping he'd...
Well the thing is that, before this past week I have NEVER had these symptoms, and I have been in a flare 3-4 times since diagnosis. This just doesn't feel like a normal flare to me - I only have 1-2...
Hi all, I had been fairly stable recently with the meds listed below, but as of the past week I have had extremely watery D (with no B...hard to tell if there is M), and I have moderately painful...
Hi optimist! I'm a "hardgainer" as well and I lost 20lbs on a 145lbs frame when I changed my diet. However, I found that the weight I lost was all weight I didn't really need - I'm much leaner now...
Hi all, Quick Background: - Diagnosed with moderate pancolitis in 2011 - At worse I was going 5 times with mucous and sometimes blood. Lost about 20lbs on a 145lbs frame. - Went on Prednisone - Took...
Thanks everyone. Yes it would be great to not have to worry about meds at all...but life could be worse, much worse. I'll call the canasacare.com people and see what they say - otherwise it sounds...
Hi all, I've been in somewhat of a fleeting remission since I started with Imuran early this year. I am still taking 3200mg Asacol, 100mg Imuran, and a Canasa every night (ish). However, the prices...
Thanks for this thread curl3d, you might have inspired me to begin my FT quest. Just wanted to mention that your immune system behaves erratically when weaning off of Prednisone - and you're right at...
My symptoms are a somewhat milder version of what you have described, although I have only been dealing with this since Sept 2010. My diagnosis was pancolitis, but the inflammation was very much like...
Hi all, As of late I have been mostly symptom free using Asacol HD and canasa, but I began to notice that every week or week and a half, I would feel a little less than ok. To try to get away from...
Thats a good question, not sure why he did that. I'll call my insurance and see whats going on. Hm, $20 copay? I'm using a coupon from Canasa and bring a 30supp rx to $40 - still not so bad...
Hi all, Even though I have been "diagnosed" with "pancolitis" (sorry, just a little cynical nowadays, lol), I find that if I have a flare up of symptoms, upping my Canasa to 2x daily helps things...
" I've always wondered though. How would you do a double blind study of fecal transplant? " This is actually not so difficult - conduct all infusions under general anesthesia. That way the smell etc...
In a sense I agree with XtraOrdinaryGuy: I too wanted to prove to myself that I would still be ok i was using very few meds - not going to do that again for a while :) I think in the UC community...
Thanks guys I will keep that in mind. So far today I have had 2 more BM's but I am not seeing anything overly frightening...so I'm hoping that I can quell this one with the meds that I should have...
Thanks quincy, I agree that I was silly to try and go lower than 3200mg. I started the enemas when I was still on pred. Once I came off I started seeing loose stool in the mornings (more so than...
Hi all, I finally got into remission in Mid july with the use of rectal meds (canasa 2x) and increasing my asacol hd dose from 2400 to 3200. Then a couple of weeks ago I tapered down to 1 canasa a...
Hello, I started taking generic Rowasa and Canasa while I was still tapering off Prednisone earlier this month. When I added them both (Rowasa by night and Canasa by day) my residual symptoms all but...
Hi all, Since this thread got bumped to the top recently, just thought I'd update. After posting I followed the forums advice and began by asking my doctor for rectals. He was already thinking about...
hekela, Nope I am not on SCD. I've always had trouble putting on weight, but with UC thrown into the mix I've lose about 20 lbs in 6 mo. I think I would probably disintegrate if I dropped my carb...
hekela, Thanks! oddly enough that's a relief to hear! Although now I have to find another go to food for easy to digest calories......
"If you're familiar with SCD, you know it advises bananas be very ripe with brown spots before eating." Here is another randomly unfounded claim of the SCD. If the sugar in bananas do indeed cause...
Hi all, I believe that my symptoms are finally a lot more stable than they have been in the past year or so - finally off prednisone as well! Just like most UCers, bananas used to be my go to food...
A family friend of mine gave me 4 homeopathic "cures" but I did not notice any difference in my symptoms. Homeopathy has historically shown very little efficacy - cannot be differentiated form a...