I'm sorry to hear your hair is falling out. That is devastating. I had some hair loss in the past and it ended up being really low vitamin D levels (like non-existent) and probably a few other...
Last year while on prednisone I experienced drastic changes to my tastes. I always had a bitter/metallic taste in mouth. No longer could really taste anything sour. Things could not be sweet enough....
I can't do beer or hard liquor. I seem to be fine with most wines- sparkling or red are my usual. I drink a lot of Oregon pinot. I'm always pretty careful to drink in moderation (2 glasses tops) with...
Milk and dairy products in general are very safe foods for me to eat. I have a glass of milk and a serving of yogurt every day. Everyone is different though- cut milk out for a few months and see...
A big consideration for my doctor seems to be my quality of life. Not only does he take into consideration the clinical factors (pain, labs, scopes, bms, etc.), but he also listens to how I'm doing....
I haven't eaten at olive garden in years, but plain pasta is usually a safe bet for me. If you can tolerate cheese/dairy maybe have them add some. I'd stay away from the salad. And maybe the meats...
That's the worst. Hope you feel better soon. A good cup of herbal tea and a cheesy movie on netflix always seem to help me- even when I'm exhausted....
I'm not sure what I'm going to do. The 6MP had me really close to remission and I hate to lose that. I'm still taking Asacol HD and Rowasa. The simponi itching you describe sounds really unpleasant...
I can't do black tea, but green tea is fine. I have green tea mixed with mint tea in the morning. Sometimes I'll throw in a back of ginger tea too....
Has anyone else out there had an allergic reaction to 6MP? I've been on 6 MP for a while and recently upped my dose too reach the therapeutic level. When I first started 6MP months ago I broke out in...
The thought of having to travel while flaring- gives me nightmares. I would reschedule my trip if at all possible. On the upside Disney has a lot of bathrooms spread out all over. Maybe you could...
I took turmeric capsules daily for about a year. I forget the dosage. It didn't really seem to make a difference for me. I've always wondered if maybe I just needed a higher dose. Good luck!...
I am not a vegan or vegetarian, but there are a few vegan foods I love that actually seem to be processed okay by my body. I also know that my body just needs medicine to control UC, but to each...
1. I think the big pills are just a way of reaffirming how awesome I am every day when I'm able to swallow them. The G is in front of "nat" because nat would just look naked without the G. 2....
My UC is worse at night when flaring too. It can be miserable and I'm sorry for you! Sleeping on my back helps- left side is a definite no go. Other than that I have no good advice- just empathy....
I'm on 50 mg of 6 MP. I've lost a little hair, but it is not noticeable (other than if you see my shower). I'm also not sure if it is from the 6 MP or poor nutrition while flaring. I've had a few...
Yes this happens to a lot of people. Me included. Anxiety about everything goes through the roof. If it gets bad (impedes on your ability to function) go see a doctor or find a professional you can...
The SCD diet did not work for me. I actually got more sick and started to lose weight (that I did not want or need to lose). It really does seem to work well for some people. It might be worth a try...
Sorry I've heard shingles is really miserable. Hope they go away as quickly as possible....
Positive thinking has never worked for me. Maybe I should try magical thinking the next time I'm dying in the bathroom?...
I'm sorry for your experiences. I'm not really going to wade into the vaccine debate other than to say my Dad is a polio survivor. I am very thankful for the polio vaccine. It helped put an end to an...
60 mg oral for 6 weeks. Tapering very slowly from there. Moon face is my least favorite side effect. I know there are worse long term ones, but I'm pretty vain and think the song is about me....
1. Enemas are one of the least extreme medications used to treat UC. 2. You should talk to your doctor or pharmacist about how best taper prednisone. You should always take as prescribed and not...
Not your best moment, but let it go. I think most drug trials that rely on patient self reporting adjust for inaccurate reporting of symptoms....
I can drink when in a solid remission, but I only drink wine- white, red, or sparkling. I also think my success comes from never having much (1 glass tops) and always drinking with food....
I tried aloe vera juice. It made me really sick. Didn't help with the colitis and actually increased the intensity of a flare. I will never try aloe ever again. I don't really know too much about...
I'm really lucky I have a desk job and can use the bathroom as much as needed during the day (unfortunately it can be very far away at times). I am very lucky to have great sick/vacation time...
Yes, when I'm flaring, and I don't like it at all. Of all the things UC causes the mucus is one of the things that bothers me the most. Getting UC under control makes the mucus go away for me....
I get the left side ache too and for me it is colitis related. It got pretty persistent so even though I was not symptomatic my doctor did a scope. I had active inflammation even though functionally...
Smaller more frequent meals. Lots of liquid calories if you can. It's gross, but you've lost weight so you may want to consider a nutritional drink (something along the lines of Ensure, but there are...
You should consult with your doctor, but I always have all sorts of weird pains when either going on or coming off of pred....
My veggies have to be really cooked- steamed, steamed, and steamed some more. Or baked a long time. The light roasting doesn't do it. Zucchini, other squash, asparagus, and mushrooms are my super...
I always liked saline. I used a squeeze bottle I got at the drug store. I always ask my pharmacist which OTC meds I can take for stuff- he knows about my colitis and knows which other medications I'm...
I love chia seeds!!!!!! My favorite is 1-2 tbsp in a 1/2 cup of milk (dairy loves me you could substitute with coconut milk or whatever). Add cocoa powder. Let sit in fridge overnight. Turns into...
$40/month for Asacol HD $5/month for 6MP $5/month for Rowasa Enemas $30/month for vitamin $20/month for Omega 3 Fish Oil = $1200 a year I have a health flex spending account- money is taken out of my...
Sorry you are still struggling in a flare. I've never used the prednisone enemas, but I've used oral prednisone. Usually 40-60 mg for 4 weeks and then wean down from there. The first few times it...
I'm sorry! I was always super healthy and felt like I must've done something terribly wrong to bring UC on myself. And then my diet while in flare! Ugh. Not a vegetable in sight that hadn't been...
Can you take a semester off? Or perhaps a reduced course load? Getting healthy is the #1 important thing. Call your doctor and see if there is anything else you can try to get the flare under control...
Thanks for sharing! This was interesting. Did anyone else see this? http://www.utsandiego.com/news/2014/oct/27/receptos-ulcerative-colitis-rpc1063/ They're going to be starting a phase 3 trial for...
Have you called your doctor? I think you should try to get in and see a doctor....
@Guardian 7- Thanks! You're nicer to the younger me than I am. And you're also right. I was sick of taking meds and just wanted to be normal. My GI had told me to stay on them, but I just stopped...
I take an Omega-3 fish oil supplement. I also take a multi-vitamin and probiotics. I like to think these help, but can't tell you for sure....
After I was first diagnosed I went into remission. I was in my early 20s and not too smart. I went off all my meds. Felt fine for a while (3-6 months?) and then went into a huge, horrible, worse than...
I'm sorry you are in such a bad flare right now. I too had a bad flare my last semester in college (maybe the stress). #1 thing is you have to take care of yourself and health. That may mean taking a...
I love popcorn, but even when in a good solid remission it kind of kills me. I feel like I'm starting to flare about an hour or two after I eat it....
I need a higher dose of prednisone too. I think 60 mg for 4 weeks or so. Then I taper 5 mg a week or every other week depending. A lower starting dose or quicker taper doesn't help at all....
I'm located in the US and assuming you are too. When I was in college and dropped by my health insurance my Doctor really worked with me. Your son should talk to his physician. We did three things to...
It sounds like maybe you should consult with a new GI. From my understanding it is a little unusual that Cipro and Flagyl worked to bring your flare into remission. (I am not a doctor or nurse)....
Cherry juice seems to really help my aches and pains. I drink the straight cranberry stuff when I feel a UTI coming on, but don't think it has any effect on the UC....
Your case sounds really complicated! I really think that in the long term getting "fired" might be a good thing. If you can, find another doctor that you feel more comfortable with. I think having...